Nancy Goodman
nancygoodman.bsky.social
Nancy Goodman
@nancygoodman.bsky.social
PRV reauthorization, Give Kids a Chance Act, Race for Children Act. Mom to 2 awesome humans, missing Jacob (10), problem: patents don’t incentivize pediatric drug development.
We went into action. Social media stories blew up the internet. We were covered by CNN, ABC, MSNBC, STATNews, Newsweek, Rolling Stones, The Bulkward.

We had one more chance. At 11:50 pm, 12/20/24, the last hour of this Congress, the Senate UC’ed our bills. Rand Paul objected. The vote failed.
December 28, 2024 at 9:29 PM
We were elated on December 17th when Congress included our pediatric cancer drug development bills, the reauthorization of the pediatric priority review voucher program and the Give Kids a Chance Act, in the federal end-of-year funding bill. We were so close to victory.
December 28, 2024 at 9:24 PM
Yes. I’m glad. But kids with cancer are still suffering. When it is their turn to get the care they need?
We stopped extreme MAGA Republicans from shutting down the government and crashing the economy.

The American people have won this round.

Far right billionaires have lost.

The struggle continues in the new year.
December 21, 2024 at 6:45 AM
GREAT NEWS!
Congress’ end-of-year bill includes our bills: PRV & Give Kids a Chance Act!

It also includes Innovations, AKACA, & Kids 2.0!

Goal: passage by December 20!
December 17, 2024 at 10:36 PM