Nita Jain
@nitajain.bsky.social
Chronic disease research and advocacy | CEO at timelessbiosciences.com | Creator of spooniverse.directory | Newsletter: nitajain.com
“So, what do you have?”
If you’re a patient with complex chronic illness, that’s not an easy answer.
Many conditions tend to travel in packs.
These intricate webs of interconnected symptoms and diagnoses challenge both patients and healthcare providers.
If you’re a patient with complex chronic illness, that’s not an easy answer.
Many conditions tend to travel in packs.
These intricate webs of interconnected symptoms and diagnoses challenge both patients and healthcare providers.
March 24, 2025 at 9:50 PM
“So, what do you have?”
If you’re a patient with complex chronic illness, that’s not an easy answer.
Many conditions tend to travel in packs.
These intricate webs of interconnected symptoms and diagnoses challenge both patients and healthcare providers.
If you’re a patient with complex chronic illness, that’s not an easy answer.
Many conditions tend to travel in packs.
These intricate webs of interconnected symptoms and diagnoses challenge both patients and healthcare providers.
Getting repurposed treatments to patients takes 3-5 years on average instead of the usual 10-15. When you're a patient waiting for viable treatment, every day feels like an eternity.
30 million Americans have rare diseases, but 95% of these have no approved treatments. We need to do better.
30 million Americans have rare diseases, but 95% of these have no approved treatments. We need to do better.
March 20, 2025 at 1:12 AM
Getting repurposed treatments to patients takes 3-5 years on average instead of the usual 10-15. When you're a patient waiting for viable treatment, every day feels like an eternity.
30 million Americans have rare diseases, but 95% of these have no approved treatments. We need to do better.
30 million Americans have rare diseases, but 95% of these have no approved treatments. We need to do better.
Medicine has a long history of denying the existence of conditions that were later found to have a physiological basis.
The basic creed of patient allyship boils down to one thing: BELIEVE PATIENTS.
The basic creed of patient allyship boils down to one thing: BELIEVE PATIENTS.
March 19, 2025 at 7:41 PM
Medicine has a long history of denying the existence of conditions that were later found to have a physiological basis.
The basic creed of patient allyship boils down to one thing: BELIEVE PATIENTS.
The basic creed of patient allyship boils down to one thing: BELIEVE PATIENTS.
Traditional immunology focuses solely on detecting and eliminating pathogens, a concept known as sterilizing immunity.
But there's another crucial branch of our immune system: microbiota-nourishing immunity, which works by cultivating beneficial microbial alliances.
But there's another crucial branch of our immune system: microbiota-nourishing immunity, which works by cultivating beneficial microbial alliances.
January 29, 2025 at 11:38 PM
Traditional immunology focuses solely on detecting and eliminating pathogens, a concept known as sterilizing immunity.
But there's another crucial branch of our immune system: microbiota-nourishing immunity, which works by cultivating beneficial microbial alliances.
But there's another crucial branch of our immune system: microbiota-nourishing immunity, which works by cultivating beneficial microbial alliances.
Cancer cells transfer mitochondria to T cells to evade the immune response!
It works like this: cancer cells transfer mutant mitochondria to T cells (to induce T cell apoptosis) and receive healthy mitochondria in return (to power cancer metabolism)
www.nature.com/articles/d41...
It works like this: cancer cells transfer mutant mitochondria to T cells (to induce T cell apoptosis) and receive healthy mitochondria in return (to power cancer metabolism)
www.nature.com/articles/d41...
January 27, 2025 at 8:55 PM
Cancer cells transfer mitochondria to T cells to evade the immune response!
It works like this: cancer cells transfer mutant mitochondria to T cells (to induce T cell apoptosis) and receive healthy mitochondria in return (to power cancer metabolism)
www.nature.com/articles/d41...
It works like this: cancer cells transfer mutant mitochondria to T cells (to induce T cell apoptosis) and receive healthy mitochondria in return (to power cancer metabolism)
www.nature.com/articles/d41...
Created by Brian Castellani, the Map of the Complexity Sciences charts how various disciplines, concepts, and figures have intertwined over the decades to shape our understanding of complex systems.
