Prepping for the @rarediseasesint.bsky.social event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real

us02web.zoom.us/webinar/regi...

Prepping for the RARE DISEASES INTERNATIONAL event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real

us02web.zoom.us/webinar/regi...

Huge boarding ticket and even huge-r excitement for this amazing journey and experience in Geneva! (With a layover in Spain, of coure)

Un pase de abordaje grandísimo, y unas ganas aún más grandes de disfrutar esta oportunidad tan increíble en Ginebra! (Claro que con escala en España)

The webinar has been rescheduled! If you registered then you’re all good for the 22nd, and if not then you have the chance to register and tune in (either live or later on when the stream finishes!)

Friends! A few days ago I was lucky enough to be part of this conversation courtesy of @aaas.org, @science.org, and Fondation Ipsen with some incredible people (it was also in a for-real filming studio which was wild??)

It was the people, who made the World Orphan Drug Congress for me (I promise none of those smiles were fake or forced, it was all a delight).

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We out here repping @apstype1 and @rarediseasesinternational at the #worldorphandrugcongress

Here we go for the (last day) of the World Orphan Drug Congress!

Thank you @rarediseasesint.bsky.social for this opportunity to work with and learn from brilliant and wonderful humans that are also committed to bettering this rare disease world of ours!

Look at this country that fights for peace. Look at our comedians. Look at our chaos, at our pain, at our richness, at our spirit. You continue to live, Jaime.
I’m finally uploading the pages of that children’s picture book I made for you almost seven years ago now.
We miss you.

25 years without you, Jaime… what a thing. What a hurt. What a story. Billy Joel sings of the day the music died; 25 years ago now was the day the laughter died. But look at your legacy, Jaime.

And here I was thinking that I’d peaked in High School (it all goes downhill from here).

Vean, y yo pensando que disque mis mejores años fueron en el bachillerato.

Gracias @oea_oficial por ayudarnos ayer a amplificar las voces de la comunidad de #EnfermedadesRaras

tag urself

*Gob Bluth voice: I’ve made a huge mistake* 😅 (No, in all seriousness, THANK YOU to @oea_oficial for inviting me to speak on #RareDiseases. It’s needed and y’all are putting in the work 💪🏼)

¡Mañana a las 3 nos vemos para hablar en la @OEA_oficial sobre las enfermedades raras!
See you tomorrow at 3 at the @OAS_official to talk rare diseases!

tinyurl.com/PabloOEA

¿Y esto para qué será? 🤔 #EnfermedadesRaras