Mama Kat
@oxygenandink.bsky.social
My son experienced a massive heat stroke 3 years ago. He awakened a non-verbal quadriplegic at 37 years old. This is about his courage, our love, forgiveness, hope, and sometimes hopelessness. But mostly it is about our unbreakable bond.
Pinned
Mama Kat
@oxygenandink.bsky.social
· Jun 22
Worked three jobs for many of my 30 yr career; we provided for our kids. We did it well. I never have had expectations that my kids would support me in old age. I also never thought I’d be a caregiver to an adult child.
#handsoffmedicaid
#handsoffmedicare
#handsoffmedicaid
#handsoffmedicare
This is how I feel going to see my son! I never know what awaits me nor how many days it will take to clear up whatever hellscape issues that occur.
This captures the fear and the optimism. A light hearted way to explain the feelings.
This captures the fear and the optimism. A light hearted way to explain the feelings.
November 5, 2025 at 7:26 AM
This is how I feel going to see my son! I never know what awaits me nor how many days it will take to clear up whatever hellscape issues that occur.
This captures the fear and the optimism. A light hearted way to explain the feelings.
This captures the fear and the optimism. A light hearted way to explain the feelings.
Just finished setting up his new room. Exhausted. He is non-verbal and a quadriplegic- so unexpected stuff happens all the time! His clothes are gone. Like every stitch of clothing. And someone used his account to order a boatload is Dickies. Nowhere to be found! They even took his shoes! WTF.
November 4, 2025 at 8:07 PM
Just finished setting up his new room. Exhausted. He is non-verbal and a quadriplegic- so unexpected stuff happens all the time! His clothes are gone. Like every stitch of clothing. And someone used his account to order a boatload is Dickies. Nowhere to be found! They even took his shoes! WTF.
Reposted by Mama Kat
Stop calling it the Trump “administration.” It‘s an authoritarian regime, a fascist coup, a hostile takeover!
a woman is sitting in front of a snl map
ALT: a woman is sitting in front of a snl map
media.tenor.com
November 2, 2025 at 2:58 PM
Stop calling it the Trump “administration.” It‘s an authoritarian regime, a fascist coup, a hostile takeover!
Reposted by Mama Kat
My spelling and grammar need work but the point stands. Of the people I have come to know in the last year, the men don't get accused, the women don't lie about it. It's not fucking funny. It's not a fucking game. All of my family are women and I will handle this if he peeps out and says anything.
Let's start a chain of man who don't get accused. Who don't block women so they can't screen shot the abuse. That claim "i have a family" while they secretly pursue and terrify. Fuck those men. Real men don't get accused because we don't harass women. We love women.
November 2, 2025 at 3:09 PM
My spelling and grammar need work but the point stands. Of the people I have come to know in the last year, the men don't get accused, the women don't lie about it. It's not fucking funny. It's not a fucking game. All of my family are women and I will handle this if he peeps out and says anything.
They’ve moved my son to another ward. His behaviors are completely acceptable now. He has, for the most part accepted his fate. It’s been 3 years. He used to walk the parks and streets because of his acute claustrophobia. He is confined to a room and a sunless ward.
Day in and day out.
Day in and day out.
October 31, 2025 at 4:32 PM
They’ve moved my son to another ward. His behaviors are completely acceptable now. He has, for the most part accepted his fate. It’s been 3 years. He used to walk the parks and streets because of his acute claustrophobia. He is confined to a room and a sunless ward.
Day in and day out.
Day in and day out.
Saw this guy this weekend-as I -do most weekends. I captured a pic of him that is
‘Normal’ as if time turned back. As if he wasn’t non-verbal and a quadriplegic. As if he weren’t severely mentally ill. I see his love for me. I love this picture. 💕💥
‘Normal’ as if time turned back. As if he wasn’t non-verbal and a quadriplegic. As if he weren’t severely mentally ill. I see his love for me. I love this picture. 💕💥
September 30, 2025 at 2:11 AM
Saw this guy this weekend-as I -do most weekends. I captured a pic of him that is
‘Normal’ as if time turned back. As if he wasn’t non-verbal and a quadriplegic. As if he weren’t severely mentally ill. I see his love for me. I love this picture. 💕💥
‘Normal’ as if time turned back. As if he wasn’t non-verbal and a quadriplegic. As if he weren’t severely mentally ill. I see his love for me. I love this picture. 💕💥
Take care of yourself this weekend! 💕
September 27, 2025 at 1:33 AM
Take care of yourself this weekend! 💕
So! The Republicans want to take Medicaid from this guy and others like him. When did cruelty become who we are?
July 28, 2025 at 4:59 AM
So! The Republicans want to take Medicaid from this guy and others like him. When did cruelty become who we are?
I’m of the age where my peers are jealous of state-of-the-art medical procedures! They used to be envious of the concerts I attended ! Oh. Boy. Life gets weird.
