Neurological Alliance of Scotland
@neuroalscotland.bsky.social
The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
Our next policy group meeting is on Weds 5 November, chaired by Dr Claire Winchester, Head of Information and Engagement at the MS Trust. We'll also be joined by Liam McArtur MSP to discuss the Assisted Dying (Scotland) Bill.
Registration open to members only - alice@scottishneurological.org.uk.
Registration open to members only - alice@scottishneurological.org.uk.
October 29, 2025 at 4:07 PM
Our next policy group meeting is on Weds 5 November, chaired by Dr Claire Winchester, Head of Information and Engagement at the MS Trust. We'll also be joined by Liam McArtur MSP to discuss the Assisted Dying (Scotland) Bill.
Registration open to members only - alice@scottishneurological.org.uk.
Registration open to members only - alice@scottishneurological.org.uk.
NAoS member, Compass Therapy Support, are hosting an open day at their centre in Edinburgh from 2-4pm on Thurs 20 November.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
October 21, 2025 at 3:29 PM
NAoS member, Compass Therapy Support, are hosting an open day at their centre in Edinburgh from 2-4pm on Thurs 20 November.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
We are delighted to welcome Aberdeen Independent MS (AIMS) as our newest member.
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
September 18, 2025 at 8:42 AM
We are delighted to welcome Aberdeen Independent MS (AIMS) as our newest member.
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
Delighted to announce Shelley Gray, member of the Scottish Human Rights Commission, will be joining our AGM on 24 Sept as our guest speaker. Shelley will cover the work of the commission, what taking a 'human rights-based approach' to policy means and how we can use human rights in the third sector.
September 10, 2025 at 12:14 PM
Delighted to announce Shelley Gray, member of the Scottish Human Rights Commission, will be joining our AGM on 24 Sept as our guest speaker. Shelley will cover the work of the commission, what taking a 'human rights-based approach' to policy means and how we can use human rights in the third sector.
It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
September 5, 2025 at 10:45 AM
It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
We're looking forward to sharing our #2026holyroodmanifesto with our policy group at our next meeting which is coming up on 27th August. The meeting will be chaired by Rachel Edwards, CEO of @epilepsyconnect.bsky.social
August 18, 2025 at 2:16 PM
We're looking forward to sharing our #2026holyroodmanifesto with our policy group at our next meeting which is coming up on 27th August. The meeting will be chaired by Rachel Edwards, CEO of @epilepsyconnect.bsky.social
We are looking for new trustees to join our board!
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
August 13, 2025 at 2:32 PM
We are looking for new trustees to join our board!
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
1 in 3 carers who responded to the My Neuro Survey said that they are unable to manage their own health and wellbeing, with over half (53%) living with a long-term health condition of their own.
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
July 22, 2025 at 8:36 AM
1 in 3 carers who responded to the My Neuro Survey said that they are unable to manage their own health and wellbeing, with over half (53%) living with a long-term health condition of their own.
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
69% of carers who responded to the My Neuro Survey said that mental health services were not meeting their child's needs.
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
July 21, 2025 at 4:52 PM
69% of carers who responded to the My Neuro Survey said that mental health services were not meeting their child's needs.
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
Could you be a NAoS trustee?
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
July 16, 2025 at 11:28 AM
Could you be a NAoS trustee?
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
Two thirds of adults living with a neurological condition in Scotland who responded to the My Neuro Survey say life is difficult to cope with and their condition has an impact on their mental health.
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
July 16, 2025 at 11:24 AM
Two thirds of adults living with a neurological condition in Scotland who responded to the My Neuro Survey say life is difficult to cope with and their condition has an impact on their mental health.
