Pablo Ramirez Uribe
@pabloramirezuribe.com
Storyteller | Teacher | Activist. Top 20 Colombian Leaders of 2018. Tipo raro con enfermedad rara (YT #PabloElRaro). He/him. Fortunately, for us all, hasn’t grown up.
Pinned
Meet our 6 Regional Reps for Raising Youth Voices 2026! These young leaders are joining us in Barcelona to help shape the future of the rare disease community!
Follow their organisations and stay tuned for event registrations. #RaisingYouthVoices2026
Pablo Ramirez Uribe
Follow their organisations and stay tuned for event registrations. #RaisingYouthVoices2026
Pablo Ramirez Uribe
Thank you so much! 😊 I cannot wait to share a stage with five other young brilliant souls and their projects. Thank you @nordrare.bsky.social @eurordis.bsky.social @rarediseasesint.bsky.social for elevating youth voices in this way ❤️
Reposted by Pablo Ramirez Uribe
📣 The Raising Youth Voices is a panel + networking session discussion designed to ensure that young people are included in the discussions shaping the future of rare disease policy.
👉 Register to attend in Barcelona here: https://go.rarediseaseday.org/voices
#RaisingYouthVoices2026
👉 Register to attend in Barcelona here: https://go.rarediseaseday.org/voices
#RaisingYouthVoices2026
December 20, 2025 at 1:00 PM
📣 The Raising Youth Voices is a panel + networking session discussion designed to ensure that young people are included in the discussions shaping the future of rare disease policy.
👉 Register to attend in Barcelona here: https://go.rarediseaseday.org/voices
#RaisingYouthVoices2026
👉 Register to attend in Barcelona here: https://go.rarediseaseday.org/voices
#RaisingYouthVoices2026
Reposted by Pablo Ramirez Uribe
In-person registrations are now open for #RaisingYouthVoiceS2026 in Barcelona! 🎉
Join our Regional Representatives and other young leaders!
👉Register now: go.rarediseaseday.org/voices
🌍 Will also be livestreamed on YouTube.
@nordrare.bsky.social @rarediseasesint.bsky.social
Join our Regional Representatives and other young leaders!
👉Register now: go.rarediseaseday.org/voices
🌍 Will also be livestreamed on YouTube.
@nordrare.bsky.social @rarediseasesint.bsky.social
December 11, 2025 at 1:18 PM
In-person registrations are now open for #RaisingYouthVoiceS2026 in Barcelona! 🎉
Join our Regional Representatives and other young leaders!
👉Register now: go.rarediseaseday.org/voices
🌍 Will also be livestreamed on YouTube.
@nordrare.bsky.social @rarediseasesint.bsky.social
Join our Regional Representatives and other young leaders!
👉Register now: go.rarediseaseday.org/voices
🌍 Will also be livestreamed on YouTube.
@nordrare.bsky.social @rarediseasesint.bsky.social
Reposted by Pablo Ramirez Uribe
In-person registration is now open for the #RaisingYouthVoices event in Barcelona!🎉
Meet the 2026 Regional Reps — Liam, Maksym, Stéphanie, Pablo, Vincent & Yu Su — bringing their lived experience and leadership to #RareDiseaseDay.
Don’t miss this opportunity!🔗 https://go.eurordis.org/Eks6gD
Meet the 2026 Regional Reps — Liam, Maksym, Stéphanie, Pablo, Vincent & Yu Su — bringing their lived experience and leadership to #RareDiseaseDay.
Don’t miss this opportunity!🔗 https://go.eurordis.org/Eks6gD
December 14, 2025 at 8:00 AM
In-person registration is now open for the #RaisingYouthVoices event in Barcelona!🎉
Meet the 2026 Regional Reps — Liam, Maksym, Stéphanie, Pablo, Vincent & Yu Su — bringing their lived experience and leadership to #RareDiseaseDay.
