PalmSpringsWes
@palmspringswes.bsky.social
“The gates of hell are open night and day… but to return and view the cheerful skies; in this, the task and mighty labor lies.”
Virgil said it centuries ago, but it fits any life (and lives with ALS) today. The pull downward is easy. The climb back to the light takes real strength. "
Virgil said it centuries ago, but it fits any life (and lives with ALS) today. The pull downward is easy. The climb back to the light takes real strength. "
November 24, 2025 at 7:15 PM
“The gates of hell are open night and day… but to return and view the cheerful skies; in this, the task and mighty labor lies.”
Virgil said it centuries ago, but it fits any life (and lives with ALS) today. The pull downward is easy. The climb back to the light takes real strength. "
Virgil said it centuries ago, but it fits any life (and lives with ALS) today. The pull downward is easy. The climb back to the light takes real strength. "
It only takes a few moments to go up Palm Springs Aerial Tramway for lunch at Pines Cafe. The air was crisp, refreshing, and the views are spectacular !
November 24, 2025 at 7:05 PM
It only takes a few moments to go up Palm Springs Aerial Tramway for lunch at Pines Cafe. The air was crisp, refreshing, and the views are spectacular !
Team catch-up video call tonight — proof that when you mix Palm Springs, CA with Dallas, TX, you get one big extended family.
November 24, 2025 at 7:00 PM
Team catch-up video call tonight — proof that when you mix Palm Springs, CA with Dallas, TX, you get one big extended family.
🌴 A doctor day for Mark. We left with smiles, came home with a few aches, but got treated to mountains dusted in snow on the ride. Even the hard days give us moments worth holding onto. 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
November 24, 2025 at 6:55 PM
🌴 A doctor day for Mark. We left with smiles, came home with a few aches, but got treated to mountains dusted in snow on the ride. Even the hard days give us moments worth holding onto. 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
🌴 #alsnetwork #ALSawareness #EndALS #ALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks 🌴
Let there be snow !
70 degrees at 479 ft above sea level
31 degrees at 8,516 ft above sea level (top of the tram on Mt San Jacinto).
70 degrees at 479 ft above sea level
31 degrees at 8,516 ft above sea level (top of the tram on Mt San Jacinto).
November 24, 2025 at 6:51 PM
Let there be snow !
70 degrees at 479 ft above sea level
31 degrees at 8,516 ft above sea level (top of the tram on Mt San Jacinto).
70 degrees at 479 ft above sea level
31 degrees at 8,516 ft above sea level (top of the tram on Mt San Jacinto).
🎄🌴 “If you build it, they will come…”
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
November 24, 2025 at 6:46 PM
🎄🌴 “If you build it, they will come…”
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
Turns out all we had to build was the Christmas tree in November — and "jingle bells", we were blessed with Eric, Bill, and Spencer the fluffy one - they came ! 🎄🌴
#alsnetwork #ALSawareness #EndALS #livingwithALS #MyALSJourney #alsfighter #ALSsucks
ALS has taught us to celebrate now, not later. These moments—decorating, laughing, being together—mean everything while Mark can fully share them. Choosing joy early this year. ✨💙🌲
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
November 24, 2025 at 6:40 PM
ALS has taught us to celebrate now, not later. These moments—decorating, laughing, being together—mean everything while Mark can fully share them. Choosing joy early this year. ✨💙🌲
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
#alsnetwork #ALSawareness #EndALS #ALS #alswarrior #livingwithALS #MyALSJourney #alsfighter #ALSsucks
💙 Friends forged through the fire of ALS. Some are cALS, some have lost their pALS — all share strength, compassion, and understanding. 💙 Thank you for visiting us in Palm Springs — your friendship means more than words can say. 💙
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
November 10, 2025 at 7:54 PM
💙 Friends forged through the fire of ALS. Some are cALS, some have lost their pALS — all share strength, compassion, and understanding. 💙 Thank you for visiting us in Palm Springs — your friendship means more than words can say. 💙
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
Happy Halloween 2025 - dressed for leather pride !
November 1, 2025 at 12:52 AM
Happy Halloween 2025 - dressed for leather pride !
Annual checkups, for the 3 of us.
October 26, 2025 at 6:58 PM
Annual checkups, for the 3 of us.
