Neurological Alliance of Scotland
@neuroalscotland.bsky.social
The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
Our next policy group meeting is on Weds 5 November, chaired by Dr Claire Winchester, Head of Information and Engagement at the MS Trust. We'll also be joined by Liam McArtur MSP to discuss the Assisted Dying (Scotland) Bill.
Registration open to members only - alice@scottishneurological.org.uk.
Registration open to members only - alice@scottishneurological.org.uk.
October 29, 2025 at 4:07 PM
Our next policy group meeting is on Weds 5 November, chaired by Dr Claire Winchester, Head of Information and Engagement at the MS Trust. We'll also be joined by Liam McArtur MSP to discuss the Assisted Dying (Scotland) Bill.
Registration open to members only - alice@scottishneurological.org.uk.
Registration open to members only - alice@scottishneurological.org.uk.
A warm welcome to our newest members- @panspandas-scot.bsky.social 👏
PANS PANDAS Scotland's purpose is to support the community affected by PANS and PANDAS in Scotland through raising awareness, sharing information and providing opportunities for the community to connect.
www.panspandas.scot
PANS PANDAS Scotland's purpose is to support the community affected by PANS and PANDAS in Scotland through raising awareness, sharing information and providing opportunities for the community to connect.
www.panspandas.scot
PANS PANDAS Scotland
Join us in supporting children and families impacted by PANS and PANDAS. Learn about our services, resources, and professional support.
www.panspandas.scot
October 28, 2025 at 3:33 PM
A warm welcome to our newest members- @panspandas-scot.bsky.social 👏
PANS PANDAS Scotland's purpose is to support the community affected by PANS and PANDAS in Scotland through raising awareness, sharing information and providing opportunities for the community to connect.
www.panspandas.scot
PANS PANDAS Scotland's purpose is to support the community affected by PANS and PANDAS in Scotland through raising awareness, sharing information and providing opportunities for the community to connect.
www.panspandas.scot
We are delighted to see the huge success of the new film "I Swear", the true life story of Tourette campaigner John Davidson MBE.
Congratulations to NAoS member, Tourette Scotland, who were actively involved in bringing the lived experience of TS to the screen. 👏
bit.ly/3WhKjXx
Congratulations to NAoS member, Tourette Scotland, who were actively involved in bringing the lived experience of TS to the screen. 👏
bit.ly/3WhKjXx
I SWEAR - Official Trailer | STUDIOCANAL
I SWEAR starring Robert Aramayo will be released in cinemas October 10th 2025. Diagnosed with Tourette’s at age 15, John Davidson faced and overcame many hardships from adolescence and early adulthood as a result of what was a little known and entirely misunderstood condition in 1980’s Britain. I SWEAR is a funny, heartfelt and moving account of John’s experiences. Written and directed by BAFTA-nominated filmmaker Kirk Jones (Waking Ned, Nanny McPhee), I SWEAR stars Robert Aramayo (The Rings of Power, The King's Man, Behind Her Eyes) as John Davidson. Supporting cast includes three-time BAFTA nominee Maxine Peake (Words of War, The Theory of Everything, Say Nothing), BAFTA-winner Shirley Henderson (Bridget Jones: Mad About the Boy, Trainspotting), and Cannes Best Actor Award winner & Golden Lion winner Peter Mullan (War Horse, The Magdalene Sisters). #iswear #robertaramayo #kirkjones #tourettes #studiocanal Visit our website for more: https://www.studiocanal.co.uk
bit.ly
October 21, 2025 at 3:39 PM
We are delighted to see the huge success of the new film "I Swear", the true life story of Tourette campaigner John Davidson MBE.
Congratulations to NAoS member, Tourette Scotland, who were actively involved in bringing the lived experience of TS to the screen. 👏
bit.ly/3WhKjXx
Congratulations to NAoS member, Tourette Scotland, who were actively involved in bringing the lived experience of TS to the screen. 👏
bit.ly/3WhKjXx
NAoS member, Compass Therapy Support, are hosting an open day at their centre in Edinburgh from 2-4pm on Thurs 20 November.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
October 21, 2025 at 3:29 PM
NAoS member, Compass Therapy Support, are hosting an open day at their centre in Edinburgh from 2-4pm on Thurs 20 November.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
Compass support people with neurological conditions to maintain their physical and mental wellbeing.