Don’t miss this opportunity!🔗 https://go.eurordis.org/Eks6gD
Meet the 2026 Regional Reps — Liam, Maksym, Stéphanie, Pablo, Vincent & Yu Su — bringing their lived experience and leadership to #RareDiseaseDay.
Don’t miss this opportunity!🔗 https://go.eurordis.org/Eks6gD
Thank you so much! 😊 I cannot wait to share a stage with five other young brilliant souls and their projects. Thank you @nordrare.bsky.social @eurordis.bsky.social @rarediseasesint.bsky.social for elevating youth voices in this way ❤️
Meet our 6 Regional Reps for Raising Youth Voices 2026! These young leaders are joining us in Barcelona to help shape the future of the rare disease community!
Follow their organisations and stay tuned for event registrations. #RaisingYouthVoices2026
Pablo Ramirez Uribe
Follow their organisations and stay tuned for event registrations. #RaisingYouthVoices2026
Pablo Ramirez Uribe
December 8, 2025 at 5:37 PM
Thank you so much! 😊 I cannot wait to share a stage with five other young brilliant souls and their projects. Thank you @nordrare.bsky.social @eurordis.bsky.social @rarediseasesint.bsky.social for elevating youth voices in this way ❤️
Prepping for the @rarediseasesint.bsky.social event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
May 22, 2025 at 8:47 AM
Prepping for the @rarediseasesint.bsky.social event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
Prepping for the RARE DISEASES INTERNATIONAL event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
May 22, 2025 at 8:46 AM
Prepping for the RARE DISEASES INTERNATIONAL event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
Huge boarding ticket and even huge-r excitement for this amazing journey and experience in Geneva! (With a layover in Spain, of coure)
Un pase de abordaje grandísimo, y unas ganas aún más grandes de disfrutar esta oportunidad tan increíble en Ginebra! (Claro que con escala en España)
Un pase de abordaje grandísimo, y unas ganas aún más grandes de disfrutar esta oportunidad tan increíble en Ginebra! (Claro que con escala en España)
May 18, 2025 at 8:15 PM
Huge boarding ticket and even huge-r excitement for this amazing journey and experience in Geneva! (With a layover in Spain, of coure)
Un pase de abordaje grandísimo, y unas ganas aún más grandes de disfrutar esta oportunidad tan increíble en Ginebra! (Claro que con escala en España)
Un pase de abordaje grandísimo, y unas ganas aún más grandes de disfrutar esta oportunidad tan increíble en Ginebra! (Claro que con escala en España)
¿Cómo es esa vaina del Youth Leadership Programme de Rare Disease International el cual eligió a Pablo? ¡Mejor contarles antes de que se monte en un avión rumbo a Ginebra!
youtu.be/uVXX1D7UF60
youtu.be/uVXX1D7UF60
Líderes Jóvenes de Rare Disease International
YouTube video by Pablo el Raro
youtu.be
May 18, 2025 at 7:04 PM
¿Cómo es esa vaina del Youth Leadership Programme de Rare Disease International el cual eligió a Pablo? ¡Mejor contarles antes de que se monte en un avión rumbo a Ginebra!
youtu.be/uVXX1D7UF60
youtu.be/uVXX1D7UF60
The webinar has been rescheduled! If you registered then you’re all good for the 22nd, and if not then you have the chance to register and tune in (either live or later on when the stream finishes!)
May 16, 2025 at 4:52 PM
The webinar has been rescheduled! If you registered then you’re all good for the 22nd, and if not then you have the chance to register and tune in (either live or later on when the stream finishes!)
Friends! A few days ago I was lucky enough to be part of this conversation courtesy of @aaas.org, @science.org, and Fondation Ipsen with some incredible people (it was also in a for-real filming studio which was wild??)
May 6, 2025 at 6:38 PM
Friends! A few days ago I was lucky enough to be part of this conversation courtesy of @aaas.org, @science.org, and Fondation Ipsen with some incredible people (it was also in a for-real filming studio which was wild??)
