Phil P
@pprydderch.bsky.social
Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry 💧 | @PJPrydderch on X | Medium Blogs: https://medium.com/@prydd
… any suggestions welcome. Though bear in mind I’m struggling badly with ME too so might not always reply etc.
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#MECFS #pwME #GreatestMEdicalScandal #Petition @georgemonbiot.bsky.social @thetimes.com #chronicillness #MyalgicEncephalomyelitis #MaeveInquiry
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#MECFS #pwME #GreatestMEdicalScandal #Petition @georgemonbiot.bsky.social @thetimes.com #chronicillness #MyalgicEncephalomyelitis #MaeveInquiry
November 27, 2024 at 8:09 PM
… any suggestions welcome. Though bear in mind I’m struggling badly with ME too so might not always reply etc.
/2
#MECFS #pwME #GreatestMEdicalScandal #Petition @georgemonbiot.bsky.social @thetimes.com #chronicillness #MyalgicEncephalomyelitis #MaeveInquiry
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#MECFS #pwME #GreatestMEdicalScandal #Petition @georgemonbiot.bsky.social @thetimes.com #chronicillness #MyalgicEncephalomyelitis #MaeveInquiry
Good grief. That’s unbelievable that the chair of the MEA was saying back in 2019 and allowed to continue - “I get up no matter how ill I feel” is appalling advice for #pwME - @meassociation.bsky.social - please take a serious look at this. This months column is not a one off.
November 21, 2024 at 3:44 PM
Good grief. That’s unbelievable that the chair of the MEA was saying back in 2019 and allowed to continue - “I get up no matter how ill I feel” is appalling advice for #pwME - @meassociation.bsky.social - please take a serious look at this. This months column is not a one off.
There is a an open letter by @alexis___me (X) that at the time of posting has 388+ signatures. Please add your name so we can show clearly the anger and concern this has caused.
I hope MEA and their chairman take this seriously
docs.google.com/forms/d/e/1F...
#pwME #MyalgicEncephalomyelitis
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I hope MEA and their chairman take this seriously
docs.google.com/forms/d/e/1F...
#pwME #MyalgicEncephalomyelitis
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Letter to ME Association regarding comments made by their chairman
If you would like to sign please add your name below.
You can read the original column this is responding to here: https://bit.ly/MEAcolumn
Dear ME Association
We are writing to you as patients wi...
docs.google.com
November 18, 2024 at 10:17 PM
There is a an open letter by @alexis___me (X) that at the time of posting has 388+ signatures. Please add your name so we can show clearly the anger and concern this has caused.
I hope MEA and their chairman take this seriously
docs.google.com/forms/d/e/1F...
#pwME #MyalgicEncephalomyelitis
/3
I hope MEA and their chairman take this seriously
docs.google.com/forms/d/e/1F...
#pwME #MyalgicEncephalomyelitis
/3
… and wrong.
He even admits it will cause this uproar and anger. Well, if you knew this would cause such a level of anger - from people who actually fund the charity with donations (!) - then why did you write it?
Did anyone at MEA proof read this and raise concern?
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He even admits it will cause this uproar and anger. Well, if you knew this would cause such a level of anger - from people who actually fund the charity with donations (!) - then why did you write it?
Did anyone at MEA proof read this and raise concern?
/2
November 18, 2024 at 10:17 PM
… and wrong.
He even admits it will cause this uproar and anger. Well, if you knew this would cause such a level of anger - from people who actually fund the charity with donations (!) - then why did you write it?
Did anyone at MEA proof read this and raise concern?
/2
He even admits it will cause this uproar and anger. Well, if you knew this would cause such a level of anger - from people who actually fund the charity with donations (!) - then why did you write it?
Did anyone at MEA proof read this and raise concern?
/2
when I left, doing the same things they were doing back then. ‘Cause it feels like everything has paused until I get better.
But it isn’t. It would be like coming out of isolation into a different world in many ways.
#pwME #MECFS #chronicillness #health
But it isn’t. It would be like coming out of isolation into a different world in many ways.
#pwME #MECFS #chronicillness #health
November 11, 2024 at 9:38 PM
when I left, doing the same things they were doing back then. ‘Cause it feels like everything has paused until I get better.
But it isn’t. It would be like coming out of isolation into a different world in many ways.
#pwME #MECFS #chronicillness #health
But it isn’t. It would be like coming out of isolation into a different world in many ways.
#pwME #MECFS #chronicillness #health