Register your place by emailing Archie at Archie@wearecompass.org.uk.
This #MigrainAwarenessWeek, @themigrainetrust.bsky.social have published new research which shows that poor understanding of migraine has devastating implications for careers and personal lives of those with condition.
Read more here: bit.ly/3IwqNDr
Read more here: bit.ly/3IwqNDr
Poor understanding of migraine has devastating implications for careers and personal lives of those with condition - The Migraine Trust
New research highlights gap in public understanding of what migraine means and reality of those living with condition. Charity launches new film to highlight workplace impacts.
bit.ly
September 22, 2025 at 11:19 AM
This #MigrainAwarenessWeek, @themigrainetrust.bsky.social have published new research which shows that poor understanding of migraine has devastating implications for careers and personal lives of those with condition.
Read more here: bit.ly/3IwqNDr
Read more here: bit.ly/3IwqNDr
Reposted by Neurological Alliance of Scotland
We are kicking off #MigraineAwarenessWeek with our brand-new campaign film which illustrates what #MigraineMeans for many of the one in seven people living with the condition. youtu.be/19x0y14g8iI
Migraine Means - The Migraine Trust 2025
YouTube video by The Migraine Trust
youtu.be
September 22, 2025 at 8:05 AM
We are kicking off #MigraineAwarenessWeek with our brand-new campaign film which illustrates what #MigraineMeans for many of the one in seven people living with the condition. youtu.be/19x0y14g8iI
We are delighted to welcome Aberdeen Independent MS (AIMS) as our newest member.
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
September 18, 2025 at 8:42 AM
We are delighted to welcome Aberdeen Independent MS (AIMS) as our newest member.
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/
@cerebralpalsyscot.bsky.social are hosting their annual conference on 8 October 2025.
Find out more and register your free place here: cerebralpalsyscotland.org.uk/whats-on/ann...
Find out more and register your free place here: cerebralpalsyscotland.org.uk/whats-on/ann...
Annual conference - Cerebral Palsy Scotland
Supported by Digby Brown Solicitors, the Cerebral Palsy Scotland conference and exhibition is Scotland’s only annual event focussing on cerebral palsy. The 12th annual Cerebral Palsy Scotland…
cerebralpalsyscotland.org.uk
September 16, 2025 at 3:47 PM
@cerebralpalsyscot.bsky.social are hosting their annual conference on 8 October 2025.
Find out more and register your free place here: cerebralpalsyscotland.org.uk/whats-on/ann...
Find out more and register your free place here: cerebralpalsyscotland.org.uk/whats-on/ann...
Delighted to announce Shelley Gray, member of the Scottish Human Rights Commission, will be joining our AGM on 24 Sept as our guest speaker. Shelley will cover the work of the commission, what taking a 'human rights-based approach' to policy means and how we can use human rights in the third sector.
September 10, 2025 at 12:14 PM
Delighted to announce Shelley Gray, member of the Scottish Human Rights Commission, will be joining our AGM on 24 Sept as our guest speaker. Shelley will cover the work of the commission, what taking a 'human rights-based approach' to policy means and how we can use human rights in the third sector.
It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
September 5, 2025 at 10:45 AM
It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.
On Thursday 4 September, we will be meeting the Minister for Public Health and Women's Health, @jennimintomsp.bsky.social to discuss the outstanding elements of the #neuroframework2020-2025 and the importance of a specific ongoing strategy for neurological conditions.
September 2, 2025 at 3:00 PM
On Thursday 4 September, we will be meeting the Minister for Public Health and Women's Health, @jennimintomsp.bsky.social to discuss the outstanding elements of the #neuroframework2020-2025 and the importance of a specific ongoing strategy for neurological conditions.
Charlotte's story reinforces the recommendations from our report (Today's Challenge, Tomorrow's Hope) of the critical need for co-ordination of care, better system awareness of neurological conditions and investment in neurology services to reduce diagnostic delays.
