Natalia Pozuelo
@name-natalia.bsky.social
@theweekendmsnow.bsky.social love the show btw, im 27 yr old living with rare disease MPS I,
Lysosomal storage disease
& I need researchers to find way to stop my disease progression, but congress doesn’t realize their stopping this research
Lysosomal storage disease
& I need researchers to find way to stop my disease progression, but congress doesn’t realize their stopping this research
November 23, 2025 at 1:54 PM
@theweekendmsnow.bsky.social love the show btw, im 27 yr old living with rare disease MPS I,
Lysosomal storage disease
& I need researchers to find way to stop my disease progression, but congress doesn’t realize their stopping this research
Lysosomal storage disease
& I need researchers to find way to stop my disease progression, but congress doesn’t realize their stopping this research
@velshi.com
Thank you John Harwood for sharing why we need research & how dangerous these cuts are…I too had my life saved from years worth of research at NIH…I had a life saving bone marrow transplant in 2008….it is because of this research I am here…this is very sad to see
Thank you John Harwood for sharing why we need research & how dangerous these cuts are…I too had my life saved from years worth of research at NIH…I had a life saving bone marrow transplant in 2008….it is because of this research I am here…this is very sad to see
June 15, 2025 at 4:01 PM
@velshi.com
Thank you John Harwood for sharing why we need research & how dangerous these cuts are…I too had my life saved from years worth of research at NIH…I had a life saving bone marrow transplant in 2008….it is because of this research I am here…this is very sad to see
Thank you John Harwood for sharing why we need research & how dangerous these cuts are…I too had my life saved from years worth of research at NIH…I had a life saving bone marrow transplant in 2008….it is because of this research I am here…this is very sad to see
Reposted by Natalia Pozuelo
Carlos Alcaraz had never come back to win a match after dropping the first two sets.
Until Sunday.
He's the first player to save three match points in a Roland Garros final and go on to win.
Until Sunday.
He's the first player to save three match points in a Roland Garros final and go on to win.
June 8, 2025 at 7:03 PM
Carlos Alcaraz had never come back to win a match after dropping the first two sets.
Until Sunday.
He's the first player to save three match points in a Roland Garros final and go on to win.
Until Sunday.
He's the first player to save three match points in a Roland Garros final and go on to win.
Reposted by Natalia Pozuelo
BREAKING: Carlos Alcaraz wins the French Open final in five sets after saving 3 match points against Jannik Sinner.
Carlos Alcaraz wins French Open final in five sets after saving 3 match points against Jannik Sinner
The 22-year-old Alcaraz owns a tour-leading 21-1 record on clay this year and has beaten the 23-year-old Sinner in their past four meetings.
nbcnews.to
June 8, 2025 at 7:04 PM
BREAKING: Carlos Alcaraz wins the French Open final in five sets after saving 3 match points against Jannik Sinner.
I am alive today because of research that was funded through federal money, it is tragic that these cuts are happening, and it is tragic that a cure for the disease I live with will not be able to happen in my lifetime because of these cuts….so many people depend on these workers for a better
April 17, 2025 at 4:36 PM
I am alive today because of research that was funded through federal money, it is tragic that these cuts are happening, and it is tragic that a cure for the disease I live with will not be able to happen in my lifetime because of these cuts….so many people depend on these workers for a better
@stephruhle.bsky.social thank you for being our therapy and voice this week …..
April 12, 2025 at 3:16 AM
@stephruhle.bsky.social thank you for being our therapy and voice this week …..
It is because research that my life was saved as at Duke Children’s Hospital in 2008, & why I’m still here today…we must not cut this essential means of access to current & future treatment for so many
March 8, 2025 at 8:57 PM
It is because research that my life was saved as at Duke Children’s Hospital in 2008, & why I’m still here today…we must not cut this essential means of access to current & future treatment for so many
Reposted by Natalia Pozuelo
Your dignity honors the bravery of the Ukrainian people.
Be strong, be brave, be fearless.
