MND Education
@mndeducation.bsky.social
The Education & Information team for the MND Association @mndassoc.bsky.social
Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.
Providing trustworthy and accredited information resources about #MND and #Kennedy's disease.
Pinned
MND Education
@mndeducation.bsky.social
· Jan 27
Information resources
This section holds our resources and publications about MND and Kennedy's disease.
mndassociation.org
Welcome to the MND Association Education and Information page, we provide information to people affected by #MND or #Kennedy's and professionals.
Find more info on our website:
ℹ️Info on MND and Kennedy's: mndassociation.org/support-and-...
ℹ️Info for professionals: mndassociation.org/professionals
Find more info on our website:
ℹ️Info on MND and Kennedy's: mndassociation.org/support-and-...
ℹ️Info for professionals: mndassociation.org/professionals
Managing dysphagia in #MND needs a team effort
The MDT should collaborate to:
☑️screen people
☑️discuss equipment & feeding options eg gastrostomy
☑️maintain a nutritional care plan
☑️raise awareness with carers & families
Read more on our infosheet at mndassociation.org/propublicati...
#UKMAW2025
The MDT should collaborate to:
☑️screen people
☑️discuss equipment & feeding options eg gastrostomy
☑️maintain a nutritional care plan
☑️raise awareness with carers & families
Read more on our infosheet at mndassociation.org/propublicati...
#UKMAW2025
November 21, 2025 at 10:48 AM
Managing dysphagia in #MND needs a team effort
The MDT should collaborate to:
☑️screen people
☑️discuss equipment & feeding options eg gastrostomy
☑️maintain a nutritional care plan
☑️raise awareness with carers & families
Read more on our infosheet at mndassociation.org/propublicati...
#UKMAW2025
The MDT should collaborate to:
☑️screen people
☑️discuss equipment & feeding options eg gastrostomy
☑️maintain a nutritional care plan
☑️raise awareness with carers & families
Read more on our infosheet at mndassociation.org/propublicati...
#UKMAW2025
As a care worker for someone with #MND you play a key role in maintaining good nutrition at home, helping them:
☑️follow the nutritional care plan
☑️eat, drink & prepare tasty meals
☑️report any issues
Learn more information & practical tips in our guide: mndassociation.org/propublicati...
#UKMAW2025
☑️follow the nutritional care plan
☑️eat, drink & prepare tasty meals
☑️report any issues
Learn more information & practical tips in our guide: mndassociation.org/propublicati...
#UKMAW2025
November 20, 2025 at 3:47 PM
As a care worker for someone with #MND you play a key role in maintaining good nutrition at home, helping them:
☑️follow the nutritional care plan
☑️eat, drink & prepare tasty meals
☑️report any issues
Learn more information & practical tips in our guide: mndassociation.org/propublicati...
#UKMAW2025
☑️follow the nutritional care plan
☑️eat, drink & prepare tasty meals
☑️report any issues
Learn more information & practical tips in our guide: mndassociation.org/propublicati...
#UKMAW2025
Many people with #MND face swallowing issues, making eating & drinking difficult and increasing malnutrition risk
This can be challenging to manage as clinicians, but our infographic on dietetics & nutrition can help you understand NICE best practice
mndassociation.org/propublicati...
#UKMAW2025
This can be challenging to manage as clinicians, but our infographic on dietetics & nutrition can help you understand NICE best practice
mndassociation.org/propublicati...
#UKMAW2025
November 18, 2025 at 3:08 PM
Many people with #MND face swallowing issues, making eating & drinking difficult and increasing malnutrition risk
This can be challenging to manage as clinicians, but our infographic on dietetics & nutrition can help you understand NICE best practice
mndassociation.org/propublicati...
#UKMAW2025
This can be challenging to manage as clinicians, but our infographic on dietetics & nutrition can help you understand NICE best practice
mndassociation.org/propublicati...
#UKMAW2025
We are supporting @bapen.bsky.social #UKMAW2025!
We'll share resources & information about the risks of malnutrition for people with #MND and how to manage them
Help spread the word and raise awareness!
We'll share resources & information about the risks of malnutrition for people with #MND and how to manage them
Help spread the word and raise awareness!
November 17, 2025 at 11:33 AM
We are supporting @bapen.bsky.social #UKMAW2025!
We'll share resources & information about the risks of malnutrition for people with #MND and how to manage them
Help spread the word and raise awareness!
We'll share resources & information about the risks of malnutrition for people with #MND and how to manage them
Help spread the word and raise awareness!
