jude 🪲
@queerlyjude.bsky.social
crippled, queer, filled with fear
late 20s
mecfs, crps, heds + what not
late 20s
mecfs, crps, heds + what not
Started the #sophiescarf and... I was skeptical but this pattern is lovely to knit on so far.
I'm still quite terrible at counting rows in garter stitch,but alas.
I'm still quite terrible at counting rows in garter stitch,but alas.
December 15, 2025 at 9:18 PM
Started the #sophiescarf and... I was skeptical but this pattern is lovely to knit on so far.
I'm still quite terrible at counting rows in garter stitch,but alas.
I'm still quite terrible at counting rows in garter stitch,but alas.
made it to pain management and she wants to try things to treat my pain, but wants an mri first before we do anything pain wise. I agree that this is a good choice.
The thing is…
I got referred to orthopedics back in June.
They triaged me and sent me to a podiatrist.
I asked for an MRI.
The thing is…
I got referred to orthopedics back in June.
They triaged me and sent me to a podiatrist.
I asked for an MRI.
December 7, 2025 at 10:31 PM
made it to pain management and she wants to try things to treat my pain, but wants an mri first before we do anything pain wise. I agree that this is a good choice.
The thing is…
I got referred to orthopedics back in June.
They triaged me and sent me to a podiatrist.
I asked for an MRI.
The thing is…
I got referred to orthopedics back in June.
They triaged me and sent me to a podiatrist.
I asked for an MRI.
ER doc, hospitalist, and inpatient neuro: “this is truly a medical mystery and there’s nothing we can do”
PT, OT, podiatry, pain management: “yeah this is literally textbook CRPS”
PT, OT, podiatry, pain management: “yeah this is literally textbook CRPS”
December 7, 2025 at 10:18 PM
ER doc, hospitalist, and inpatient neuro: “this is truly a medical mystery and there’s nothing we can do”
PT, OT, podiatry, pain management: “yeah this is literally textbook CRPS”
PT, OT, podiatry, pain management: “yeah this is literally textbook CRPS”
the beginning of my collection: a zine and a patch!!
December 7, 2025 at 12:09 AM
the beginning of my collection: a zine and a patch!!
My toxic trait is that I WILL call the specialist’s office as soon as I know the referral has gone through. I will not wait for a scheduling phone call that may never come because my referral got eaten by the fax machine or lost in epic’s void.
December 4, 2025 at 10:44 PM
My toxic trait is that I WILL call the specialist’s office as soon as I know the referral has gone through. I will not wait for a scheduling phone call that may never come because my referral got eaten by the fax machine or lost in epic’s void.
my partner is going to a craft fair that we both love. I can't come, so I asked them if they could bring something back for me, like a flyer or trinket.
they said yes, and asked if they could bring me a crow gift whenever my illness stops me from going places with them.
"you'd be a collector"
they said yes, and asked if they could bring me a crow gift whenever my illness stops me from going places with them.
"you'd be a collector"
December 3, 2025 at 9:34 PM
my partner is going to a craft fair that we both love. I can't come, so I asked them if they could bring something back for me, like a flyer or trinket.
they said yes, and asked if they could bring me a crow gift whenever my illness stops me from going places with them.
"you'd be a collector"
they said yes, and asked if they could bring me a crow gift whenever my illness stops me from going places with them.
"you'd be a collector"
what if we had medicare for all… just as a treat… please?
December 3, 2025 at 5:47 PM
what if we had medicare for all… just as a treat… please?
While I appreciate events having a “masked hour” or “accessible hour” at the beginning of event, I can’t help but wonder… why not just make the event itself as accessible as possible? Rather than segregating disabled folks to a certain time zone, what if we integrated accessibility into the norm?
December 2, 2025 at 6:45 PM
While I appreciate events having a “masked hour” or “accessible hour” at the beginning of event, I can’t help but wonder… why not just make the event itself as accessible as possible? Rather than segregating disabled folks to a certain time zone, what if we integrated accessibility into the norm?
been going to optometrists every few years since I was 10 with complaints of blurred vision, headaches, dizziness, and nausea.
every time I was told my vision was near perfect but that my eyes didn’t know how to “work together.”
