Nancy Goodman
@nancygoodman.bsky.social
PRV reauthorization, Give Kids a Chance Act, Race for Children Act. Mom to 2 awesome humans, missing Jacob (10), problem: patents don’t incentivize pediatric drug development.
The Senate did pass the Gabriella Miller Kids First Act, but we have gone backwards.
Today, the PRV program has expired for the first time in 12 years. Now, after yielding 65 new drugs for kids, there is no incentive for companies to develop drugs expressly for kids with cancer
December 28, 2024 at 9:29 PM
The Senate did pass the Gabriella Miller Kids First Act, but we have gone backwards.
Today, the PRV program has expired for the first time in 12 years. Now, after yielding 65 new drugs for kids, there is no incentive for companies to develop drugs expressly for kids with cancer
But 3 hours before a scheduled vote, to the surprise of the country, the funding bill fell apart. What Congress ultimately passed was a stripped down bill from which the PRV and the Give Kids a Chance Act had been dropped. Other critical pediatric cancer bills had been stripped as well
December 28, 2024 at 9:24 PM
But 3 hours before a scheduled vote, to the surprise of the country, the funding bill fell apart. What Congress ultimately passed was a stripped down bill from which the PRV and the Give Kids a Chance Act had been dropped. Other critical pediatric cancer bills had been stripped as well
Hey Sam, I’m a faux pediatric oncologist!
December 17, 2024 at 1:36 PM
Hey Sam, I’m a faux pediatric oncologist!