Lynne Kinst
@mrskinst.bsky.social
Last weekend was the CCBDF Unite Walk. It was a beautiful day to raise awareness about bleeding disorders and raise money to support the great programs provided by CCBDF.
Thanks to all who supported Kinst-Carey for a Cure!
#uniteforbleedingdisorders #peer2peer #thankyou
Thanks to all who supported Kinst-Carey for a Cure!
#uniteforbleedingdisorders #peer2peer #thankyou
October 19, 2025 at 10:11 PM
Last weekend was the CCBDF Unite Walk. It was a beautiful day to raise awareness about bleeding disorders and raise money to support the great programs provided by CCBDF.
Thanks to all who supported Kinst-Carey for a Cure!
#uniteforbleedingdisorders #peer2peer #thankyou
Thanks to all who supported Kinst-Carey for a Cure!
#uniteforbleedingdisorders #peer2peer #thankyou
Just back from science camp and she will be swimming a 500 tomorrow!
Just 2 days left to collect donations for her swim-a-thon.
Every bit helps. Donations are due on Sunday. You can donate online or Venmo me and I’ll submit it. DM or text me for info…
#usaswimmingswimathon
Just 2 days left to collect donations for her swim-a-thon.
Every bit helps. Donations are due on Sunday. You can donate online or Venmo me and I’ll submit it. DM or text me for info…
#usaswimmingswimathon
October 4, 2025 at 4:29 AM
Just back from science camp and she will be swimming a 500 tomorrow!
Just 2 days left to collect donations for her swim-a-thon.
Every bit helps. Donations are due on Sunday. You can donate online or Venmo me and I’ll submit it. DM or text me for info…
#usaswimmingswimathon
Just 2 days left to collect donations for her swim-a-thon.
Every bit helps. Donations are due on Sunday. You can donate online or Venmo me and I’ll submit it. DM or text me for info…
#usaswimmingswimathon
It’s been hectic at our house and our fundraising efforts have stalled out a bit. She has raised $465 of her BIG $1500 goal! Her sights are set high because she is so grateful to have found her “thing” and an awesome team to do it with!
Every little bit would help!
#usaswimmingswimathon #swimteam
Every little bit would help!
#usaswimmingswimathon #swimteam
September 29, 2025 at 5:32 AM
It’s been hectic at our house and our fundraising efforts have stalled out a bit. She has raised $465 of her BIG $1500 goal! Her sights are set high because she is so grateful to have found her “thing” and an awesome team to do it with!
Every little bit would help!
#usaswimmingswimathon #swimteam
Every little bit would help!
#usaswimmingswimathon #swimteam
Genentech Advocacy and Access Summit. Collaborating with partners to talk about health care access. Always great to spend time with colleagues who are also friends.
#bleedingdisorders #advocacy #AccessToCare
#bleedingdisorders #advocacy #AccessToCare
September 25, 2025 at 4:55 AM
Genentech Advocacy and Access Summit. Collaborating with partners to talk about health care access. Always great to spend time with colleagues who are also friends.
#bleedingdisorders #advocacy #AccessToCare
#bleedingdisorders #advocacy #AccessToCare
“We felt betrayal. We learned resilience. We promise this will never happen again.”
#aidsmemorialgrove #bleedingdisorders #neveragain
#aidsmemorialgrove #bleedingdisorders #neveragain
September 23, 2025 at 11:07 PM
“We felt betrayal. We learned resilience. We promise this will never happen again.”
#aidsmemorialgrove #bleedingdisorders #neveragain
#aidsmemorialgrove #bleedingdisorders #neveragain
The CCA Swim-a-thon is on 10/11. Ashley would love you support - she is trying to raise $1500.
Donate online (select Ashley Kinst) or mail a check made out to CCA or Venmo me. DM for more information. All donations must be turned in by October 5.
www.ccaswimming.org/page/tu-money
Donate online (select Ashley Kinst) or mail a check made out to CCA or Venmo me. DM for more information. All donations must be turned in by October 5.
www.ccaswimming.org/page/tu-money
September 16, 2025 at 2:13 AM
The CCA Swim-a-thon is on 10/11. Ashley would love you support - she is trying to raise $1500.
