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nadinepinede.bsky.social
@nadinepinede.bsky.social
EDS Resources Continued:

Chronic Pain and EDS: www.ehlers-danlos.com/chronic-pain/
Chronic Illness Ally Toolkit by Kirsten Schowalter: kirstenschowalter.com
Book: Disjointed – Essays from the EDS Community: Editor: Diana Jovin
Podcast: Invisible Not Broken: www.invisiblenotbroken.com
Home - The Ehlers Danlos Society
www.ehlers-danlos.com
August 8, 2025 at 3:37 PM
EDS Resources:

The Ehlers-Danlos Society: www.ehlers-danlos.com
Hypermobility Syndromes Association (UK): www.hypermobility.org
EDS Toolkit for GPs: www.rcgp.org.uk/eds-toolkit
Home - The Ehlers Danlos Society
www.ehlers-danlos.com
August 8, 2025 at 3:36 PM
A retreat that will help those of us navigating invisible disabilities, chronic fatigue, EDS, or nervous system dysregulation. It’s a space for deep listening, poetry, mindful rest, and reconnecting with the healing rhythms of nature.
August 8, 2025 at 3:35 PM
My colleagues and I are offering a creativity and wellness retreat in Arles, France next spring...
August 8, 2025 at 3:34 PM
This month and always
Believe us
Make space
Lead with care
Share the stories
#ADA35 #DisabilityPride #AccessMatters #InvisibleDisabilities
July 25, 2025 at 10:04 PM
We honor those
who turn pain into power.
Barbara Jordan (MS)
Audre Lorde (cancer)
Frida Kahlo (chronic pain)
Octavia Butler (dyslexia, anxiety)
July 25, 2025 at 10:04 PM
I live with Ehlers-Danlos Syndrome.
People often say,
“But you don’t look sick.”
Invisible doesn’t mean imaginary.
July 25, 2025 at 10:04 PM
Not every disability can be seen.
Chronic illness. Mental health.
Fatigue. Pain.
More common than you think.
July 25, 2025 at 10:04 PM
July is Disability Pride Month
and the 35th anniversary of the ADA,
a civil rights law signed in 1990
to open doors for all.
July 25, 2025 at 10:04 PM