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
We've made front page news! 👏
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
July 9, 2025 at 10:07 AM
We've made front page news! 👏
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
We're onto our third full members' meeting of 2025 and we're looking forward to welcoming Gillian Neil from East Lothian Health & Social Care Partnership for a discussion about the relocation of the inpatient neuro-rehab unit at the #AstleeAinslee hospital in Edinburgh
June 24, 2025 at 9:26 AM
We're onto our third full members' meeting of 2025 and we're looking forward to welcoming Gillian Neil from East Lothian Health & Social Care Partnership for a discussion about the relocation of the inpatient neuro-rehab unit at the #AstleeAinslee hospital in Edinburgh
Our next policy group meeting will be on Weds 7th May, chaired by Catherine Martin from the @scottishhd.bsky.social. We are delighted to be welcoming Liam McArthur MSP for a discussion about the Assisted Dying for Terminally Ill Adults (Scotland) bill. What questions would you like to ask?
April 23, 2025 at 12:36 PM
Our next policy group meeting will be on Weds 7th May, chaired by Catherine Martin from the @scottishhd.bsky.social. We are delighted to be welcoming Liam McArthur MSP for a discussion about the Assisted Dying for Terminally Ill Adults (Scotland) bill. What questions would you like to ask?
We look forward to welcoming Catherine Martin, Intermin Head of Services for @scottishhd.bsky.social, as chair of our next policy group meeting on Wednesday 7 May, 11:00 - 12:30.
We will also be joined by Liam McArthur MSP, to discuss the Assisted Dying for Terminally Ill Adults (Scotland) bill.
We will also be joined by Liam McArthur MSP, to discuss the Assisted Dying for Terminally Ill Adults (Scotland) bill.
April 22, 2025 at 9:53 AM
We look forward to welcoming Catherine Martin, Intermin Head of Services for @scottishhd.bsky.social, as chair of our next policy group meeting on Wednesday 7 May, 11:00 - 12:30.
We will also be joined by Liam McArthur MSP, to discuss the Assisted Dying for Terminally Ill Adults (Scotland) bill.
We will also be joined by Liam McArthur MSP, to discuss the Assisted Dying for Terminally Ill Adults (Scotland) bill.
Is it April already? Then it's time for our next Members' Meeting where we will review our recent Brain Awareness Week campaign and run through some of the results of the 2024 National Neurology Patient Experience Survey for Scotland.
March 27, 2025 at 10:46 AM
Is it April already? Then it's time for our next Members' Meeting where we will review our recent Brain Awareness Week campaign and run through some of the results of the 2024 National Neurology Patient Experience Survey for Scotland.
We don't know enough about why different neurological conditions happen to us. By understanding the mechanisms behind various neurological conditions, researchers can develop new treatments and therapies to improve the quality of life of those affected. #InvestinNeuroResearch
March 14, 2025 at 10:57 AM
We don't know enough about why different neurological conditions happen to us. By understanding the mechanisms behind various neurological conditions, researchers can develop new treatments and therapies to improve the quality of life of those affected. #InvestinNeuroResearch
1 in 6 people in the UK live with a neurological condition - but investment into research is disproportionately low. This #BrainAwarenessWeek, Professor Quinn from the Brain Health Arc explains just how much of a difference it makes to #InvestInNeuroResearch
March 12, 2025 at 11:28 AM
1 in 6 people in the UK live with a neurological condition - but investment into research is disproportionately low. This #BrainAwarenessWeek, Professor Quinn from the Brain Health Arc explains just how much of a difference it makes to #InvestInNeuroResearch
Did you know that neurological conditions affect at least 1 in 6 people across the UK and are the leading cause of ill health in the world?
Despite this, there is still so much we don’t know about these life altering conditions. This has to change.
#BrainAwarenessWeek #InvestInNeuroResearch
Despite this, there is still so much we don’t know about these life altering conditions. This has to change.
#BrainAwarenessWeek #InvestInNeuroResearch
March 10, 2025 at 9:36 AM
Did you know that neurological conditions affect at least 1 in 6 people across the UK and are the leading cause of ill health in the world?
Despite this, there is still so much we don’t know about these life altering conditions. This has to change.
#BrainAwarenessWeek #InvestInNeuroResearch
Despite this, there is still so much we don’t know about these life altering conditions. This has to change.