The interconnected nodes emphasize how ideas from one domain can stimulate breakthroughs in another.
The interconnected nodes emphasize how ideas from one domain can stimulate breakthroughs in another.
January 9, 2025 at 2:57 AM
Created by Brian Castellani, the Map of the Complexity Sciences charts how various disciplines, concepts, and figures have intertwined over the decades to shape our understanding of complex systems.
The interconnected nodes emphasize how ideas from one domain can stimulate breakthroughs in another.
The interconnected nodes emphasize how ideas from one domain can stimulate breakthroughs in another.
Happy birthday to the incomparable, inimitable Cynthia Erivo!
Cynthia took Broadway by storm with her Tony Award-winning portrayal of Celie in The Color Purple.
Playing Elphaba in the screen adaptation of Wicked, she has dazzled audiences once again.
Cynthia took Broadway by storm with her Tony Award-winning portrayal of Celie in The Color Purple.
Playing Elphaba in the screen adaptation of Wicked, she has dazzled audiences once again.
January 8, 2025 at 9:04 PM
Happy birthday to the incomparable, inimitable Cynthia Erivo!
Cynthia took Broadway by storm with her Tony Award-winning portrayal of Celie in The Color Purple.
Playing Elphaba in the screen adaptation of Wicked, she has dazzled audiences once again.
Cynthia took Broadway by storm with her Tony Award-winning portrayal of Celie in The Color Purple.
Playing Elphaba in the screen adaptation of Wicked, she has dazzled audiences once again.
Too large a tsundoku, too little time...
January 7, 2025 at 6:30 PM
Too large a tsundoku, too little time...
A good reminder for the new year
January 2, 2025 at 3:30 PM
A good reminder for the new year
When patients consistently report symptoms that don't fit existing diagnostic boxes, the answer isn't to dismiss them – it's to look harder. As healthcare professionals, researchers, and advocates, we must remember that today's "unexplained" symptoms might be tomorrow's well-documented condition.
December 31, 2024 at 7:44 PM
When patients consistently report symptoms that don't fit existing diagnostic boxes, the answer isn't to dismiss them – it's to look harder. As healthcare professionals, researchers, and advocates, we must remember that today's "unexplained" symptoms might be tomorrow's well-documented condition.
We are really good at faking wellness, decades of practice
December 27, 2024 at 6:30 PM
We are really good at faking wellness, decades of practice
Circa 1900 sounds about right
December 26, 2024 at 6:30 PM
Circa 1900 sounds about right
A story we know all too well...
December 22, 2024 at 6:33 PM
A story we know all too well...
According to a new investigation, hospitals are giving women drugs during labor and then reporting them to child welfare services when they later test positive for those same drugs.
reason.com/2024/12/13/h...
reason.com/2024/12/13/h...
December 20, 2024 at 4:56 AM
According to a new investigation, hospitals are giving women drugs during labor and then reporting them to child welfare services when they later test positive for those same drugs.
reason.com/2024/12/13/h...
reason.com/2024/12/13/h...
Finding healthcare resources shouldn't be an endless maze.
I hope to change that narrative with the Spooniverse Directory!
This resource hub is a place where patients can find:
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Disability & financial aid
I hope to change that narrative with the Spooniverse Directory!
This resource hub is a place where patients can find:
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Disability & financial aid
December 19, 2024 at 1:06 AM
Finding healthcare resources shouldn't be an endless maze.
I hope to change that narrative with the Spooniverse Directory!
This resource hub is a place where patients can find:
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Disability & financial aid
I hope to change that narrative with the Spooniverse Directory!
This resource hub is a place where patients can find:
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Disability & financial aid
$7.2 trillion annually. That's the total economic burden of complex chronic diseases in the US—a figure larger than the GDP of all but two countries.
Behind every dollar is someone managing not just their health, but their ability to work, support their family, and maintain financial stability.
Behind every dollar is someone managing not just their health, but their ability to work, support their family, and maintain financial stability.
December 15, 2024 at 9:26 PM
$7.2 trillion annually. That's the total economic burden of complex chronic diseases in the US—a figure larger than the GDP of all but two countries.