Harvest Moon - full moon, Palm Springs, CA
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
October 7, 2025 at 9:09 PM
Harvest Moon - full moon, Palm Springs, CA
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
🌴 Mark had a mobile nail specialist visit today (huge thanks to David & Steve + Tom 💙).
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
October 7, 2025 at 2:04 AM
🌴 Mark had a mobile nail specialist visit today (huge thanks to David & Steve + Tom 💙).
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
Movie night with Wilson 🎬🍿 Popcorn, good laughs, and stand-up comedy to close it out. Thanks, Wilson — always great having you around (and hey, it’s nice to finally not be the tallest in the room 😄).
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
October 7, 2025 at 1:56 AM
Movie night with Wilson 🎬🍿 Popcorn, good laughs, and stand-up comedy to close it out. Thanks, Wilson — always great having you around (and hey, it’s nice to finally not be the tallest in the room 😄).
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
There’s something magical about Palm Springs nights… 🌴 Under a dark desert sky, the palms light up like lanterns — simple, striking, and timeless. A reminder that even in the quiet, beauty has a way of standing tall and shining through. ✨🌴.
September 27, 2025 at 8:51 PM
There’s something magical about Palm Springs nights… 🌴 Under a dark desert sky, the palms light up like lanterns — simple, striking, and timeless. A reminder that even in the quiet, beauty has a way of standing tall and shining through. ✨🌴.
Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
September 27, 2025 at 8:47 PM
Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
From Mrs. Roper kaftans 🌺 to St. Pat's Day 🍀 to July 4th 🎆… themed dinners are tradition. Hawaiian Night brought Aloha vibes with haystacks, pineapple cake + mango sorbet. Mahalo to David & Steve for the home-cooked fun! 🌈🥂🌴
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
September 16, 2025 at 9:41 PM
From Mrs. Roper kaftans 🌺 to St. Pat's Day 🍀 to July 4th 🎆… themed dinners are tradition. Hawaiian Night brought Aloha vibes with haystacks, pineapple cake + mango sorbet. Mahalo to David & Steve for the home-cooked fun! 🌈🥂🌴
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
September 9, 2025 at 8:32 PM
David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
🌈 After 6 hours of ALS Clinic Day in Loma Linda, tough talks & vital care, the drive home gave us a rainbow stretching into Palm Springs. Proof that even in the hardest battles, hope still shows up. 💙
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
September 1, 2025 at 12:46 AM
🌈 After 6 hours of ALS Clinic Day in Loma Linda, tough talks & vital care, the drive home gave us a rainbow stretching into Palm Springs. Proof that even in the hardest battles, hope still shows up. 💙
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
Daytime dog walk and desert landscapes.
Cactus, palm trees, citrus trees ...
Cactus, palm trees, citrus trees ...
August 23, 2025 at 12:25 AM
Daytime dog walk and desert landscapes.
Cactus, palm trees, citrus trees ...
Cactus, palm trees, citrus trees ...
Thank you Sarav for your social visit and for checking on Mark. 🙏. -grateful
August 20, 2025 at 12:39 AM
Thank you Sarav for your social visit and for checking on Mark. 🙏. -grateful
Midnight dog(s)-walk and observing the desert landscaping with creative lighting. Love it ! 🌴
August 12, 2025 at 10:20 PM
Midnight dog(s)-walk and observing the desert landscaping with creative lighting. Love it ! 🌴
#breakfast #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
August 1, 2025 at 6:03 PM
#breakfast #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
Mark had it rough last week in ICU from Saturday 7/19 to Friday 7/25 in ICU with pneumonia and intubated through discharge. He has definitely earned some chocolate ice cream from #Kreem to go… a few drops on the tongue for taste and the rest through the feeding tube!
#ALSAwareness #EndALS #ALS
#ALSAwareness #EndALS #ALS
August 1, 2025 at 5:52 PM
Mark had it rough last week in ICU from Saturday 7/19 to Friday 7/25 in ICU with pneumonia and intubated through discharge. He has definitely earned some chocolate ice cream from #Kreem to go… a few drops on the tongue for taste and the rest through the feeding tube!
#ALSAwareness #EndALS #ALS
#ALSAwareness #EndALS #ALS
Midnight dog walks, big moon on the horizon , illuminated palm trees...
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
July 18, 2025 at 9:30 AM
Midnight dog walks, big moon on the horizon , illuminated palm trees...
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul