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mndeducation.bsky.social
MND Education
@mndeducation.bsky.social
82 followers 74 following 170 posts
The Education & Information team for the MND Association @mndassoc.bsky.social
Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.
Posts Replies Media Videos
mndeducation.bsky.social
Managing dysphagia in #MND needs a team effort

The MDT should collaborate to:
☑️screen people
☑️discuss equipment & feeding options eg gastrostomy
☑️maintain a nutritional care plan
☑️raise awareness with carers & families

Read more on our infosheet at mndassociation.org/propublicati...
#UKMAW2025
Screenshot of the first page of the MND Association's information sheet for health and social care professionals on managing dysphagia in motor neurone disease
November 21, 2025 at 10:48 AM
mndeducation.bsky.social
As a care worker for someone with #MND you play a key role in maintaining good nutrition at home, helping them:

☑️follow the nutritional care plan
☑️eat, drink & prepare tasty meals
☑️report any issues

Learn more information & practical tips in our guide: mndassociation.org/propublicati...
#UKMAW2025
Cover page of the MND Association's publication "Caring for a person with MND: A guide for care workers", available on www.mndassociation.org/propublications. The cover includes a picture of an old woman in a wheelchair with a younger woman helping her wipe her mouth. On the page there are also the logos of the MND Association and of the MND Professional's Community of Practice, along with the title and a lozenge reading "For health and social care professionals"
November 20, 2025 at 3:47 PM
mndeducation.bsky.social
Many people with #MND face swallowing issues, making eating & drinking difficult and increasing malnutrition risk

This can be challenging to manage as clinicians, but our infographic on dietetics & nutrition can help you understand NICE best practice

mndassociation.org/propublicati...
#UKMAW2025
MND Association's Infographic on dietetics and nutrition available to download on www.mndassociation.org/propublications
November 18, 2025 at 3:08 PM
mndeducation.bsky.social
We are supporting @bapen.bsky.social #UKMAW2025!

We'll share resources & information about the risks of malnutrition for people with #MND and how to manage them

Help spread the word and raise awareness!
Slide with an illustration of a group of diverse people above a blue banner reading "We are supporting UK Malnutrition Awareness Week! 17th-23rd November 2025. Ask, Look, Listen. We're all in this together". Underneath the banner there are the logos of the promoting organisations: BAPEN, Malnutrition Task Force and UK Malnutrition Awareness week
November 17, 2025 at 11:33 AM
mndeducation.bsky.social
Your feedback drives better support

It shapes our care and professionals' resources, making sure they are clear, relevant and practical

It also shapes our events, helping us respond to HSCPs' needs & new developments in #MND care

Read more on www.mndassociation.org/media/thumb-print!
screenshot of pages 14 and 15 of the Thumb Print magazine Autumn 2025 issue, showing an article titled "Your feedback driving better support"
November 10, 2025 at 9:09 AM
mndeducation.bsky.social
🔍Did you know you can access our full range of care information using our care information finder?

Try it out here: www.mndassociation.org/careinfofinder
Image description A screenshot of the care information finder with the title "Find information about symptoms, treatment and care". Several categories of information are underneath, with tick boxes for you to select.
November 7, 2025 at 10:27 AM
mndeducation.bsky.social
Thank you to all those who joined us for the 2025 #MND Professionals' Community of Practice Annual Networking Event!

Over 200 HSCPs met up in Birmingham last month to connect & explore MND care

We can't wait to see you again next year on 6 Oct 2026, save the date! mndassociation.org/cop
Picture of a purple and white document folder with the logos and names of the MND Association and the MND Professionals' Community of Practice. Layered on top, there are three purple text boxes. The first one says: 2025 MND Professionals' Community of Practice Annual Networking Event: Supporting choice and control for people living with and affected by MND. The other boxes contains the following quotes from attendees: "It was inspiring to be together with a shared desire to improve the lives of people living with MND. Never underestimate the power of networking." and "A very varied programme which cemented knowledge, added to it and also challenged areas of understanding. Lots to inform my practice and enable me to better support those living with MND. Very interesting day!"
November 6, 2025 at 12:40 PM
mndeducation.bsky.social
Did you know you can order hard copies of our publications?