Behind every dollar is someone managing not just their health, but their ability to work, support their family, and maintain financial stability.
Behind every dollar is someone managing not just their health, but their ability to work, support their family, and maintain financial stability.
👇 This large-scale proteomics study provides unprecedented insights into the role of the plasma proteome in human health and disease! A comprehensive atlas of the human plasma proteome and its associations with 1,700+ health conditions and traits in a large population study of 53,026 individuals.
December 11, 2024 at 8:04 PM
👇 This large-scale proteomics study provides unprecedented insights into the role of the plasma proteome in human health and disease! A comprehensive atlas of the human plasma proteome and its associations with 1,700+ health conditions and traits in a large population study of 53,026 individuals.
Interesting infographic highlighting the striking similarities between ME/CFS & Long COVID.
Research spanning three decades reveals biological patterns like:
🧠 Reduced cerebral blood flow
🧠 Endothelial dysfunction
🧠 Autoimmune responses
🧠 Metabolic changes in the CNS
🧠 Cardiovascular irregularities
Research spanning three decades reveals biological patterns like:
🧠 Reduced cerebral blood flow
🧠 Endothelial dysfunction
🧠 Autoimmune responses
🧠 Metabolic changes in the CNS
🧠 Cardiovascular irregularities
December 11, 2024 at 3:09 AM
Interesting infographic highlighting the striking similarities between ME/CFS & Long COVID.
Research spanning three decades reveals biological patterns like:
🧠 Reduced cerebral blood flow
🧠 Endothelial dysfunction
🧠 Autoimmune responses
🧠 Metabolic changes in the CNS
🧠 Cardiovascular irregularities
Research spanning three decades reveals biological patterns like:
🧠 Reduced cerebral blood flow
🧠 Endothelial dysfunction
🧠 Autoimmune responses
🧠 Metabolic changes in the CNS
🧠 Cardiovascular irregularities
Less than a week on Bluesky, and my advocacy for patients with chronic illness already earned me my first block on the platform. That's gotta be a record.
December 9, 2024 at 4:37 AM
Less than a week on Bluesky, and my advocacy for patients with chronic illness already earned me my first block on the platform. That's gotta be a record.
The Spooniverse Directory launched with:
➡️ 500+ curated resources
➡️ Smart search functionality
➡️ Free access for all users
This Giving Tuesday, help us expand our impact:
🎯 Scale to 1,000+ resources
🎯 Translate into other languages
🎯 Enhance search capabilities
spooniverse.directory
➡️ 500+ curated resources
➡️ Smart search functionality
➡️ Free access for all users
This Giving Tuesday, help us expand our impact:
🎯 Scale to 1,000+ resources
🎯 Translate into other languages
🎯 Enhance search capabilities
spooniverse.directory
December 2, 2024 at 8:37 PM
The Spooniverse Directory launched with:
➡️ 500+ curated resources
➡️ Smart search functionality
➡️ Free access for all users
This Giving Tuesday, help us expand our impact:
🎯 Scale to 1,000+ resources
🎯 Translate into other languages
🎯 Enhance search capabilities
spooniverse.directory
➡️ 500+ curated resources
➡️ Smart search functionality
➡️ Free access for all users
This Giving Tuesday, help us expand our impact:
🎯 Scale to 1,000+ resources
🎯 Translate into other languages
🎯 Enhance search capabilities
spooniverse.directory
I'm excited to announce the launch of the Spooniverse Directory, a comprehensive resource hub for patients with complex chronic illness & caregivers to find:
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Research opportunities
➡️ Disability & financial aid
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Research opportunities
➡️ Disability & financial aid
December 2, 2024 at 12:03 AM
I'm excited to announce the launch of the Spooniverse Directory, a comprehensive resource hub for patients with complex chronic illness & caregivers to find:
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Research opportunities
➡️ Disability & financial aid
➡️ Clinical trials
➡️ Patient communities
➡️ Healthcare providers
➡️ Treatment information
➡️ Research opportunities
➡️ Disability & financial aid