I was always given reading glasses that gave me more headaches.
every time I was told my vision was near perfect but that my eyes didn’t know how to “work together.”
I was always given reading glasses that gave me more headaches.
December 1, 2025 at 5:44 PM
been going to optometrists every few years since I was 10 with complaints of blurred vision, headaches, dizziness, and nausea.
every time I was told my vision was near perfect but that my eyes didn’t know how to “work together.”
I was always given reading glasses that gave me more headaches.
every time I was told my vision was near perfect but that my eyes didn’t know how to “work together.”
I was always given reading glasses that gave me more headaches.
just a guy who wants to do all the things trapped in a body that can’t do any of them
November 29, 2025 at 11:26 PM
just a guy who wants to do all the things trapped in a body that can’t do any of them
people who are #bedbound, especially people with #mecfs — what are your essentials for hygiene and self care?
I’ve been bed-bound for longer than I normally am, and my baseline is shifting. I’m realizing that I need to figure out a better bedside setup for personal care. Would love tips 💛🛏️
I’ve been bed-bound for longer than I normally am, and my baseline is shifting. I’m realizing that I need to figure out a better bedside setup for personal care. Would love tips 💛🛏️
November 29, 2025 at 7:03 PM
my partner and I decided to make the plunge and order an adjustable bed.
it's electric and can move to multiple different supportive positions. this is a game changer as a #pwME who is often bedbound.
I feel so hopeful at this prospect and so so grateful that we can afford it right now.
it's electric and can move to multiple different supportive positions. this is a game changer as a #pwME who is often bedbound.
I feel so hopeful at this prospect and so so grateful that we can afford it right now.
November 29, 2025 at 12:16 AM
my partner and I decided to make the plunge and order an adjustable bed.
it's electric and can move to multiple different supportive positions. this is a game changer as a #pwME who is often bedbound.
I feel so hopeful at this prospect and so so grateful that we can afford it right now.
it's electric and can move to multiple different supportive positions. this is a game changer as a #pwME who is often bedbound.
I feel so hopeful at this prospect and so so grateful that we can afford it right now.
It's so odd how we regard a long life as a good thing and yet demonize the aging process and the inevitability of disability.
"Don't get old" is such a common phrase parroted by older folks, and yet it essentially means "it's better to die young than to age and become disabled."
"Don't get old" is such a common phrase parroted by older folks, and yet it essentially means "it's better to die young than to age and become disabled."
November 28, 2025 at 9:03 PM
It's so odd how we regard a long life as a good thing and yet demonize the aging process and the inevitability of disability.
"Don't get old" is such a common phrase parroted by older folks, and yet it essentially means "it's better to die young than to age and become disabled."
"Don't get old" is such a common phrase parroted by older folks, and yet it essentially means "it's better to die young than to age and become disabled."
it sucks to be homebound on holidays
knowing loved ones are together, joyfully
I pull my blankets tighter around me, and feel glad for the friends who live in my computer
knowing loved ones are together, joyfully
I pull my blankets tighter around me, and feel glad for the friends who live in my computer
November 27, 2025 at 7:56 PM
it sucks to be homebound on holidays
knowing loved ones are together, joyfully
I pull my blankets tighter around me, and feel glad for the friends who live in my computer
knowing loved ones are together, joyfully
I pull my blankets tighter around me, and feel glad for the friends who live in my computer
the worst thing for me about being a chronically ill knitter is that my illness causes me to be stuck at home and in bed (which are my favorite places to get cozy and knit) but often I cannot knit due to said illness.
my current wip haunts me from my bedside table.
my current wip haunts me from my bedside table.
November 27, 2025 at 2:08 AM
the worst thing for me about being a chronically ill knitter is that my illness causes me to be stuck at home and in bed (which are my favorite places to get cozy and knit) but often I cannot knit due to said illness.
my current wip haunts me from my bedside table.
my current wip haunts me from my bedside table.