We always encourage reading our info online for sustainability, but we realise that's not accessible for everyone.

You can contact MND Connect or find our Publications order form at mndassociation.org/publications
Cover of the publications order form
October 17, 2025 at 12:02 PM
mndeducation.bsky.social
We're thrilled to share our new Saliva Management Pathway, developed with the #MND Community of Practice Expert Core

It covers guidance to manage common saliva issues eg thick secretions & dry mouth, assessment tools, medications and non-drug treatments

mndassociation.org/publications
screenshot of the Saliva management pathway for motor neurone disease on a blue background
October 16, 2025 at 8:24 AM
mndeducation.bsky.social
We've updated our Voice banking infosheet to help HSCPs support people with #MND in preserving their voice for future use

It includes:
✅guidance on message banking
✅recording tips
✅the latest services available, Apple Personal Voice

Find it on👇
mndassociation.org/publications
screenshot of the front page the information sheet "voice banking for motor neurone disease" on a blue background
October 8, 2025 at 11:16 AM
mndeducation.bsky.social
Did you know that your health service has a responsibility to provide trained interpreters?

Read more about interpreters and translations in 1B - Health information in other languages or formats.

Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder
Cover of the 1B Health information in other languages and formats
September 19, 2025 at 9:44 AM
mndeducation.bsky.social
Registration for the Annual Stephen Hawking MND Lecture is now open!

📆4 Nov
📍virtual live stream or London (followed by drinks & networking)

It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture
Orange and blue slide with picture of Professor Ammar Al-Chalabi, who'll deliver the Lecture. On the side, the text says "The Annual Stephen Hawking MND Lecture 2025 - The genetics of motor neurone disease: why does genetics matter for people living with MND"
September 18, 2025 at 9:11 AM
mndeducation.bsky.social
🧠1 week left to register for our free online course for psychologists on using ACT to support people with #MND!

Expect:
✅Exercises to use in your practice
✅Live sessions with @ucl.ac.uk expert Prof Gould
✅Resources for further learning
✅Peer discussions
👉 www.mndassociation.org/online-courses
Course: Supporting people with MND using acceptance and commitment therapy (ACT), starting on 29/09/2025 This 9-week course introduces ACT as a proven and practical intervention to support people with MND. Designed for psychologists, it provides a deep dive into the ACT model, with a focus on its application to the unique challenges faced by people with MND. You may expect to dedicate up to 3 hours per week to the course. The course is divided into weekly modules, combining self-paced learning, interactive live sessions and practical application: week 1: introduction to MND and ACT week 2: acceptance, defusion and self as context week 3: contact with the present moment, values and committed action week 4: live role-play and discussion week 5: consistent responding and care conceptualisation, suicide and end of life week 6: indicators of psychological inflexibility week 7: live role-play week 8: adapting ACT for MND and troubleshooting week 9: live Q&A
September 15, 2025 at 10:01 AM
mndeducation.bsky.social
Register now for our next workshop Nutritional management of people with #MND: from adapted cutlery to tube feeding, everyone has a role!

🗓️24/09 in Bristol

Ask questions to experts, review real case studies & practice equipment. Book before 10/09 on bit.ly/Dietetics-Wo...!
MND dietetics workshop programme: 10:00–10:30 The importance of diet and nutrition in MND: You'll be introduced to current research in this important area 10:30–11:00 Nutritional screening and monitoring: you'll hear about the risk factors in MND and learn about the ways in which people are screened to monitor their nutritional status 11:15–12:45 Nutritional management and options: This session takes a look at managing dysphagia and the ways in which nutrition can be maintained from oral nutrition techniques through to gastrostomy placement 1:15–1:45 Supporting people living with MND to make informed decisions about gastrostomy: This session will provide an outline of how to effectively steer people through the challenging decision about having a gastrostomy tube 1:45–2:45 Hands on! you will have the opportunity to take part in practical sessions and discuss various aspects of nutrition 3:003:45 Case studies: you'll use case studies to engage in problem solving with fellow attendees
September 3, 2025 at 12:56 PM
mndeducation.bsky.social
The next run of our free online course Multidisciplinary working-making it effective for #MND starts on 15 Sept!

