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ohtwist.bsky.social
OhTWIST
@ohtwist.bsky.social
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Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed)

https://ohtwist.com
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ohtwist.bsky.social
The bookmarks are in the lower right area of posts if you're wondering. Photo for distraction.
A lone black and yellow bumblebee snoozing in a red and white zinnia at dusk in a garden. Jan Groh Photograbee 2025.
September 10, 2025 at 5:00 PM
ohtwist.bsky.social
We’re finding #autism and #ADHD to be common in #hypermobile and Ehlers-Danlos families:

ohtwist.com/about-eds/wh...

#EDS #ASD #meded #FOAMed #SPD #zebras #autistic #spoonies #EhlersDanlos #ASC #neurodiversity #NEISvoid
Colorful illustration (not to scale) of a pink mast cell full of vesicles in purple and darker pink as though ready to degranulate under a slide.
June 8, 2025 at 5:54 AM
ohtwist.bsky.social
Y'all, Jessi is starting to lose hope as we close in on barely two weeks until her major DOUBLE spinal fusion surgery June 24th.

She's stuck living in her van while her spine is crumbling! Please help her with immediate needs (PP, V, CA) and housing (GFM) thanks! 💔🙏💔 #EDS #HSD #NEISvoid #zebras
Screen cap of a tweet by @SpoonieStella on locked account reading: 2.5 weeks to double spinal fusion. Still at 48%to goal. I literally have a broken spine with a failed fusion, 9 compressed root nerves, spinal stenosis, and am homeless. I need help saving for shelter for recovery. Please help ❤️🙏 then her links: Https://linktr.ee/stardrifter42 And a photo of her bedding and belongings in her van, and an X-ray showing her broken vertebrae
June 6, 2025 at 6:56 PM
ohtwist.bsky.social
Common Ocular Complications of Ehlers-Danlos syndrome 2019 by Dr. Diana Driscoll, fellow EDS patient and optometrist

buff.ly/333hJBd

#EDS #HSD #hEDS #MCAS #POTS #NEISvoid #Fibro #Fibromyalgia #EyeHealth #Eyes
Doctored close-up photo of a large eye with mascara all in greys and black and white, but the iris has been retouched with vibrant blue interlaced with hazel and green near they iris so it stands out. No text.
December 20, 2024 at 4:48 AM
ohtwist.bsky.social
No, they're sure not! What part of no don't folks get, the "n" or the "o"?
Gif of a large bawling one-eyed yellow emoji
November 18, 2024 at 1:27 AM