November 26, 2025 at 5:51 PM
I think what's missing from the conversation about healthcare costs going up for people who smoke, are overweight, etc. is that even if your health has declined due to "choices" you have made, you still deserve healthcare.
November 26, 2025 at 3:56 PM
I think what's missing from the conversation about healthcare costs going up for people who smoke, are overweight, etc. is that even if your health has declined due to "choices" you have made, you still deserve healthcare.
whenever I get a notification from my visible band that i'm in the exertion zone
spongebob squarepants from spongebob squarepants is holding a box on his shoulder .
Alt: slow zoom on spongebob squarepants who is giving a major side-eye
media.tenor.com
November 26, 2025 at 3:46 PM
whenever I get a notification from my visible band that i'm in the exertion zone
having to explain me/cfs to other people is so frustrating because it sort of sounds implausible. exertion and exercise make you worse? graded exercise therapy set you back years? really? sounds fake. you must just be lazy.
i wish PEM was easier to explain. I wish this illness wasn't so cruel.
i wish PEM was easier to explain. I wish this illness wasn't so cruel.
November 25, 2025 at 5:46 PM
having to explain me/cfs to other people is so frustrating because it sort of sounds implausible. exertion and exercise make you worse? graded exercise therapy set you back years? really? sounds fake. you must just be lazy.
i wish PEM was easier to explain. I wish this illness wasn't so cruel.
i wish PEM was easier to explain. I wish this illness wasn't so cruel.
Reposted by jude 🪲
I will be the first to admit I couldn’t understand why anyone would oppose Assisted Dying… and then I became disabled and had it “offered” to me.
It’s not compassionate when there’s coercion.
It’s not dignified when it’s offered in lieu of care.
Listen to disabled people.
It’s not compassionate when there’s coercion.
It’s not dignified when it’s offered in lieu of care.
Listen to disabled people.
November 24, 2025 at 9:45 PM
I will be the first to admit I couldn’t understand why anyone would oppose Assisted Dying… and then I became disabled and had it “offered” to me.
It’s not compassionate when there’s coercion.
It’s not dignified when it’s offered in lieu of care.
Listen to disabled people.
It’s not compassionate when there’s coercion.
It’s not dignified when it’s offered in lieu of care.
Listen to disabled people.
Reposted by jude 🪲
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
November 24, 2025 at 4:48 PM
For up to half of people with #LongCOVID, activities like exercise can trigger post-exertional malaise (PEM). Yet Long COVID clinics around the world are offering exercise as treatment while dismissing its serious harms.
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
Read more from @spichaksimon.bsky.social: bit.ly/4aaDRJW
when my physical therapist gave me a walker I had a lot of mixed feelings.
somehow, despite all the other mobility aids I use, this one felt different. more... overtly sick.
anyways, now I love it and it's my most supportive aid other than my wheelchair. it turns out I am indeed overtly sick.
somehow, despite all the other mobility aids I use, this one felt different. more... overtly sick.
anyways, now I love it and it's my most supportive aid other than my wheelchair. it turns out I am indeed overtly sick.
November 25, 2025 at 5:24 PM
when my physical therapist gave me a walker I had a lot of mixed feelings.
somehow, despite all the other mobility aids I use, this one felt different. more... overtly sick.
anyways, now I love it and it's my most supportive aid other than my wheelchair. it turns out I am indeed overtly sick.
somehow, despite all the other mobility aids I use, this one felt different. more... overtly sick.
anyways, now I love it and it's my most supportive aid other than my wheelchair. it turns out I am indeed overtly sick.
advertisements are like "buy this product to be LAZY and watch TV all day you lazy loser" and then the product is just a disability aid or adaptive tool.
November 25, 2025 at 1:48 AM
advertisements are like "buy this product to be LAZY and watch TV all day you lazy loser" and then the product is just a disability aid or adaptive tool.