It was the people, who made the World Orphan Drug Congress for me (I promise none of those smiles were fake or forced, it was all a delight).
[1/4]
[1/4]
April 26, 2025 at 10:41 PM
It was the people, who made the World Orphan Drug Congress for me (I promise none of those smiles were fake or forced, it was all a delight).
[1/4]
[1/4]
We out here repping @apstype1 and @rarediseasesinternational at the #worldorphandrugcongress
April 24, 2025 at 7:48 PM
We out here repping @apstype1 and @rarediseasesinternational at the #worldorphandrugcongress
Here we go for the (last day) of the World Orphan Drug Congress!
April 24, 2025 at 9:12 AM
Here we go for the (last day) of the World Orphan Drug Congress!
Reposted by Pablo Ramirez Uribe
Akira Kurosawa Painted the Storyboards For Scenes in His Epic Films: Compare Canvas to Celluloid
Akira Kurosawa Painted the Storyboards For Scenes in His Epic Films: Compare Canvas to Celluloid
Appreciators of the finest works in cinema history often liken their images to paintings. In the case of Akira Kurosawa, maker of quite a few entries on that grand list of the finest works in cinema h...
www.openculture.com
February 25, 2025 at 3:53 AM
Akira Kurosawa Painted the Storyboards For Scenes in His Epic Films: Compare Canvas to Celluloid
Reposted by Pablo Ramirez Uribe
Reusar lo que consumimos o utilizar los productos hasta el fin de su vida útil es una forma de resistir y actuar frente a un sistema obsoleto que degrada nuestro planeta.
#ecoesperanza #ecohope #planeta #educaciónparalavida #ecoesperança #biodiversidad #consumismo
#ecoesperanza #ecohope #planeta #educaciónparalavida #ecoesperança #biodiversidad #consumismo
March 2, 2025 at 3:26 PM
Reusar lo que consumimos o utilizar los productos hasta el fin de su vida útil es una forma de resistir y actuar frente a un sistema obsoleto que degrada nuestro planeta.
#ecoesperanza #ecohope #planeta #educaciónparalavida #ecoesperança #biodiversidad #consumismo
#ecoesperanza #ecohope #planeta #educaciónparalavida #ecoesperança #biodiversidad #consumismo
Reposted by Pablo Ramirez Uribe
Aldous Huxley to George Orwell: My Hellish Vision of the Future is Better Than Yours (1949)
Aldous Huxley to George Orwell: My Hellish Vision of the Future is Better Than Yours (1949)
In 1949, George Orwell received a curious letter from his former high school French teacher.
Orwell had just published his groundbreaking book Nineteen Eighty-Four, which received glowing reviews fro...
www.openculture.com
March 3, 2025 at 12:05 AM
Aldous Huxley to George Orwell: My Hellish Vision of the Future is Better Than Yours (1949)
Nuevo video de #PabloElRaro! Anoche pude hablar con Sergio Beltrán, director médico de Roche, sobre la experiencia de los pacientes con enfermedades raras. Estuvo riquísima la tertulia, así que disfruten también de ella!
youtu.be/S6BW283J8_I?...
youtu.be/S6BW283J8_I?...
Sergio Beltrán y Pablo El Raro - Edición Enfermedades Raras
YouTube video by Pablo el Raro
youtu.be
March 1, 2025 at 4:53 PM
Nuevo video de #PabloElRaro! Anoche pude hablar con Sergio Beltrán, director médico de Roche, sobre la experiencia de los pacientes con enfermedades raras. Estuvo riquísima la tertulia, así que disfruten también de ella!
youtu.be/S6BW283J8_I?...
youtu.be/S6BW283J8_I?...
Thank you @rarediseasesint.bsky.social for this opportunity to work with and learn from brilliant and wonderful humans that are also committed to bettering this rare disease world of ours!
