MPN Journal
@mpnjournal.bsky.social
The MPN Journal empowers patients and unlocks rich, patient-reported data that can drive future hematology research. 🔗 Learn more and start your journey: https://www.mpnjournal.com/
🚀 𝗣𝗿𝗼𝗱𝘂𝗰𝘁 𝗨𝗽𝗱𝗮𝘁𝗲: The MPN Journal is now smarter & easier than ever! Smarter charts, full medication control, weight tracking + big upgrades to lab results (SI & conventional units, smarter graphs, auto-conversion). 📊 #MPN #HealthTech
September 24, 2025 at 12:19 PM
🚀 𝗣𝗿𝗼𝗱𝘂𝗰𝘁 𝗨𝗽𝗱𝗮𝘁𝗲: The MPN Journal is now smarter & easier than ever! Smarter charts, full medication control, weight tracking + big upgrades to lab results (SI & conventional units, smarter graphs, auto-conversion). 📊 #MPN #HealthTech
📊 New questions, more data – for better research 🔬
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
August 15, 2025 at 10:39 AM
📊 New questions, more data – for better research 🔬
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
We’ve updated our questionnaire:
📝 One-time: privacy policy, country, height/weight, MPN diagnosis/family, alternative therapies, add your doctor.
🔄 Recurring: new side effects, symptoms, smoking/alcohol, menstrual/menopause, phlebotomy types.
💭 In the MPN Journal app, 50% of patients report fear of disease progression. Half of them rate it 8 or higher. It's time for more awareness and psychosocial support. #MPN #FearOfProgression #QualityOfLife #hematology
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July 25, 2025 at 3:26 PM
💭 In the MPN Journal app, 50% of patients report fear of disease progression. Half of them rate it 8 or higher. It's time for more awareness and psychosocial support. #MPN #FearOfProgression #QualityOfLife #hematology
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📌 𝗦𝘁𝗮𝘆 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱 𝗮𝗻𝗱 𝗢𝗻 𝗧𝗼𝗽
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
July 11, 2025 at 9:37 AM
📌 𝗦𝘁𝗮𝘆 𝗣𝗿𝗲𝗽𝗮𝗿𝗲𝗱 𝗮𝗻𝗱 𝗢𝗻 𝗧𝗼𝗽
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
Keep your appointments logged in your MPN Journal. Regularly update symptoms and notes before visits to stay prepared. After each consult, record treatment changes and don’t forget to schedule your next appointment! #MPN #PatientCare #ChronicIllness #HealthManagement
𝗪𝗵𝗮𝘁’𝘀 𝗻𝗲𝘄 𝗶𝗻 𝘁𝗵𝗲 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹? 📰
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
June 27, 2025 at 10:16 AM
𝗪𝗵𝗮𝘁’𝘀 𝗻𝗲𝘄 𝗶𝗻 𝘁𝗵𝗲 𝗠𝗣𝗡 𝗝𝗼𝘂𝗿𝗻𝗮𝗹? 📰
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
We share updates & insights based on your feedback — all in our News tab. Got ideas? Let’s build it together!
#MPNJournal #StayInformed #PatientEmpowerment #HealthData #ChronicDisease #Hematology
𝗙𝗜𝗚𝗛𝗧𝗜𝗡𝗚 𝗙𝗔𝗧𝗜𝗚𝗨𝗘 𝗪𝗜𝗧𝗛 𝗠𝗣𝗡 𝗝𝗢𝗨𝗥𝗡𝗔𝗟 – A patient’s story 💡🏃♂️ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experience—results may vary.
👉 See next post for more!
#MPN #MPNJournal #HealthData #PatientVoice
👉 See next post for more!
#MPN #MPNJournal #HealthData #PatientVoice
June 21, 2025 at 9:42 AM
𝗙𝗜𝗚𝗛𝗧𝗜𝗡𝗚 𝗙𝗔𝗧𝗜𝗚𝗨𝗘 𝗪𝗜𝗧𝗛 𝗠𝗣𝗡 𝗝𝗢𝗨𝗥𝗡𝗔𝗟 – A patient’s story 💡🏃♂️ Diagnosed with PV in 2020, I tracked symptoms daily & found a direct link between movement & fatigue. Exercise helped reduce symptoms. Personal experience—results may vary.
👉 See next post for more!
#MPN #MPNJournal #HealthData #PatientVoice
👉 See next post for more!
#MPN #MPNJournal #HealthData #PatientVoice
Attending #EHA2025 in Milan! Meet us to discover MPN Journal—a global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Let’s connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions
June 12, 2025 at 9:41 AM
Attending #EHA2025 in Milan! Meet us to discover MPN Journal—a global, patient-driven platform for everyone living with myeloproliferative neoplasms. Empowering patients, advancing research. Let’s connect!
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions
#MPNJournal #Hematology #empowerpatients #ClinicalResearchSolutions
𝐌𝐏𝐍 𝗪𝗼𝗿𝗹𝗱-𝗧𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗶𝗻𝗴 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗲𝗻 𝗘𝗨𝗥𝗢-𝗡𝗘𝗧 𝟮𝟬𝟮𝟱
On May 15 in Zürich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!
🔗 Info: www.h-och.ch/ueber-uns/ve...
#EURO_NET2025 #MPN #research #hematology #mpnjournal
On May 15 in Zürich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!
🔗 Info: www.h-och.ch/ueber-uns/ve...
#EURO_NET2025 #MPN #research #hematology #mpnjournal
June 6, 2025 at 7:37 AM
𝐌𝐏𝐍 𝗪𝗼𝗿𝗹𝗱-𝗧𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗶𝗻𝗴 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗲𝗻 𝗘𝗨𝗥𝗢-𝗡𝗘𝗧 𝟮𝟬𝟮𝟱
On May 15 in Zürich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!
🔗 Info: www.h-och.ch/ueber-uns/ve...
#EURO_NET2025 #MPN #research #hematology #mpnjournal
On May 15 in Zürich, John Hoogland showed how real-world data can reveal new patterns in MPN care. Thanks HOCH Health Ostschweiz for hosting!
🔗 Info: www.h-och.ch/ueber-uns/ve...
#EURO_NET2025 #MPN #research #hematology #mpnjournal