Mama Kat
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oxygenandink.bsky.social
Mama Kat
@oxygenandink.bsky.social
My son experienced a massive heat stroke 3 years ago. He awakened a non-verbal quadriplegic at 37 years old. This is about his courage, our love, forgiveness, hope, and sometimes hopelessness. But mostly it is about our unbreakable bond.
This is how I feel going to see my son! I never know what awaits me nor how many days it will take to clear up whatever hellscape issues that occur.
This captures the fear and the optimism. A light hearted way to explain the feelings.
November 5, 2025 at 7:26 AM
October 11, 2025 at 7:18 AM
🤟🏼
October 1, 2025 at 5:50 AM
Saw this guy this weekend-as I -do most weekends. I captured a pic of him that is
‘Normal’ as if time turned back. As if he wasn’t non-verbal and a quadriplegic. As if he weren’t severely mentally ill. I see his love for me. I love this picture. 💕💥
September 30, 2025 at 2:11 AM
Take care of yourself this weekend! 💕
September 27, 2025 at 1:33 AM
So! The Republicans want to take Medicaid from this guy and others like him. When did cruelty become who we are?
July 28, 2025 at 4:59 AM
This guy got new wheels!!! So cool! It actually steers-not everything is disabled accessible so getting through the bathroom doors was an ordeal with the old wheelchair. I got this guy in and out and still had room for me to squeeze by.
It’s victories like this that give me optimism.
July 13, 2025 at 2:16 AM
Trying to give him some visual comfort. Difficult went they constantly change his room and lose his pictures and posters. We start over from scratch every few months it can be disheartening, but he is my son. I will never give up trying to give him some sense of normal-some comfort.
July 8, 2025 at 2:19 AM
I drive 48 miles to see my son on most Saturdays. The reason? No facility on east side of valley that has the capability to care for him and his disabilities. Maybe some day ~
July 7, 2025 at 2:22 AM
I’m off in the AM to this guy. My guy. My first born. How I wish things were different for us. But they are not. Love is all there is. 💝
July 5, 2025 at 3:17 AM
We’ve entered our 8 week summer heat wave! It gets ugly😎
June 30, 2025 at 8:42 PM
Decorating his room. 💫
June 30, 2025 at 1:18 AM
It was Mother’s Day or close to it. I had just completed my Master’s degree in Education Administration. We were so happy. I stole them away for a couple of hours- had them all to myself and we went and had our portraits taken♥️
June 27, 2025 at 9:32 AM
He was laughing so hard because he got my Kamala Harris hat off me! He isn’t laughing now about the election and yells periodically f@%k tRump!
June 26, 2025 at 6:40 AM
You know the unhoused people begging on the corner of intersections? They many times come from a family like this. Like MY family. Mental illness is a thief. It stole our family. Be kind to them. They are suffering. Give them water and food. A smile. Recognize them. For they are human & loved.
June 25, 2025 at 9:11 PM
How do I give him hope? For I don’t think life is much without it. And nearly 3 year in I’m out of ideas.
June 25, 2025 at 10:23 AM
It was such fun. I would do it all over again just to be their mama.
June 24, 2025 at 3:13 AM
I miss this guy. I am grateful to still have him💫
June 23, 2025 at 6:03 PM
June 23, 2025 at 7:23 AM
Welp! We are knee deep into our Arizona summer! Put your sunscreen on and wear a hat! Even the parking lots are treacherous! ☀️😎
June 22, 2025 at 8:53 PM
Chris was a gifted musician before mental illness gripped him. We were so happy and filled with innocence hope. ♥️
June 22, 2025 at 8:48 PM
Today is my day to visit Chris. I was supposed to be at a celebration of life for a dear aunt but am instead anchored to my couch. I can’t explain the constant low ebbing flow of guilt I have when I don’t get across town to see Chris. Some days are like this. I just sort of freeze.
June 21, 2025 at 8:52 PM
This is Chris. He suffered massive heat stroke in our 120 degree heat 3 years ago. If they cut Medicaid we have nowhere to go. His needs are beyond me. He’s 6’4” - changing him, getting him from wheelchair to bed is an event. And it’s not the Ritz where he is at! But it is good. And I AM GRATEFUL.
June 20, 2025 at 10:53 PM
When I read this Eleanor quote I was a bit jealous. I thought this was about a GRAND life-an EXCITING life! Why, I don’t have one of those. But I do cherish moments, hours, each new day. I try to be present for those that count on me.I do reach out; I put the fear in my pocket. I do have this life!
June 20, 2025 at 7:46 PM