February 28, 2025 at 12:53 PM
Thank you @rarediseasesint.bsky.social for this opportunity to work with and learn from brilliant and wonderful humans that are also committed to bettering this rare disease world of ours!
Reposted by Pablo Ramirez Uribe
Pillars of Creation through MIRI | JWST
November 14, 2024 at 8:39 AM
Pillars of Creation through MIRI | JWST
Reposted by Pablo Ramirez Uribe
Mi columna Ozymandias en El Espectador sobre la manifestación del Madison Square Garden. Dejo que decidan si hablo de la pro-Nazi de 1939 o la de este domingo
www.elespectador.com/opinion/colu...
www.elespectador.com/opinion/colu...
Ozymandias
"Puede ser que vivan el resto de sus vidas con remordimiento, pidiendo perdón por haber caído en la trampa de este Trump”: Pablo Ramírez
www.elespectador.com
October 31, 2024 at 1:48 AM
Mi columna Ozymandias en El Espectador sobre la manifestación del Madison Square Garden. Dejo que decidan si hablo de la pro-Nazi de 1939 o la de este domingo
www.elespectador.com/opinion/colu...
www.elespectador.com/opinion/colu...
25 years without you, Jaime… what a thing. What a hurt. What a story. Billy Joel sings of the day the music died; 25 years ago now was the day the laughter died. But look at your legacy, Jaime.
August 8, 2024 at 1:20 PM
25 years without you, Jaime… what a thing. What a hurt. What a story. Billy Joel sings of the day the music died; 25 years ago now was the day the laughter died. But look at your legacy, Jaime.
Reposted by Pablo Ramirez Uribe
Sale un video más divertido (o al menos más relajado 😅) esta semana en #PabloElRaro. ¡Vean cómo edito los videos para el canal!
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
#PabloElRaro Editando Los Videos!
Pablo les muestra todo su proceso de editar los videos, con herramientas y todo!Productos mencionados:- https://www.elgato.com/uk/en/p/stream-deck-plus-black...
youtu.be
March 26, 2024 at 1:05 AM
Sale un video más divertido (o al menos más relajado 😅) esta semana en #PabloElRaro. ¡Vean cómo edito los videos para el canal!
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
Sale un video más divertido (o al menos más relajado 😅) esta semana en #PabloElRaro. ¡Vean cómo edito los videos para el canal!
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
#PabloElRaro Editando Los Videos!
Pablo les muestra todo su proceso de editar los videos, con herramientas y todo!Productos mencionados:- https://www.elgato.com/uk/en/p/stream-deck-plus-black...
youtu.be
March 26, 2024 at 1:05 AM
Sale un video más divertido (o al menos más relajado 😅) esta semana en #PabloElRaro. ¡Vean cómo edito los videos para el canal!
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
#PabloElRaro Editando Los Videos!
youtu.be/oyj3kTN1rqc
El video de #PabloElRaro de esta semana no se trata de política, se trata de la decencia más básica, y de lo bajo que puede caer Donald Trump al burlarse del tartamudeo del presidente Joe Biden
Cuando Donald Trump Se Burló De Las Discapacidades
youtu.be/MxlZJQLAP-4
Cuando Donald Trump Se Burló De Las Discapacidades
youtu.be/MxlZJQLAP-4
Cuando Donald Trump Se Burló De Las Discapacidades
Uno puede criticar o burlarse de las posiciones políticas de cualquier otra persona, pero hacerlo en relación a la discapacidad de alguien debería ser la lin...
youtu.be
March 19, 2024 at 12:30 AM
El video de #PabloElRaro de esta semana no se trata de política, se trata de la decencia más básica, y de lo bajo que puede caer Donald Trump al burlarse del tartamudeo del presidente Joe Biden
Cuando Donald Trump Se Burló De Las Discapacidades
youtu.be/MxlZJQLAP-4
Cuando Donald Trump Se Burló De Las Discapacidades
youtu.be/MxlZJQLAP-4