Sarah Swenson
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neodrswenson.bsky.social
Sarah Swenson
@neodrswenson.bsky.social
Neonatologist trying to figure out how to better support families impacted by the NICU, advocating for improved access to perinatal mental healthcare, she/her, views are my own #Neosky
Yay! Can’t wait!
August 16, 2025 at 12:55 AM
We’ll also share strategies for promoting wellbeing amongst NICU team members & advocating within your institution for more embedded psychosocial support for NICU families. Hope to see you there! @lamiasoghier.bsky.social @joannelagattamd.bsky.social @nicupodcast.bsky.social @unmccom.bsky.social
July 16, 2025 at 8:41 PM
100%! Effective screening programs do more than screen. It’s not about checking a box or patting ourselves on the back, it’s about moving the dial to improve support for families who have experienced the stress and trauma of a NICU stay, both during hospitalization and after discharge!
May 20, 2025 at 3:16 PM
Thanks to @springernature.com for the opportunity to share this work.

If you want to learn more about screening & supporting parent mental health, check out our upcoming pre-symposium @neoconsortium.bsky.social workshop

@neotecan.bsky.social @nicupodcast.bsky.social @neojusticecollab.bsky.social
May 20, 2025 at 3:12 PM
There is still a lot of work to do to better understand the experiences of NICU parents & how best to support them, including their mental health. I hope to partner with more NICU families & parent organizations in this work!

Thank you @unmccom.bsky.social & UMN colleagues for supporting this work
May 20, 2025 at 3:12 PM
Parent input is essential to determine optimal screening practices. We tracked percent of screens declined in addition to parent surveys, which was helpful, and more work is needed to understand what is an expected/acceptable rate, and what indicates a need to further improve local programs.
May 20, 2025 at 3:12 PM
Our screening algorithm was not followed perfectly, which we think was due to using 2 screens (depression & anxiety) & different thresholds for referral for mothers & partners. Electronic screening may improve this.

More work is needed to understand optimal thresholds for referral for NICU parents
May 20, 2025 at 3:12 PM
Screening that is inclusive of fathers & partners is essential. Efforts should be made to ensure screening & educational materials as well as available resources include all parents.

NB: The National Maternal Mental Health Hotline can be used by any parent who needs help in real time 1-833-852-6262
May 20, 2025 at 3:12 PM
Without universal screening using validated tools, we risk missing opportunities to support families in the NICU, especially later in the NICU stay when they may have fewer interactions with the social work team.

More work is needed to understand how best to support parents during long NICU stays.
May 20, 2025 at 3:12 PM
In summary, we found that our standardized perinatal mental health screening program improved detection of mental health concerns beyond the first few weeks of admission. This is important because many NICUs rely on informal assessments to determine what support parents might find helpful.
May 20, 2025 at 3:12 PM
All neonatologists & social workers identified standardized mental health screening in the NICU as valuable. However, the workload was not perceived as manageable for the social work team.

Quality screening takes time to perform, & systems need to account for this to ensure screening is effective
May 20, 2025 at 12:22 PM
Our QI team included parents of children who were previously hospitalized in the NICU. To further include parent perspectives, we asked parents about screening using short surveys at each interval. The majority of parents identified screening as valuable & did not find screens difficult to complete
May 20, 2025 at 12:09 PM
For partners, a higher percent had scores concerning for depression and/or anxiety at 1 and 6 months compared to 2-4 months, though few were eligible for 6 month screens.

Compared to the pre-screening period, screening increased the percent of mental health concerns identified in partners fivefold
May 20, 2025 at 12:09 PM
We screened 80% of mothers and 72% of partners using EPDS and EPDS-3A.

60 (38%) parents had scores concerning for depression and/or anxiety. A higher percent of mothers had scores concerning for depression and/or anxiety at 4-6 months
May 20, 2025 at 12:09 PM
Prior to screening, our social work team identified mental health concerns in 52 parents, primarily in mothers (94%) and the majority identified within 1 week of birth (73%). 12 concerns were detected at or after 1 month.
May 20, 2025 at 12:09 PM
The only parents we did not try to screen were those that were already receiving mental health support or those for whom we did not have resources to support because they lived outside the US or were incarcerated. Careful consideration should be given to exclusion criteria to not worsen disparities
May 19, 2025 at 8:30 PM
Eligibility criteria for screening is easier in outpatient settings, although most clinics are only screening mothers. But there are many barriers to being at bedside in the NICU. We wanted to support as many parents as we could
May 19, 2025 at 8:30 PM
Although more work needs to be done to determine optimal screening intervals for parents in the NICU, a higher percentage of parents had screening scores concerning for depression and/or anxiety at 4 months and 6 months. Programs that screen only once may miss opportunities to support these parents.
May 19, 2025 at 8:07 PM
We screened parents of babies who were 1, 2, 4 and 6 months old. We did this not only because these are the screening intervals used at well newborn visits but also because we know symptoms can change over time. The trade off is that multiple screening intervals creates more work for screening teams
May 19, 2025 at 8:07 PM
3) how do parents view screening @fcctaskforce.bsky.social @hopeforhie.org @necsociety.bsky.social and 4) is the workload associated with screening manageable for our social work team?
May 19, 2025 at 7:56 PM