#BrainAwarenessWeek #InvestInNeuroResearch
We are delighted to welcome @longcovidscot.bsky.social as our newest members of NAoS!
Long Covid Scotland is a volunteer-led charity that provides support, advocacy, and awareness for people living with Long Covid in Scotland.
We're very much looking forward to working together.
Long Covid Scotland is a volunteer-led charity that provides support, advocacy, and awareness for people living with Long Covid in Scotland.
We're very much looking forward to working together.
March 7, 2025 at 11:29 AM
We are delighted to welcome @longcovidscot.bsky.social as our newest members of NAoS!
Long Covid Scotland is a volunteer-led charity that provides support, advocacy, and awareness for people living with Long Covid in Scotland.
We're very much looking forward to working together.
Long Covid Scotland is a volunteer-led charity that provides support, advocacy, and awareness for people living with Long Covid in Scotland.
We're very much looking forward to working together.
NAoS were happy to join the Minister for Public Health and Women's Health, Jenni Minto MSP, at the the Women's Health Plan Lived Experience Group Development Day yesterday in Glasgow.
Jenn and Alice were there to advocate for brain health to be included in the next iteration of the plan.
Jenn and Alice were there to advocate for brain health to be included in the next iteration of the plan.
March 6, 2025 at 2:10 PM
NAoS were happy to join the Minister for Public Health and Women's Health, Jenni Minto MSP, at the the Women's Health Plan Lived Experience Group Development Day yesterday in Glasgow.
Jenn and Alice were there to advocate for brain health to be included in the next iteration of the plan.
Jenn and Alice were there to advocate for brain health to be included in the next iteration of the plan.
This #BrainAwarenessWeek we will be sharing videos from people within the the neurological community explaining why research is so important to them, and calling for greater investment into neurological condition research.
Keep an eye out for our posts next week. 👀
#investinneuroresearch
Keep an eye out for our posts next week. 👀
#investinneuroresearch
March 6, 2025 at 1:58 PM
This #BrainAwarenessWeek we will be sharing videos from people within the the neurological community explaining why research is so important to them, and calling for greater investment into neurological condition research.
Keep an eye out for our posts next week. 👀
#investinneuroresearch
Keep an eye out for our posts next week. 👀
#investinneuroresearch
1 in 6 people live with a neurological condition, impacting millions of people across the UK. Despite this, investment into research on neurological conditions is disproportionately low.
This needs to change. This #BrainAwarenessWeek we're calling for more investment! #InvestInNeuroResearch
This needs to change. This #BrainAwarenessWeek we're calling for more investment! #InvestInNeuroResearch
March 3, 2025 at 10:12 AM
1 in 6 people live with a neurological condition, impacting millions of people across the UK. Despite this, investment into research on neurological conditions is disproportionately low.
This needs to change. This #BrainAwarenessWeek we're calling for more investment! #InvestInNeuroResearch
This needs to change. This #BrainAwarenessWeek we're calling for more investment! #InvestInNeuroResearch
This #BrainAwarenessWeek 10 - 16 March 2025, we are joining with neurological alliances across the UK, calling for greater investment into research investigating neurological conditions. Keep an eye out for our posts!
#InvestinNeuroResearch
#InvestinNeuroResearch
February 24, 2025 at 11:56 AM
This #BrainAwarenessWeek 10 - 16 March 2025, we are joining with neurological alliances across the UK, calling for greater investment into research investigating neurological conditions. Keep an eye out for our posts!
#InvestinNeuroResearch
#InvestinNeuroResearch
A big welcome to our new member: @leuchie.bsky.social Leuchie House is a national respite charity which provides transformational holidays for people living with neurological conditions such as MS, MND, stroke & Parkinson's. Find out more on their website: lnkd.in/eKedJyG8.
February 19, 2025 at 5:12 PM
A big welcome to our new member: @leuchie.bsky.social Leuchie House is a national respite charity which provides transformational holidays for people living with neurological conditions such as MS, MND, stroke & Parkinson's. Find out more on their website: lnkd.in/eKedJyG8.