Autoinflammatory Alliance
@autoinflammatory.bsky.social
The Autoinflammatory Alliance is a 501c3 nonprofit org helping to improve awareness, care and treatment for rare autoinflammatory and immunedysregulatory diseases. We are here to help patients, caregivers, and support research.
Reposted by Autoinflammatory Alliance
📣 Calling all rare disease community members. #RareDC2025
Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.
Take action: everylifefoundation.quorum.us/campaign/111...
Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.
Take action: everylifefoundation.quorum.us/campaign/111...
February 25, 2025 at 12:39 PM
📣 Calling all rare disease community members. #RareDC2025
Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.
Take action: everylifefoundation.quorum.us/campaign/111...
Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.
Take action: everylifefoundation.quorum.us/campaign/111...
This is a great paper showcasing eye involvement in #autoinflammatory diseases from earlier this year. This week, we heard from a patient that their #Rheum was not aware of SAID #ophthalmology findings, so I am sharing this here to spread some awareness. pmc.ncbi.nlm.nih.gov/articles/PMC...
Update on ocular manifestations of the main monogenic and polygenic autoinflammatory diseases
Autoinflammatory diseases include disorders with a genetic cause and also complex syndromes associated to polygenic or multifactorial factors. Eye involvement is present in many of them, with differen...
pmc.ncbi.nlm.nih.gov
December 13, 2024 at 1:08 AM
This is a great paper showcasing eye involvement in #autoinflammatory diseases from earlier this year. This week, we heard from a patient that their #Rheum was not aware of SAID #ophthalmology findings, so I am sharing this here to spread some awareness. pmc.ncbi.nlm.nih.gov/articles/PMC...
Hello! The Autoinflammatory Alliance has joined Blue sky. #autoinglammatory #immunedysregulation #cytokines #inflammasomes #rheumatology #immunology
November 17, 2024 at 8:31 AM
Hello! The Autoinflammatory Alliance has joined Blue sky. #autoinglammatory #immunedysregulation #cytokines #inflammasomes #rheumatology #immunology