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
'Eating disorder misdiagnosis left me with PTSD'
Charlotte Chapman-Hart tells of her experience of a lack of coordinated and informed care.
www.bbc.co.uk
August 19, 2025 at 11:12 AM
Charlotte's story reinforces the recommendations from our report (Today's Challenge, Tomorrow's Hope) of the critical need for co-ordination of care, better system awareness of neurological conditions and investment in neurology services to reduce diagnostic delays.
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
We're looking forward to sharing our #2026holyroodmanifesto with our policy group at our next meeting which is coming up on 27th August. The meeting will be chaired by Rachel Edwards, CEO of @epilepsyconnect.bsky.social
August 18, 2025 at 2:16 PM
We're looking forward to sharing our #2026holyroodmanifesto with our policy group at our next meeting which is coming up on 27th August. The meeting will be chaired by Rachel Edwards, CEO of @epilepsyconnect.bsky.social
We are looking for new trustees to join our board!
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
August 13, 2025 at 2:32 PM
We are looking for new trustees to join our board!
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
To be eligible, you must work or be an accredited voluntary representative for a member charity.
Please get in touch with Hester at admin@scottishneurological.org.uk for more information.
Applications will close on the 27 August.
Reposted by Neurological Alliance of Scotland
❗️📢 Key genetic differences found in people with ME/CFS
Read more on DecodeME’s website 👇
www.decodeme.org.uk/initial-dna-...
#DecodeMEResults #DecodeME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis
Read more on DecodeME’s website 👇
www.decodeme.org.uk/initial-dna-...
#DecodeMEResults #DecodeME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis
August 6, 2025 at 6:34 PM
❗️📢 Key genetic differences found in people with ME/CFS
Read more on DecodeME’s website 👇
www.decodeme.org.uk/initial-dna-...
#DecodeMEResults #DecodeME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis
Read more on DecodeME’s website 👇
www.decodeme.org.uk/initial-dna-...
#DecodeMEResults #DecodeME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis
Reposted by Neurological Alliance of Scotland
The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research.
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
August 7, 2025 at 9:20 AM
The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research.
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
1 in 3 carers who responded to the My Neuro Survey said that they are unable to manage their own health and wellbeing, with over half (53%) living with a long-term health condition of their own.
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
July 22, 2025 at 8:36 AM
1 in 3 carers who responded to the My Neuro Survey said that they are unable to manage their own health and wellbeing, with over half (53%) living with a long-term health condition of their own.
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC
69% of carers who responded to the My Neuro Survey said that mental health services were not meeting their child's needs.
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
July 21, 2025 at 4:52 PM
69% of carers who responded to the My Neuro Survey said that mental health services were not meeting their child's needs.
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
A further one in five children cannot access any mental health support at all.
This is unacceptable.
Read our reccomendations here: bit.ly/4lwLdud
Could you be a NAoS trustee?
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
July 16, 2025 at 11:28 AM
Could you be a NAoS trustee?
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
Applications are now open for candidates to join our board.
To be eligible you must work for a NAoS member charity.
For more info on how to apply, get in touch with us at info@scottishneurological.org.uk.
Applications close: Wed 27 August
Two thirds of adults living with a neurological condition in Scotland who responded to the My Neuro Survey say life is difficult to cope with and their condition has an impact on their mental health.
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
July 16, 2025 at 11:24 AM
Two thirds of adults living with a neurological condition in Scotland who responded to the My Neuro Survey say life is difficult to cope with and their condition has an impact on their mental health.
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC
Following the publication of our report, 'Today's Challenge, Tomorrow's Hope', the Scotsman has published an op-ed by NAoS Programme Director, Alice Struthers, on the urgent need to prioritise investment into neurological services and support.
www.scotsman.com/news/opinion...
www.scotsman.com/news/opinion...
