PalmSpringsWes
@palmspringswes.bsky.social
💙 Friends forged through the fire of ALS. Some are cALS, some have lost their pALS — all share strength, compassion, and understanding. 💙 Thank you for visiting us in Palm Springs — your friendship means more than words can say. 💙
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
November 10, 2025 at 7:54 PM
💙 Friends forged through the fire of ALS. Some are cALS, some have lost their pALS — all share strength, compassion, and understanding. 💙 Thank you for visiting us in Palm Springs — your friendship means more than words can say. 💙
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
#alsnetwork #EndALS #ALS #alswarrior #livingwithALS #ALSsucks
Happy Halloween 2025 - dressed for leather pride !
November 1, 2025 at 12:52 AM
Happy Halloween 2025 - dressed for leather pride !
Annual checkups, for the 3 of us.
October 26, 2025 at 6:58 PM
Annual checkups, for the 3 of us.
Harvest Moon - full moon, Palm Springs, CA
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
October 7, 2025 at 9:09 PM
Harvest Moon - full moon, Palm Springs, CA
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
October 6 2025
Night mode with the full moon - looks like a daytime photo!
Even without night mode it's bright.
Moon shadows are a thing.
🌴 Mark had a mobile nail specialist visit today (huge thanks to David & Steve + Tom 💙).
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
October 7, 2025 at 2:04 AM
🌴 Mark had a mobile nail specialist visit today (huge thanks to David & Steve + Tom 💙).
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
🌴 While Mark got pampered, Wes & David enjoyed nachos, ginger ale, and a Sunday Funday drink. Perfect weather + people-watching = a great afternoon! 🌴 #Gratitude #MyALSJourney #alsnetwork
Movie night with Wilson 🎬🍿 Popcorn, good laughs, and stand-up comedy to close it out. Thanks, Wilson — always great having you around (and hey, it’s nice to finally not be the tallest in the room 😄).
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
October 7, 2025 at 1:56 AM
Movie night with Wilson 🎬🍿 Popcorn, good laughs, and stand-up comedy to close it out. Thanks, Wilson — always great having you around (and hey, it’s nice to finally not be the tallest in the room 😄).
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
#ALSNetwork #ALS #ALSSucks #LivingWithALS #ALSResearch #NeverGiveUp #WhateverItTakes #MyALSJourney
There’s something magical about Palm Springs nights… 🌴 Under a dark desert sky, the palms light up like lanterns — simple, striking, and timeless. A reminder that even in the quiet, beauty has a way of standing tall and shining through. ✨🌴.
September 27, 2025 at 8:51 PM
There’s something magical about Palm Springs nights… 🌴 Under a dark desert sky, the palms light up like lanterns — simple, striking, and timeless. A reminder that even in the quiet, beauty has a way of standing tall and shining through. ✨🌴.
Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
September 27, 2025 at 8:47 PM
Italian Night 🇮🇹🍝 got pushed back while Mark rested, but Tuesday’s visit made up for it. David & Steve brought spaghetti & meatballs with fresh parmesan — so good! Grateful for the stories, laughter & company. ❤️
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
#ALSNetwork #EndALS #ALS #ALSSucks #LivingWithALS #BeatALS #MyALSJourney
From Mrs. Roper kaftans 🌺 to St. Pat's Day 🍀 to July 4th 🎆… themed dinners are tradition. Hawaiian Night brought Aloha vibes with haystacks, pineapple cake + mango sorbet. Mahalo to David & Steve for the home-cooked fun! 🌈🥂🌴
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
September 16, 2025 at 9:41 PM
From Mrs. Roper kaftans 🌺 to St. Pat's Day 🍀 to July 4th 🎆… themed dinners are tradition. Hawaiian Night brought Aloha vibes with haystacks, pineapple cake + mango sorbet. Mahalo to David & Steve for the home-cooked fun! 🌈🥂🌴
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
#ALSawareness #ALSsucks #livingwithALS
#alswarrior #MyALSJourney
David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
September 9, 2025 at 8:32 PM
David + Steve = fun filled evening 🌟
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
Steve's fresh haircut ✂️, stuffed shells 🍝 (tiny bites for Mark 💛), dogs bouncing 🐾, and tiramisu to finish 🍰.
Good food. Good friends. Good times. #palmsprings #alsjourney #alsnetwork #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease #livingwithALS
🌈 After 6 hours of ALS Clinic Day in Loma Linda, tough talks & vital care, the drive home gave us a rainbow stretching into Palm Springs. Proof that even in the hardest battles, hope still shows up. 💙
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
September 1, 2025 at 12:46 AM
🌈 After 6 hours of ALS Clinic Day in Loma Linda, tough talks & vital care, the drive home gave us a rainbow stretching into Palm Springs. Proof that even in the hardest battles, hope still shows up. 💙
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
#palmsprings #ALSNetwork #ALSAwareness #EndALS #ALS #ALSSucks #LouGehrigsDisease #LivingWithALS
Daytime dog walk and desert landscapes.
Cactus, palm trees, citrus trees ...
Cactus, palm trees, citrus trees ...
August 23, 2025 at 12:25 AM
Daytime dog walk and desert landscapes.