You are never alone, dear President Zelenskyy.
We will continue working with you for a just and lasting peace.
Be strong, be brave, be fearless.
You are never alone, dear President Zelenskyy.
We will continue working with you for a just and lasting peace.
February 28, 2025 at 9:06 PM
Your dignity honors the bravery of the Ukrainian people.
Be strong, be brave, be fearless.
You are never alone, dear President Zelenskyy.
We will continue working with you for a just and lasting peace.
Be strong, be brave, be fearless.
You are never alone, dear President Zelenskyy.
We will continue working with you for a just and lasting peace.
Reposted by Natalia Pozuelo
well said Tony Coelho, (co-author of ADA act).
February 4, 2025 at 4:41 PM
well said Tony Coelho, (co-author of ADA act).
Please consider spreading the word about Canadian, adaptive fashion designer, Izzy Camilleri, & her brand IZ Adaptive, the first ever brand to create seamless using IZ Seamless Technology ™ pants for people in wheelchairs and clothes for those with limited mobility
izadaptive.com
izadaptive.com
February 4, 2025 at 5:07 AM
Please consider spreading the word about Canadian, adaptive fashion designer, Izzy Camilleri, & her brand IZ Adaptive, the first ever brand to create seamless using IZ Seamless Technology ™ pants for people in wheelchairs and clothes for those with limited mobility
izadaptive.com
izadaptive.com
Reposted by Natalia Pozuelo
The president's false scapegoating of people with disabilities for last night's terrible plane crash over the Potomac is a cruel, politically opportunistic, and shameful act that only increases the harm and grief our nation is experiencing.
Our hearts are with all those impacted by this tragedy.
Our hearts are with all those impacted by this tragedy.
January 30, 2025 at 7:45 PM
The president's false scapegoating of people with disabilities for last night's terrible plane crash over the Potomac is a cruel, politically opportunistic, and shameful act that only increases the harm and grief our nation is experiencing.
Our hearts are with all those impacted by this tragedy.
Our hearts are with all those impacted by this tragedy.
@aapd-disability.bsky.social the disabled are not to blame, and yes America disability is included DEI initiatives
January 30, 2025 at 7:34 PM
@aapd-disability.bsky.social the disabled are not to blame, and yes America disability is included DEI initiatives
Dear Bluesky community
My name is Natalia, I work with Canadian adaptive fashion designer Izzy Camilleri, she needs our help and I’m calling on this compassionate community to use their network for greater good
You see Izzy is founder & CEO of IZ Adaptive she runs her small but mighty
My name is Natalia, I work with Canadian adaptive fashion designer Izzy Camilleri, she needs our help and I’m calling on this compassionate community to use their network for greater good
You see Izzy is founder & CEO of IZ Adaptive she runs her small but mighty
January 28, 2025 at 2:44 AM
Dear Bluesky community
My name is Natalia, I work with Canadian adaptive fashion designer Izzy Camilleri, she needs our help and I’m calling on this compassionate community to use their network for greater good
You see Izzy is founder & CEO of IZ Adaptive she runs her small but mighty
My name is Natalia, I work with Canadian adaptive fashion designer Izzy Camilleri, she needs our help and I’m calling on this compassionate community to use their network for greater good
You see Izzy is founder & CEO of IZ Adaptive she runs her small but mighty
Reposted by Natalia Pozuelo
January 24, 2025 at 3:23 PM
Reposted by Natalia Pozuelo
WCK partner food trucks are serving fire-hit Southern California, offering meals to evacuees and responders. The Kogi BBQ truck is in La Cañada, near Los Angeles, stationed at a school close to a fire station so rescuers can easy access a meal. #ChefsForCalifornia
January 10, 2025 at 4:07 PM
WCK partner food trucks are serving fire-hit Southern California, offering meals to evacuees and responders. The Kogi BBQ truck is in La Cañada, near Los Angeles, stationed at a school close to a fire station so rescuers can easy access a meal. #ChefsForCalifornia