Designed to help HSCPs explore how to provide multidisciplinary care, it can be completed in your own time over 9 weeks

Register on mndassociation.org/online-courses
Image on the MND Online Course: Multidisciplinary working-making it effective for MND. "It has given me the knowledge of how other MDT members work and what support they provide. I want to be able to provide the people I care for with the correct information." -quote from a participant The course can help HSCPs collaborate to provide multidisciplinary, person-centred care. It includes supporting resources, learning activities and forums to exchange ideas with fellow participants. Next course starts on 15 September and can be completed at your own pace for free. Over 200 people completed the course since its launch in 2021. They've said: "I liked the variety of resources available and they will be useful moving forward" "I found the course very interesting and will certainly apply the knowledge I've gained" "I enjoyed learning from everyone, especially as we were from different area" "I now feel more confident approaching the MDT" Learn more about MDT working: www.mndassociation.org/mdt
September 3, 2025 at 7:59 AM
mndeducation.bsky.social
We're thrilled to announce we added a new webinar to our calendar of events!

Join us on 21 October to explore the physiology behind lung recruitment bags for people with #MND, evidence for their use & @theacprc.bsky.social's technical standards

Book now on mndassociation.org/education-ev...!
New webinar for MND professionals: Lung volume recruitment (LVR) bags for people with MND Date: 21 October 2025 Time: 2-3pm By the end of the session, you will have: - a better understanding of what LVR bags are and the physiology behind them - an increased awareness of the evidence base for LVR bags - an understanding of the Association of Chartered Physiotherapists in Respiratory Care (ACPRC) technical standards and how to assemble an LVR kit Speaker: Stephanie Mansell MSc BSc (Hons) MCSP, Consultant Physiotherapist, NIHR Doctoral Research Fellow, Honorary Research Fellow - Royal Free NHS Foundation Trust, University College London Find more details and book for free on www.mndassociation.org/education-events
September 1, 2025 at 9:15 AM
mndeducation.bsky.social
What is Genetic testing? 🧬

Our animation provides guidance about genetic testing to identify changed genes known to play a part in MND.

Find our full range of animations at: www.mndassociation.org/support-and-...
A screenshot from the animation, including the title and logo.
August 15, 2025 at 9:15 AM
mndeducation.bsky.social
Sign up before 26/08 for our workshop Cognitive & behavioural symptoms in #MND: beyond the motor cortex!

Prof Eneida Mioshi will deliver a programme of activities designed to help you build practical skills

This is a single-date-only event, book now!
bit.ly/cognition-in...
Workshop: cognitive deficits and behavioural symptoms in MND 09:30 – 9:45 Registration and coffee 09:45 – 10:00 Welcome and introduction of the day – aims and objectives 10:00 – 10:45 ‘I thought MND only caused motor problems, what’s happening to us?’ 10:45 – 11:00 Comfort break 11:00 – 11:30 Cognitive and behavioural symptoms in MND: the international ALSFTD diagnostic criteria 11:30 – 12.30 Practical session: observing, noticing, naming symptoms, depressions? 12:30 – 1:00 Lunch 1:00 – 1:45 I don’t have much time: which tools can I use to detect cognitive and behavioural symptoms? What if the family gets upset that we’re doing these assessments? 1:45 – 2:30 Practical session: bringing it all together – assessments, interpretation 2:30 – 2:45 Comfort break 2:45 – 3:45 Case studies and panel discussions 3:45 – 4:00 Evaluations and close
August 13, 2025 at 11:57 AM
mndeducation.bsky.social
We're thrilled to launch a new, free online course, designed to train psychologists in Acceptance and Commitment Therapy -proven to improve quality of life in #MND

It includes self-paced modules & live sessions by Prof Gould from @ucl.ac.uk

Learn more & register👇
mndassociation.org/online-courses
New online course for MND professionals: Using Acceptance and Commitment Therapy (ACT) to support people with MND Start date: 29 September 2025 Location: Online Cost: Free To register your interest: Email education@mndassociation.org with: -your full name -job title -details of your professional registration as a psychologist. This course is only open to registered psychologists. Find more details and register your interest on: www.mndassociation.org/online-courses
August 12, 2025 at 1:15 PM
mndeducation.bsky.social
We can't wait for our next #MND workshop!

