banner
pansmum.bsky.social
@pansmum.bsky.social
Mum to girl with #Pans. Took 2.5 years and a huge battle to get to diagnosis! Battling ever since! Delays are damaging. Goal is to raise awareness to end present suffering and stop future suffering.
Greater general #Awareness #Understanding needed of conditions #Pans caused by misdirected immune response to an unknown trigger and #Pandas triggered by strep A resulting in inflammation in the brain. Not rare! Rarely diagnosed.
September 15, 2024 at 7:31 PM
Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative!
September 14, 2024 at 12:53 PM
Still in 2024! All with #Pans #Pandas need to be recognized and receive appropriate care. Too much time has passed. Too many left to suffer!
September 13, 2024 at 6:44 PM
My daughter developed eating restriction as part of her #Pans due to fear of choking, being too full leading to possible illness & fears of contamination. If your child develops food avoidance or restriction with other changes please consider #Pans #Pandas
September 13, 2024 at 12:21 PM
‘successfully researching and treating children with PANS for years’👇🏻#PansPandasHour
September 13, 2024 at 8:24 AM
Sadly these symptoms are all too common with #Pans #Pandas The child's world becomes so small as does that of the parent/s & can have far reaching consequences for any siblings and extended family. Not rare!
September 12, 2024 at 9:05 PM
Remember to consider #Pans #Pandas 👇🏻
September 12, 2024 at 2:44 PM
It’s important to know the signs of #PANS #PANDAS
September 12, 2024 at 12:15 PM
Open letter from PANS PANDAS UK to new Health Minister Wes Streeting. Families suffering #Pans #Pandas have long advocated for change. Needs to be an end to the prolonged suffering that currently occurs due 2 lack of recognition, education, diagnosis, treatment & support. Not rare, rarely diagnosed!
September 12, 2024 at 10:23 AM
Everything starts with awareness without which the correct treatment can neither be sought or given.Awareness is the key 2 change & with the growth of that awareness resistance 2 change must cease!Further generations should not be allowed 2 succumb 2 #Pans #Pandas
September 11, 2024 at 6:12 PM