Cactus, palm trees, citrus trees ...
Cactus, palm trees, citrus trees ...
Thank you Sarav for your social visit and for checking on Mark. 🙏. -grateful
August 20, 2025 at 12:39 AM
Thank you Sarav for your social visit and for checking on Mark. 🙏. -grateful
Midnight dog(s)-walk and observing the desert landscaping with creative lighting. Love it ! 🌴
August 12, 2025 at 10:20 PM
Midnight dog(s)-walk and observing the desert landscaping with creative lighting. Love it ! 🌴
#breakfast #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
August 1, 2025 at 6:03 PM
#breakfast #ALSawareness #EndALS #ALS #ALSsucks #lougehrigsdisease
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
Breakfast for champions... (from right to left):
3 bolus syringes of nutrition (through the peg tube)
2 bolus syringes of coffee (through the peg tube)
1 bolus syringe to flush and keep the peg tube clean
Mark had it rough last week in ICU from Saturday 7/19 to Friday 7/25 in ICU with pneumonia and intubated through discharge. He has definitely earned some chocolate ice cream from #Kreem to go… a few drops on the tongue for taste and the rest through the feeding tube!
#ALSAwareness #EndALS #ALS
#ALSAwareness #EndALS #ALS
August 1, 2025 at 5:52 PM
Mark had it rough last week in ICU from Saturday 7/19 to Friday 7/25 in ICU with pneumonia and intubated through discharge. He has definitely earned some chocolate ice cream from #Kreem to go… a few drops on the tongue for taste and the rest through the feeding tube!
#ALSAwareness #EndALS #ALS
#ALSAwareness #EndALS #ALS
Midnight dog walks, big moon on the horizon , illuminated palm trees...
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
July 18, 2025 at 9:30 AM
Midnight dog walks, big moon on the horizon , illuminated palm trees...
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
#PalmTreeVibes #midnightwalk #MoonMadness #rechargingmysoul
Observations from night-time dog walk(s).
In Palm Springs, door colors are more than just an entrance—they’re a bold nod to Mid-Century Modern flair.
In Palm Springs, door colors are more than just an entrance—they’re a bold nod to Mid-Century Modern flair.
July 4, 2025 at 8:39 PM
Observations from night-time dog walk(s).
In Palm Springs, door colors are more than just an entrance—they’re a bold nod to Mid-Century Modern flair.
In Palm Springs, door colors are more than just an entrance—they’re a bold nod to Mid-Century Modern flair.
Thank you for sending this to Mark for his birthday, David. His birthday seems to be continuing.
"Growing old is mandatory, but growing up is optional. Happy Birthday to you Mark Reavis to a beautiful man who's always smiling. Enjoy and indulge, big warm hugs, David".
"Growing old is mandatory, but growing up is optional. Happy Birthday to you Mark Reavis to a beautiful man who's always smiling. Enjoy and indulge, big warm hugs, David".
June 13, 2025 at 9:31 AM
Thank you for sending this to Mark for his birthday, David. His birthday seems to be continuing.
"Growing old is mandatory, but growing up is optional. Happy Birthday to you Mark Reavis to a beautiful man who's always smiling. Enjoy and indulge, big warm hugs, David".
"Growing old is mandatory, but growing up is optional. Happy Birthday to you Mark Reavis to a beautiful man who's always smiling. Enjoy and indulge, big warm hugs, David".
Night blooming cactus. #desertbloom
"She only comes out at night"... where have I heard that line before... ? Maneater, Daryl Hall & John Oates !
youtu.be/yRYFKcMa_Ek?...
"She only comes out at night"... where have I heard that line before... ? Maneater, Daryl Hall & John Oates !
youtu.be/yRYFKcMa_Ek?...
June 12, 2025 at 7:06 PM
Night blooming cactus. #desertbloom
"She only comes out at night"... where have I heard that line before... ? Maneater, Daryl Hall & John Oates !
youtu.be/yRYFKcMa_Ek?...
"She only comes out at night"... where have I heard that line before... ? Maneater, Daryl Hall & John Oates !
youtu.be/yRYFKcMa_Ek?...
Palm Springs at midnight...
June 11, 2025 at 7:33 PM
Palm Springs at midnight...
Mark's Birthday Week: Sunday, June 1st 2025 - a friend and former co-worker of Mark's happened to be in town and stopped over to visit. They had not seen each other in 30 years. Great visit !
June 2, 2025 at 6:20 PM
Mark's Birthday Week: Sunday, June 1st 2025 - a friend and former co-worker of Mark's happened to be in town and stopped over to visit. They had not seen each other in 30 years. Great visit !
Midnight dog walk observation: The Cactocalypse has begun 🌵 rising up from the dirt . Humanity is outnumbered and out-spined. Stay sharp desert humans. #MidnightCactusUprising
May 25, 2025 at 7:59 PM
Midnight dog walk observation: The Cactocalypse has begun 🌵 rising up from the dirt . Humanity is outnumbered and out-spined. Stay sharp desert humans. #MidnightCactusUprising
Palm Springs at night. Ocotillo against palm trees and blue sky...
May 23, 2025 at 8:09 PM
Palm Springs at night. Ocotillo against palm trees and blue sky...