Prof Eneida Mioshi will explore how to manage cognitive & behavioural symptoms in practice, including how to interpret assessments and diagnostic criteria

This is a single-date-only event, don't miss out & book now! mndassociation.org/education-ev...
Workshops for MND professionals: Cognitive deficits and behavioural symptoms in MND: beyond the motor cortex Date: 9 September 2025 Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London, N1 9RL Time: 9.30am - 4pm By the end of the day, participants will have learned: -the impact of cognitive and behavioural symptoms on the patient -the impact cognitive and behavioural symptoms on the family and how they can change relationships -research in this area -the international ALSFTD diagnostic criteria -the differences between behavioural symptoms and mental health issues in MND -how to use clinical assessments to use in practice -how to make interpretations of the assessments, in combination with clinical reasoning, and the above learning points Speaker: Professor Eneida Mioshi, University of East Anglia Find more details and register on www.mndassociation.org/education-events This is a single-date-only event, don’t miss your chance
August 7, 2025 at 10:48 AM
mndeducation.bsky.social
Preventing malnutrition & weight loss is vital for the care & quality of life of people with #MND

Our workshops help HSCPs build skills through case studies, equipment practice & expert-led discussions

Register for our new date:
🗓️24/09
📍Bristol
📝http://mndassociation.org/education-events
MND workshop: The nutritional management of people with MND Date: 24 September Location: Aztec Hotel & Spa, Aztec West, Almondsbury, Bristol, BS32 4TS Learning goals: - the impact of nutritional status on the outcomes of people with MND - how to identify and monitor the nutritional status of people with MND, including malnutrition screening - the nutrition support interventions available to prevent or resolve malnutrition including oral and enteral nutrition options - the dysphagia management of people with MND - how to support people with MND to make informed decisions about the option to have a gastrostomy - the management of people with MND on enteral nutrition - how to apply the above in real-world practice. "It was a very informative event. There were fantastic speakers with real-life experiences, and I valued the opportunities to ask questions." - quote from a previous attendant Find more details and book on www.mndassociation.org/education-events
August 6, 2025 at 12:53 PM
mndeducation.bsky.social
Working closely with HSCPs is crucial to shape resources that truly support people with #MND and ensure our materials are relevant & practical

That's why your feedback always matters

If you want to help or have comments on our resources, email infofeedback@mndassociation.org
Photo of some of our publications with a purple text box above, containing a quote from an MND professional collaborating in the review of our resources. The quote reads: "It’s been wonderful to have a contribution to the publication and apply knowledge and skills from 15 years’ experience in the sector"
July 30, 2025 at 9:53 AM
mndeducation.bsky.social
Do you know someone with MND or Kennedy's disease?

From 'Why are things changing?' to 'So what is MND, anyway?' you can find all our resources for children and young people here: www.mndassociation.org/cyp

There is also information for parents/guardians, including professionals who give support.
Cover of the 'Supporting children and young people close to someone with MND' resource.
July 28, 2025 at 10:33 AM
mndeducation.bsky.social
Our newly revised Getting around booklet has info on driving, transport and holiday guidance focusing on different ways to get out and about with reduced mobility.

Find the booklet and more support on our movement and mobility page mndassociation.org/mobility
Cover of the Getting around booklet. Driving, transport and holiday guidance for people with MND or Kennedy's disease.
July 23, 2025 at 2:03 PM
mndeducation.bsky.social
Are you a health & social care professional wanting to stay up to date with #MND news?

Our Education Newsletter brings you the latest from the MNDA and beyond-including research, learning opportunities & updates relevant to your practice

📩Sign up: mndassociation.org/educationupd...
Screenshot of the introduction of our monthly Education Newsletter. On the top left side, there is the logo of the MND Association, while on the top right, a purple button to donate. Underneath, there are 4 lozenges with pictures of professionals and patients, with "Welcome to the latest MND Education Update" written below.
July 18, 2025 at 8:39 AM