Donate online (select Ashley Kinst) or mail a check made out to CCA or Venmo me. DM for more information. All donations must be turned in by October 5.
www.ccaswimming.org/page/tu-money
Donate online (select Ashley Kinst) or mail a check made out to CCA or Venmo me. DM for more information. All donations must be turned in by October 5.
www.ccaswimming.org/page/tu-money
It’s time for the CCBDF Unite Walk. We would love your support as we honor my dad.
uniteforbleedingdisorders.org/teams/15861
uniteforbleedingdisorders.org/teams/15861
September 16, 2025 at 1:02 AM
It’s time for the CCBDF Unite Walk. We would love your support as we honor my dad.
uniteforbleedingdisorders.org/teams/15861
uniteforbleedingdisorders.org/teams/15861
Reposted by Lynne Kinst
Don’t look away.
Rep. Debbie Wasserman Schultz after touring "Alligator Alcatraz": "These detainees are living in cages. The pictures you've seen don't do it just. They are essentially packed into cages. 34 detainees per cage...they get their drinking water & they brush their teeth where they poop, in the same unit"
July 12, 2025 at 8:04 PM
Don’t look away.
I just can’t - the news gets worse and worse
Reports indicate that several other red states are now considering opening camps similar to the one in Florida. Rep. Nancy Mace of South Carolina publicly requested a facility, tweeting, “Dear DHS: We’ve got a swamp and a dream. Let’s talk. South Carolina’s gators are ready.”
July 8, 2025 at 12:36 AM
I just can’t - the news gets worse and worse
Reposted by Lynne Kinst
I never want to hear another word about the GOP being the alleged pro life party....
Trump is now taking questions in front of the literal cages that will house migrants in DeSantis's new camp
July 1, 2025 at 4:15 PM
I never want to hear another word about the GOP being the alleged pro life party....
Reposted by Lynne Kinst
Big turnout in Roseville, CA - largest protest I’ve ever seen here.
June 14, 2025 at 8:09 PM
Big turnout in Roseville, CA - largest protest I’ve ever seen here.
Every day is a great day to advocate for #bleedingdisorders and #raredisease patients. It’s especially fun when you see a lot of friends. So many, that your group thinks you’re a celebrity but it’s just that the Capitol is like high school or a small college campus. 😂
#advocacyinaction #caleg
#advocacyinaction #caleg
May 8, 2025 at 3:14 AM
Every day is a great day to advocate for #bleedingdisorders and #raredisease patients. It’s especially fun when you see a lot of friends. So many, that your group thinks you’re a celebrity but it’s just that the Capitol is like high school or a small college campus. 😂
#advocacyinaction #caleg
#advocacyinaction #caleg
Time with my friends, colleagues and fellow EDs is always the very best. Fills my cup. Encourages my soul. Inspires my work. These people are some of the very best!!
#workfam❤️ #chapterstafforganization #inspired
#workfam❤️ #chapterstafforganization #inspired
April 30, 2025 at 3:03 AM
Time with my friends, colleagues and fellow EDs is always the very best. Fills my cup. Encourages my soul. Inspires my work. These people are some of the very best!!
#workfam❤️ #chapterstafforganization #inspired
#workfam❤️ #chapterstafforganization #inspired
Reposted by Lynne Kinst
🛑 For today's call to action: The Trump admin is expanding Schedule F.
This could strip civil service protections from thousands of federal workers, including scientists—replacing them with Trump loyalists.
🗓️ Public comment's still open—have at it!
🔗 www.regulations.gov/document/OPM...
This could strip civil service protections from thousands of federal workers, including scientists—replacing them with Trump loyalists.
🗓️ Public comment's still open—have at it!
🔗 www.regulations.gov/document/OPM...
April 24, 2025 at 5:00 PM
🛑 For today's call to action: The Trump admin is expanding Schedule F.
This could strip civil service protections from thousands of federal workers, including scientists—replacing them with Trump loyalists.
🗓️ Public comment's still open—have at it!
🔗 www.regulations.gov/document/OPM...
This could strip civil service protections from thousands of federal workers, including scientists—replacing them with Trump loyalists.
🗓️ Public comment's still open—have at it!
🔗 www.regulations.gov/document/OPM...
On World Hemophilia Day, I remember my dad - my inspiration and legacy for the advocacy I do for the #bleedingdisorder and #raredisease communities.
I also honor all the women and girls, like myself, who live with bleeding disorders. 🩸
#advocacy #education #familylegacy
I also honor all the women and girls, like myself, who live with bleeding disorders. 🩸
#advocacy #education #familylegacy
April 17, 2025 at 3:12 PM
On World Hemophilia Day, I remember my dad - my inspiration and legacy for the advocacy I do for the #bleedingdisorder and #raredisease communities.
