OhTWIST
@ohtwist.bsky.social
Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2025 (tbd) (toes crossed)
https://ohtwist.com
https://ohtwist.com
I caught it from riding a super crowded bus on Tuesday Nov 4th - something I hadn't done in years, so not surprised. Lesson learned.
November 13, 2025 at 5:02 PM
I caught it from riding a super crowded bus on Tuesday Nov 4th - something I hadn't done in years, so not surprised. Lesson learned.
Thanks, I'm slowly prevailing, finally. Fever broke more yesterday. Ahhh...🛌
November 13, 2025 at 5:01 PM
Thanks, I'm slowly prevailing, finally. Fever broke more yesterday. Ahhh...🛌
I take that back. I was bed bound yesterday. 😔
Just slithering back out today, oof. ✌️
Just slithering back out today, oof. ✌️
November 11, 2025 at 6:06 PM
I take that back. I was bed bound yesterday. 😔
Just slithering back out today, oof. ✌️
Just slithering back out today, oof. ✌️
Total capitulation. They folded like cheap suits. I'm sooooo disappointed. 🤬
November 10, 2025 at 6:00 AM
Total capitulation. They folded like cheap suits. I'm sooooo disappointed. 🤬
Thank you, yes, thanks to MCAS even a regular cold can be miserable. At least I'm not bed bound by this one, though I am taking it easy.
November 9, 2025 at 6:13 PM
Thank you, yes, thanks to MCAS even a regular cold can be miserable. At least I'm not bed bound by this one, though I am taking it easy.
Cool thanks! I'll check it out!
October 24, 2025 at 4:42 PM
Cool thanks! I'll check it out!
Sadly yes, though we're making slow but steady inroads as we type. But yeah, they still rarely recognize and diagnose EDS. 😥👊✌️
October 24, 2025 at 4:41 PM
Sadly yes, though we're making slow but steady inroads as we type. But yeah, they still rarely recognize and diagnose EDS. 😥👊✌️