@pansmum.bsky.social
Mum to girl with #Pans. Took 2.5 years and a huge battle to get to diagnosis! Battling ever since! Delays are damaging. Goal is to raise awareness to end present suffering and stop future suffering.
Reposted
“Common educational themes reported by families include the misinterpretation of the root causes of the needs of their child, inappropriate support, a narrative of blame, school attendance pressures and confusion caused by a lack of a diagnosis”
Helpful article about PANS PANDAS #EdPsychs
Helpful article about PANS PANDAS #EdPsychs
1/ Today is #PansPandasAwarenessDay
These conditions can several effect a child's life, and yet remain poorly understood.
Tina from PANS PANDAS UK writes our latest blog, about these conditions, education and a hopeful future.
Read here: edpsy.org.uk/blog/2024/un...
#edpsychs
These conditions can several effect a child's life, and yet remain poorly understood.
Tina from PANS PANDAS UK writes our latest blog, about these conditions, education and a hopeful future.
Read here: edpsy.org.uk/blog/2024/un...
#edpsychs
Understanding PANS and PANDAS - edpsy.org.uk
When a child or young person develops PANS or PANDAS, it can be challenging and isolating. For families, the situation...
edpsy.org.uk
October 10, 2024 at 11:00 AM
“Common educational themes reported by families include the misinterpretation of the root causes of the needs of their child, inappropriate support, a narrative of blame, school attendance pressures and confusion caused by a lack of a diagnosis”
Helpful article about PANS PANDAS #EdPsychs
Helpful article about PANS PANDAS #EdPsychs
Please read this great blog about #Pans #Pandas It was wonderful to see awareness being raised in this way👇🏻 www.rcn.org.uk/news-and-eve...
PANS PANDAS: A mysterious and debilitating paediatric disorder | Blog | Royal College of Nursing
PANS PANDAS: A mysterious and debilitating paediatric disorder
www.rcn.org.uk
September 19, 2024 at 3:36 PM
Please read this great blog about #Pans #Pandas It was wonderful to see awareness being raised in this way👇🏻 www.rcn.org.uk/news-and-eve...
Please watch and share to raise awareness of horrific conditions #Pans #Pandas and the devastating impact they have on children and teens. Left untreated these conditions are carried to adulthood
youtu.be/m-PDslLi1KQ
youtu.be/m-PDslLi1KQ
Warriors
YouTube video by PANS PANDAS UK
youtu.be
September 17, 2024 at 7:54 PM
Please watch and share to raise awareness of horrific conditions #Pans #Pandas and the devastating impact they have on children and teens. Left untreated these conditions are carried to adulthood
youtu.be/m-PDslLi1KQ
youtu.be/m-PDslLi1KQ
Greater general #Awareness #Understanding needed of conditions #Pans caused by misdirected immune response to an unknown trigger and #Pandas triggered by strep A resulting in inflammation in the brain. Not rare! Rarely diagnosed.
September 15, 2024 at 7:31 PM
Greater general #Awareness #Understanding needed of conditions #Pans caused by misdirected immune response to an unknown trigger and #Pandas triggered by strep A resulting in inflammation in the brain. Not rare! Rarely diagnosed.
Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative!
September 14, 2024 at 12:53 PM
Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative!
‘successfully researching and treating children with PANS for years’👇🏻#PansPandasHour
September 13, 2024 at 8:24 AM
‘successfully researching and treating children with PANS for years’👇🏻#PansPandasHour
www.twinkl.co.uk
September 13, 2024 at 8:22 AM
Education is key👇🏻Educational resources for educational professionals #PANS #PANDAS panspandasuk.org/support-reso...
For Educational Professionals - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our For Educational Professionals page.
panspandasuk.org
September 12, 2024 at 5:23 PM
Education is key👇🏻Educational resources for educational professionals #PANS #PANDAS panspandasuk.org/support-reso...
Reposted
Our video advocating for systemic change for #LongCovid #ME is up on the Unite to Fight YouTube📺
⚖️ Legislate
👨🔬 Investigate
🌬️ Ventilate
👨🏫 Educate
#LIVE
youtu.be/kfaoyTaOFZ0?...
⚖️ Legislate
👨🔬 Investigate
🌬️ Ventilate
👨🏫 Educate
#LIVE
youtu.be/kfaoyTaOFZ0?...
Long Covid Advocacy (Day 2, Lunch Break)
YouTube video by UniteToFight
youtu.be
September 12, 2024 at 9:18 AM
Our video advocating for systemic change for #LongCovid #ME is up on the Unite to Fight YouTube📺
⚖️ Legislate
👨🔬 Investigate
🌬️ Ventilate
👨🏫 Educate
#LIVE
youtu.be/kfaoyTaOFZ0?...
⚖️ Legislate
👨🔬 Investigate
🌬️ Ventilate
👨🏫 Educate
#LIVE
youtu.be/kfaoyTaOFZ0?...
