Well done today @Wrexham_AFC v @crawleytown. 🙌

I had away tickets (thanks Kerry 🙏) for me, kids & wife as we live local, but unfortunately was too ill to go.

I hate chronic illness #MECFS. 😢

Great to see the new forwards in action & nick an important Away win! ⚽️ 🏴󠁧󠁢󠁷󠁬󠁳󠁿

#WrexhamAFC @WrexhamFX

Gov petition website is open again. Thinking of creating petition for public inquiry into the scandal of ME/CFS treatment. Whether it does anything is another matter

I want to try to get the wording right to give it a chance

Here’s a first draft (will likely have mistakes!)

/1

This is truly shocking from one of, if not the, leading UK #MECFS charity

I’ve been a supporter of @MEAssociation since I became ill in 2018/2019. My wife and eldest son fund raised for them, raising £2k on a charity walk.

This from their chairman is totally tone deaf… /1

Being mod/severe chronically ill feels like we’re on pause, but life is carrying on around us. I’ve often felt if I miraculously got well, and tried to “rejoin” life, go back to my job (not that I could - had to ill health retire), my mind would be expecting to see all the people who were there../1

Finally opened my BlueSky account. Twitter/X has become a cesspit since Musk took over and is getting worse. But it’s a good place for #MECFS & #chronicillness community, so it’s such a shame.

Hoping we can slowly recreate that here.

#pwME #MyalgicEncephamylitis