Why there's an urgent need to help the million Scots with a neurological condition
Conditions like dementia, migraines and epilepsy are all too common, but many neurological patients in Scotland struggle to get the help they need
www.scotsman.com
July 15, 2025 at 10:40 AM
Following the publication of our report, 'Today's Challenge, Tomorrow's Hope', the Scotsman has published an op-ed by NAoS Programme Director, Alice Struthers, on the urgent need to prioritise investment into neurological services and support.
www.scotsman.com/news/opinion...
www.scotsman.com/news/opinion...
Did you see us on BBC Scotland at Seven last night?
Alice and Donald were raising awareness of our new report which reveals that 2 in 3 adults with neurological conditions are struggle to cope and unpaid carers at breaking point.
Catch the interview on iPlayer at 13.36 mins: bit.ly/4530r3l
Alice and Donald were raising awareness of our new report which reveals that 2 in 3 adults with neurological conditions are struggle to cope and unpaid carers at breaking point.
Catch the interview on iPlayer at 13.36 mins: bit.ly/4530r3l
Reporting Scotland - News at Seven: 09/07/2025
More from the day’s top stories and communities across Scotland.
www.bbc.co.uk
July 10, 2025 at 2:35 PM
Did you see us on BBC Scotland at Seven last night?
Alice and Donald were raising awareness of our new report which reveals that 2 in 3 adults with neurological conditions are struggle to cope and unpaid carers at breaking point.
Catch the interview on iPlayer at 13.36 mins: bit.ly/4530r3l
Alice and Donald were raising awareness of our new report which reveals that 2 in 3 adults with neurological conditions are struggle to cope and unpaid carers at breaking point.
Catch the interview on iPlayer at 13.36 mins: bit.ly/4530r3l
“Better support could help people live healthier, more productive lives. It’s like being stuck in purgatory.”
Donald has dystonia — his story shows why we need urgent investment in neurology. Read more www.dailyrecord.co.uk/news/scottis...
#TodaysChallengeTomorrowsHope #VitalSupportNeeded
Donald has dystonia — his story shows why we need urgent investment in neurology. Read more www.dailyrecord.co.uk/news/scottis...
#TodaysChallengeTomorrowsHope #VitalSupportNeeded
Dad with 'twisted neck' condition urges Holyrood to act for invisible patients
“It’s not life-threatening, but it’s life-changing. I’ve lived with this condition for 40 years and still feel like I’m falling through the cracks.”
www.dailyrecord.co.uk
July 9, 2025 at 4:06 PM
“Better support could help people live healthier, more productive lives. It’s like being stuck in purgatory.”
Donald has dystonia — his story shows why we need urgent investment in neurology. Read more www.dailyrecord.co.uk/news/scottis...
#TodaysChallengeTomorrowsHope #VitalSupportNeeded
Donald has dystonia — his story shows why we need urgent investment in neurology. Read more www.dailyrecord.co.uk/news/scottis...
#TodaysChallengeTomorrowsHope #VitalSupportNeeded
We've made front page news! 👏
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
July 9, 2025 at 10:07 AM
We've made front page news! 👏
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.
Read the full article here:
www.heraldscotland.com/news/2529755...
NEW: Scotland’s ‘invisible’ patients and carers are falling through the cracks.
2 in 3 adults with a neurological condition struggle to cope — carers are at breaking point.
It’s time for real action.
Read our report here ➡️ bit.ly/4eCQfme
#Neurology #Scotland #UnpaidCarers #NAoS
2 in 3 adults with a neurological condition struggle to cope — carers are at breaking point.
It’s time for real action.
Read our report here ➡️ bit.ly/4eCQfme
#Neurology #Scotland #UnpaidCarers #NAoS
bit.ly
July 9, 2025 at 9:34 AM
NEW: Scotland’s ‘invisible’ patients and carers are falling through the cracks.
2 in 3 adults with a neurological condition struggle to cope — carers are at breaking point.
It’s time for real action.
Read our report here ➡️ bit.ly/4eCQfme
#Neurology #Scotland #UnpaidCarers #NAoS
2 in 3 adults with a neurological condition struggle to cope — carers are at breaking point.
It’s time for real action.
Read our report here ➡️ bit.ly/4eCQfme
#Neurology #Scotland #UnpaidCarers #NAoS