I also honor all the women and girls, like myself, who live with bleeding disorders. 🩸
#advocacy #education #familylegacy
I also honor all the women and girls, like myself, who live with bleeding disorders. 🩸
#advocacy #education #familylegacy
Looking forward to another beautiful day in Paradise. Conference kicked off last night. The family can enjoy another day at the pool. 😍
#KinstFamilyFieldTrips #bleedingdisorders #advocacy #education
#KinstFamilyFieldTrips #bleedingdisorders #advocacy #education
April 5, 2025 at 8:25 PM
Looking forward to another beautiful day in Paradise. Conference kicked off last night. The family can enjoy another day at the pool. 😍
#KinstFamilyFieldTrips #bleedingdisorders #advocacy #education
#KinstFamilyFieldTrips #bleedingdisorders #advocacy #education
Yesterday, as others shared at the Celebration of Life I was taken right back to the moment I was told my dad had passed. It has been over 30 years but I still miss him & am so thankful I can do this work for the #bleedingdisorders community to help keep his memory alive.
#neverforget #missyoudaddy
#neverforget #missyoudaddy
March 29, 2025 at 4:57 PM
Yesterday, as others shared at the Celebration of Life I was taken right back to the moment I was told my dad had passed. It has been over 30 years but I still miss him & am so thankful I can do this work for the #bleedingdisorders community to help keep his memory alive.
#neverforget #missyoudaddy
#neverforget #missyoudaddy
Good morning from San Diego! Excited to see more friends, make more connections and learn more for our community today!
#bleedingdisorders #advocacy #education
#bleedingdisorders #advocacy #education
March 28, 2025 at 2:50 PM
Good morning from San Diego! Excited to see more friends, make more connections and learn more for our community today!
#bleedingdisorders #advocacy #education
#bleedingdisorders #advocacy #education
Exhibit hall will be opening soon. Come say hello to the California team at booth #515.
#BleedingDisorders #advocacy #education
#BleedingDisorders #advocacy #education
March 27, 2025 at 11:50 PM
Exhibit hall will be opening soon. Come say hello to the California team at booth #515.
#BleedingDisorders #advocacy #education
#BleedingDisorders #advocacy #education
Kicking off the official Day 1 of Hemophilia Federation of America Annual Symposium at the Advocacy Precon after a great afternoon and evening yesterday with fellow member organizations from across the country.
#bleedingdisorders #advocacy #patientvoice
#bleedingdisorders #advocacy #patientvoice
March 27, 2025 at 3:33 PM
Kicking off the official Day 1 of Hemophilia Federation of America Annual Symposium at the Advocacy Precon after a great afternoon and evening yesterday with fellow member organizations from across the country.
#bleedingdisorders #advocacy #patientvoice
#bleedingdisorders #advocacy #patientvoice
Off to San Diego for the Hemophilia Federation of America Annual Symposium. Hope to see lots of my colleagues and blood brothers and sisters there!
#worktravel #bloodfamily #sohappyitsinCA
#worktravel #bloodfamily #sohappyitsinCA
March 26, 2025 at 4:44 PM
Off to San Diego for the Hemophilia Federation of America Annual Symposium. Hope to see lots of my colleagues and blood brothers and sisters there!
#worktravel #bloodfamily #sohappyitsinCA
#worktravel #bloodfamily #sohappyitsinCA
While we’ve been doing a lot of sightseeing this week, our real purpose for coming was to join with our bleeding disorders community in Washington DC at this critical time to advocate for #bleedingdisorders and #raredisease.
#KinstFamilyFieldTrips #nbdf #washingtondays2025 #advocacy
#KinstFamilyFieldTrips #nbdf #washingtondays2025 #advocacy
March 7, 2025 at 2:29 PM
While we’ve been doing a lot of sightseeing this week, our real purpose for coming was to join with our bleeding disorders community in Washington DC at this critical time to advocate for #bleedingdisorders and #raredisease.
#KinstFamilyFieldTrips #nbdf #washingtondays2025 #advocacy
#KinstFamilyFieldTrips #nbdf #washingtondays2025 #advocacy
Off on our next adventure!
#kinstfamilyfieldtrips #washingtondc #history #advocacy #coolflightattendant
#kinstfamilyfieldtrips #washingtondc #history #advocacy #coolflightattendant
March 1, 2025 at 4:00 PM
Off on our next adventure!
#kinstfamilyfieldtrips #washingtondc #history #advocacy #coolflightattendant
#kinstfamilyfieldtrips #washingtondc #history #advocacy #coolflightattendant
February 28, 2025 at 2:36 PM