Pam Cusick
37 following
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Borne Charity
Borne Charity
@bornecharity.bsky.social
Dean Stephens, Moderator, Researcher, Strategist, Founder
Dean Stephens, Moderator, Researcher, Strategist, Founder
@happytalkresearch.bsky.social
CKingWisdom
CKingWisdom
@truthandwisdom.bsky.social
gtrconsulting.bsky.social
gtrconsulting.bsky.social
@gtrconsulting.bsky.social
Tim Cornelius
Tim Cornelius
@p3timc.bsky.social
Chad Fagan
Chad Fagan
@chadfagan.bsky.social
jennybra.bsky.social
jennybra.bsky.social
@jennybra.bsky.social
Jeff Stewart
Jeff Stewart
@bsstew.bsky.social
susangarratt.bsky.social
susangarratt.bsky.social
@susangarratt.bsky.social
jrvenza.bsky.social
jrvenza.bsky.social
@jrvenza.bsky.social
Manisha
Manisha
@manishapatro.bsky.social
Emmily Maduro
Emmily Maduro
@emmymaduro.bsky.social
janetst.bsky.social
janetst.bsky.social
@janetst.bsky.social
Lisa Horwich
Lisa Horwich
@pallasresearch.bsky.social
Paul Long
Paul Long
@paullong1.bsky.social
Z Johnson, MRXplorer
Z Johnson, MRXplorer
@mrxplorer.bsky.social
Sean Jordan, Insights Researcher
Sean Jordan, Insights Researcher
@seanjordaninsights.bsky.social
Heather
Heather
@hshorten.bsky.social
Rare Genomics Institute
Rare Genomics Institute
@raregenomics.bsky.social
National Urea Cycle Disorders Foundation
National Urea Cycle Disorders Foundation
@nucdf.bsky.social
National Organization for Rare Disorders (NORD)
National Organization for Rare Disorders (NORD)
@nordrare.bsky.social
Autoinflammatory Alliance
Autoinflammatory Alliance
@autoinflammatory.bsky.social
FamilieSCN2A Foundation
FamilieSCN2A Foundation
@scn2a.bsky.social
The Sumaira Foundation (TSF)
The Sumaira Foundation (TSF)
@thesumairafdn.bsky.social
Carm Fazio
Carm Fazio
@oncrn56.bsky.social
VASCERN | European Reference Network
VASCERN | European Reference Network
@vascern.bsky.social
Gemma Carvill
Gemma Carvill
@gc4gc.bsky.social
Devin Shuman (she/her)
Devin Shuman (she/her)
@mitogc.bsky.social
Prof Gina Ravenscroft🇿🇦🇦🇺
Prof Gina Ravenscroft🇿🇦🇦🇺
@ginaravenscroft.bsky.social
Steve Camm
Steve Camm
@srcamm.bsky.social
Rare Patient Voice
Rare Patient Voice
@rarepatientvoice.bsky.social
Rare Disease Research Network_RDRN
Rare Disease Research Network_RDRN
@rd-rn.bsky.social
Rare Diseases International (RDI)
Rare Diseases International (RDI)
@rarediseasesint.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
Rare Disease and Neurodevelopmental Disorders Lab
Rare Disease and Neurodevelopmental Disorders Lab
@rdndlab.bsky.social
Bluesky
Bluesky
@bsky.app