Mrs Spinster
@mrsspinster.bsky.social
she / her. Mother. Engineer. I just need twenty minutes where no one comes near me. Wear a mask. Long COVID parent.
Thought of you when I saw the Tony Geary news. So much sadness.
December 15, 2025 at 7:11 PM
Thought of you when I saw the Tony Geary news. So much sadness.
It's such a great tool for being able to use actual metrics instead of vibes for pacing. Or to see when your baseline HR is elevated, so everything's going to take extra effort that day. Or to see when meds are actually working and changing things! :D Hope it helps you!!
December 5, 2025 at 12:58 PM
It's such a great tool for being able to use actual metrics instead of vibes for pacing. Or to see when your baseline HR is elevated, so everything's going to take extra effort that day. Or to see when meds are actually working and changing things! :D Hope it helps you!!
One month after her Aug COVID infection she was expending about 20 pacepoints to get through maybe two classes. This week she was using 3 pacepoints to get through four. Being able to see when / how she was overdoing it was instrumental in being able to figure out how to get her back.
December 5, 2025 at 11:52 AM
One month after her Aug COVID infection she was expending about 20 pacepoints to get through maybe two classes. This week she was using 3 pacepoints to get through four. Being able to see when / how she was overdoing it was instrumental in being able to figure out how to get her back.
Anyway, today I was reading my chart after my visit to the pulmonologist and would it be petty to send my former dr the "severe persistent asthma"?
I also almost cried again in the appt because it's so rare to just BE HEARD.
I also almost cried again in the appt because it's so rare to just BE HEARD.
November 26, 2025 at 12:10 AM
Anyway, today I was reading my chart after my visit to the pulmonologist and would it be petty to send my former dr the "severe persistent asthma"?
I also almost cried again in the appt because it's so rare to just BE HEARD.
I also almost cried again in the appt because it's so rare to just BE HEARD.
My husband got it for me last year. 🫤
November 23, 2025 at 2:21 AM
My husband got it for me last year. 🫤
Ugh. That was my only helpful suggestion, sorry. I love my daughter's, but would also be super frustrated if we kept having problems with it.
October 27, 2025 at 9:03 PM
Ugh. That was my only helpful suggestion, sorry. I love my daughter's, but would also be super frustrated if we kept having problems with it.
Do you have the 2.0 or the original? I've heard that the 2.0 is more reliable. (I also have gotten very responsive emails from them, but haven't had to troubleshoot anything extensively.)
October 27, 2025 at 9:00 PM
Do you have the 2.0 or the original? I've heard that the 2.0 is more reliable. (I also have gotten very responsive emails from them, but haven't had to troubleshoot anything extensively.)
That is great and terrible!
September 11, 2025 at 4:36 PM
That is great and terrible!
OH no! I hope you get meds and pass the stone quickly!
September 11, 2025 at 4:33 PM
OH no! I hope you get meds and pass the stone quickly!