July 27, 2025 at 10:38 PM
I’m of the age where my peers are jealous of state-of-the-art medical procedures! They used to be envious of the concerts I attended ! Oh. Boy. Life gets weird.
This guy got new wheels!!! So cool! It actually steers-not everything is disabled accessible so getting through the bathroom doors was an ordeal with the old wheelchair. I got this guy in and out and still had room for me to squeeze by.
It’s victories like this that give me optimism.
It’s victories like this that give me optimism.
July 13, 2025 at 2:16 AM
This guy got new wheels!!! So cool! It actually steers-not everything is disabled accessible so getting through the bathroom doors was an ordeal with the old wheelchair. I got this guy in and out and still had room for me to squeeze by.
It’s victories like this that give me optimism.
It’s victories like this that give me optimism.
Trying to give him some visual comfort. Difficult went they constantly change his room and lose his pictures and posters. We start over from scratch every few months it can be disheartening, but he is my son. I will never give up trying to give him some sense of normal-some comfort.
July 8, 2025 at 2:19 AM
Trying to give him some visual comfort. Difficult went they constantly change his room and lose his pictures and posters. We start over from scratch every few months it can be disheartening, but he is my son. I will never give up trying to give him some sense of normal-some comfort.
I drive 48 miles to see my son on most Saturdays. The reason? No facility on east side of valley that has the capability to care for him and his disabilities. Maybe some day ~
July 7, 2025 at 2:22 AM
I drive 48 miles to see my son on most Saturdays. The reason? No facility on east side of valley that has the capability to care for him and his disabilities. Maybe some day ~
I’m off in the AM to this guy. My guy. My first born. How I wish things were different for us. But they are not. Love is all there is. 💝
July 5, 2025 at 3:17 AM
I’m off in the AM to this guy. My guy. My first born. How I wish things were different for us. But they are not. Love is all there is. 💝
My son is going to love this station!
July 5, 2025 at 2:49 AM
My son is going to love this station!
Reposted by Mama Kat
Reposted by Mama Kat
lil tardy for the party, but--
Happy Disability Pride!
remember: not all disabilities are obvious or visible. don't be an presumptuous prick.
Happy Disability Pride!
remember: not all disabilities are obvious or visible. don't be an presumptuous prick.
July 2, 2025 at 10:52 AM
lil tardy for the party, but--
Happy Disability Pride!
remember: not all disabilities are obvious or visible. don't be an presumptuous prick.
Happy Disability Pride!
remember: not all disabilities are obvious or visible. don't be an presumptuous prick.
Reposted by Mama Kat
No kidding here. This is my tribe👇🏼The caretakers. The solid consistent net for the vulnerable, the underdog. Because I get what it is like in the middle of the chaos.
July 1, 2025 at 4:54 PM
No kidding here. This is my tribe👇🏼The caretakers. The solid consistent net for the vulnerable, the underdog. Because I get what it is like in the middle of the chaos.
We’ve entered our 8 week summer heat wave! It gets ugly😎
June 30, 2025 at 8:42 PM
We’ve entered our 8 week summer heat wave! It gets ugly😎
Decorating his room. 💫
June 30, 2025 at 1:18 AM
Decorating his room. 💫
It was Mother’s Day or close to it. I had just completed my Master’s degree in Education Administration. We were so happy. I stole them away for a couple of hours- had them all to myself and we went and had our portraits taken♥️
June 27, 2025 at 9:32 AM
It was Mother’s Day or close to it. I had just completed my Master’s degree in Education Administration. We were so happy. I stole them away for a couple of hours- had them all to myself and we went and had our portraits taken♥️
Reposted by Mama Kat
the press isn't telling the public that federal corporate oversight no longer functions, so most of the public is walking around not really prepared for the concussive, systemic failures that are coming for systems they routinely take for granted
June 24, 2025 at 1:17 PM
the press isn't telling the public that federal corporate oversight no longer functions, so most of the public is walking around not really prepared for the concussive, systemic failures that are coming for systems they routinely take for granted
He was laughing so hard because he got my Kamala Harris hat off me! He isn’t laughing now about the election and yells periodically f@%k tRump!
June 26, 2025 at 6:40 AM
He was laughing so hard because he got my Kamala Harris hat off me! He isn’t laughing now about the election and yells periodically f@%k tRump!
You know the unhoused people begging on the corner of intersections? They many times come from a family like this. Like MY family. Mental illness is a thief. It stole our family. Be kind to them. They are suffering. Give them water and food. A smile. Recognize them. For they are human & loved.
June 25, 2025 at 9:11 PM
You know the unhoused people begging on the corner of intersections? They many times come from a family like this. Like MY family. Mental illness is a thief. It stole our family. Be kind to them. They are suffering. Give them water and food. A smile. Recognize them. For they are human & loved.