September 12, 2024 at 2:44 PM
Now 6.7K members in #PANS #PANDAS UK support group. Numbers will continue to rise as awareness grows. Awareness is key to correct treatment pathway but sadly that pathway along with recognition is often lacking leaving families suffering & even completely in the dark panspandasuk.org/what-are-pan...
What are PANS and PANDAS? - PANS PANDAS UK
Welcome to PANS PANDAS UK. This is our What are PANS and PANDAS? page.
panspandasuk.org
September 12, 2024 at 12:32 PM
Now 6.7K members in #PANS #PANDAS UK support group. Numbers will continue to rise as awareness grows. Awareness is key to correct treatment pathway but sadly that pathway along with recognition is often lacking leaving families suffering & even completely in the dark panspandasuk.org/what-are-pan...
September 12, 2024 at 12:15 PM
Reposted
Agreed, needs momentum and change. 9th October is PP awareness day, not far away now ❤️
September 12, 2024 at 10:46 AM
Agreed, needs momentum and change. 9th October is PP awareness day, not far away now ❤️
Open letter from PANS PANDAS UK to new Health Minister Wes Streeting. Families suffering #Pans #Pandas have long advocated for change. Needs to be an end to the prolonged suffering that currently occurs due 2 lack of recognition, education, diagnosis, treatment & support. Not rare, rarely diagnosed!
September 12, 2024 at 10:23 AM
Open letter from PANS PANDAS UK to new Health Minister Wes Streeting. Families suffering #Pans #Pandas have long advocated for change. Needs to be an end to the prolonged suffering that currently occurs due 2 lack of recognition, education, diagnosis, treatment & support. Not rare, rarely diagnosed!
Reposted
Countdown to 9th October 2024.
#PansPandasAwarenessDay #LightUp4Pans
#NoMoreLostChildren
#WorldPansPandasAwarenessDay Can we get a landmark in #Ireland or #UK ?
105 landmarks 🥰worldwide lighting up 💚 green or ❤️ red for #Pans #Pandas awareness. Our children are too important to be misdiagnosed.
#PansPandasAwarenessDay #LightUp4Pans
#NoMoreLostChildren
#WorldPansPandasAwarenessDay Can we get a landmark in #Ireland or #UK ?
105 landmarks 🥰worldwide lighting up 💚 green or ❤️ red for #Pans #Pandas awareness. Our children are too important to be misdiagnosed.
September 11, 2024 at 9:54 AM
Countdown to 9th October 2024.
#PansPandasAwarenessDay #LightUp4Pans
#NoMoreLostChildren
#WorldPansPandasAwarenessDay Can we get a landmark in #Ireland or #UK ?
105 landmarks 🥰worldwide lighting up 💚 green or ❤️ red for #Pans #Pandas awareness. Our children are too important to be misdiagnosed.
#PansPandasAwarenessDay #LightUp4Pans
#NoMoreLostChildren
#WorldPansPandasAwarenessDay Can we get a landmark in #Ireland or #UK ?
105 landmarks 🥰worldwide lighting up 💚 green or ❤️ red for #Pans #Pandas awareness. Our children are too important to be misdiagnosed.
Reposted
Do you know a #child who changed abruptly after an illness? #behaviour #anxiety #OCD #Tics #rage #meltdowns #regression #strep #covid #lyme #InvoluntaryMovements #Jerks #chickenpox #mycoplasma #Parenting #GutInstinct #NoMoreLostChildren #BasalGanglia #Inflammation #ImmuneMediated #Research
September 11, 2024 at 10:04 AM
Do you know a #child who changed abruptly after an illness? #behaviour #anxiety #OCD #Tics #rage #meltdowns #regression #strep #covid #lyme #InvoluntaryMovements #Jerks #chickenpox #mycoplasma #Parenting #GutInstinct #NoMoreLostChildren #BasalGanglia #Inflammation #ImmuneMediated #Research
Reposted
Open letter from Pans Pandas UK charity to new Health Minister Wes Streeting. We cannot let more children suffer.
September 11, 2024 at 12:08 PM
I urge all working in education to join @PANSPANDASUK
teacher training in this academic year to support children with illnesses #Pans #Pandas that can greatly impact education and attendance. Awareness is key to correct understanding and support #education www.eventbrite.co.uk/e/supporting...
teacher training in this academic year to support children with illnesses #Pans #Pandas that can greatly impact education and attendance. Awareness is key to correct understanding and support #education www.eventbrite.co.uk/e/supporting...
Supporting Children with PANS and PANDAS in Educational Settings
PANS and PANDAS are conditions that often appear very suddenly and affect the physical and mental health of children and young adults.
www.eventbrite.co.uk
September 11, 2024 at 6:16 PM
I urge all working in education to join @PANSPANDASUK
teacher training in this academic year to support children with illnesses #Pans #Pandas that can greatly impact education and attendance. Awareness is key to correct understanding and support #education www.eventbrite.co.uk/e/supporting...
teacher training in this academic year to support children with illnesses #Pans #Pandas that can greatly impact education and attendance. Awareness is key to correct understanding and support #education www.eventbrite.co.uk/e/supporting...
