PurpleSpeedwell
purplespeedwell.bsky.social
PurpleSpeedwell
@purplespeedwell.bsky.social
Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
I get burning in my forearms (but it may be for a different reaon, not necessarily PEM). I find a heating pad works for me.
July 4, 2025 at 2:27 PM
Reposted by PurpleSpeedwell
If it involves women, it must be anxiety. In this case, mass hysteria. 🙄 That is why there has been no concerted effort to collaborate on the mystery of CFS/ME.
January 4, 2025 at 3:00 AM
Reposted by PurpleSpeedwell
The usual unevidenced psychiatrist lingo: 'MOST LIKELY due to', etc. That profession always use terms such as 'probably', 'it is thought' , 'it is assumed'; in this case, 'most likely'. Never any actual indisputable proof, just their own personal beliefs. Hence no progress made in decades.
January 4, 2025 at 11:11 AM
Reposted by PurpleSpeedwell
I know that sometimes working on a "micro" level and just helping individual people figure out stuff like what shower chair to get can seem like you're "not doing much"

But I figure, eugenicists want disabled people to die

Helping us stay alive, and suffer less, *is* important
January 2, 2025 at 2:29 PM
Thanks for this - a nice concise summary of certain facts!
#MyalgicEncephalomyelitis
January 1, 2025 at 7:38 PM
Reposted by PurpleSpeedwell
January 1, 2025 at 7:25 PM