We've revised our professionals’ guide to end of life care in #MND
The guide offers practical tools to approach sensitive discussions and provide compassionate care, covering:
✅advance care planning
✅palliative care
✅communication
✅supporting family & carers
www.mndassociation.org/propublications
The guide offers practical tools to approach sensitive discussions and provide compassionate care, covering:
✅advance care planning
✅palliative care
✅communication
✅supporting family & carers
www.mndassociation.org/propublications
Publications for professionals
All publications for health and social care professionals are evidence based and reviewed by clinicians. They are regularly revised and correct at time of print.
www.mndassociation.org
November 12, 2025 at 11:08 AM
We've revised our professionals’ guide to end of life care in #MND
The guide offers practical tools to approach sensitive discussions and provide compassionate care, covering:
✅advance care planning
✅palliative care
✅communication
✅supporting family & carers
www.mndassociation.org/propublications
The guide offers practical tools to approach sensitive discussions and provide compassionate care, covering:
✅advance care planning
✅palliative care
✅communication
✅supporting family & carers
www.mndassociation.org/propublications
Providing effective information is vital to help people with #MND
If you are a professional, you can contact careadmin@mndassociation.org to order information resources for the people in your care
Learn more with our infosheet 'Using our care information' on www.mndassociation.org/propublications
If you are a professional, you can contact careadmin@mndassociation.org to order information resources for the people in your care
Learn more with our infosheet 'Using our care information' on www.mndassociation.org/propublications
Publications for professionals
All publications for health and social care professionals are evidence based and reviewed by clinicians. They are regularly revised and correct at time of print.
www.mndassociation.org
November 11, 2025 at 2:44 PM
Providing effective information is vital to help people with #MND
If you are a professional, you can contact careadmin@mndassociation.org to order information resources for the people in your care
Learn more with our infosheet 'Using our care information' on www.mndassociation.org/propublications
If you are a professional, you can contact careadmin@mndassociation.org to order information resources for the people in your care
Learn more with our infosheet 'Using our care information' on www.mndassociation.org/propublications
Your feedback drives better support
It shapes our care and professionals' resources, making sure they are clear, relevant and practical
It also shapes our events, helping us respond to HSCPs' needs & new developments in #MND care
Read more on www.mndassociation.org/media/thumb-print!
It shapes our care and professionals' resources, making sure they are clear, relevant and practical
It also shapes our events, helping us respond to HSCPs' needs & new developments in #MND care
Read more on www.mndassociation.org/media/thumb-print!
November 10, 2025 at 9:09 AM
Your feedback drives better support
It shapes our care and professionals' resources, making sure they are clear, relevant and practical
It also shapes our events, helping us respond to HSCPs' needs & new developments in #MND care
Read more on www.mndassociation.org/media/thumb-print!
It shapes our care and professionals' resources, making sure they are clear, relevant and practical
It also shapes our events, helping us respond to HSCPs' needs & new developments in #MND care
Read more on www.mndassociation.org/media/thumb-print!
🔍Did you know you can access our full range of care information using our care information finder?
Try it out here: www.mndassociation.org/careinfofinder
Try it out here: www.mndassociation.org/careinfofinder
November 7, 2025 at 10:27 AM
🔍Did you know you can access our full range of care information using our care information finder?
Try it out here: www.mndassociation.org/careinfofinder
Try it out here: www.mndassociation.org/careinfofinder
Thank you to all those who joined us for the 2025 #MND Professionals' Community of Practice Annual Networking Event!
Over 200 HSCPs met up in Birmingham last month to connect & explore MND care
We can't wait to see you again next year on 6 Oct 2026, save the date! mndassociation.org/cop
Over 200 HSCPs met up in Birmingham last month to connect & explore MND care
We can't wait to see you again next year on 6 Oct 2026, save the date! mndassociation.org/cop
November 6, 2025 at 12:40 PM
Thank you to all those who joined us for the 2025 #MND Professionals' Community of Practice Annual Networking Event!
Over 200 HSCPs met up in Birmingham last month to connect & explore MND care
We can't wait to see you again next year on 6 Oct 2026, save the date! mndassociation.org/cop
Over 200 HSCPs met up in Birmingham last month to connect & explore MND care
We can't wait to see you again next year on 6 Oct 2026, save the date! mndassociation.org/cop
Last chance to join the final workshop on respiratory management in #MND!
It'll cover:
✅monitoring & assessing respiratory weakness
✅NIV theory & practice
✅managing secretions
✅equipment for cough augmentation
✅case studies
Book now before 29 Oct!
www.mndassociation.org/education-events
It'll cover:
✅monitoring & assessing respiratory weakness
✅NIV theory & practice
✅managing secretions
✅equipment for cough augmentation
✅case studies
Book now before 29 Oct!
www.mndassociation.org/education-events
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
www.mndassociation.org
October 23, 2025 at 10:13 AM
Last chance to join the final workshop on respiratory management in #MND!
It'll cover:
✅monitoring & assessing respiratory weakness
✅NIV theory & practice
✅managing secretions
✅equipment for cough augmentation
✅case studies
Book now before 29 Oct!
www.mndassociation.org/education-events
It'll cover:
✅monitoring & assessing respiratory weakness
✅NIV theory & practice
✅managing secretions
✅equipment for cough augmentation
✅case studies
Book now before 29 Oct!
www.mndassociation.org/education-events
Bookings close on Monday -register now!
mndassociation.org/education-ev...
mndassociation.org/education-ev...
Join us for our last #MND webinar on respiratory care in the community!
Respiratory physiotherapists Kathryn Crawford & Charlotte Massey will explore how HSCPs can support respiratory care at home, the basics of home NIV & cough augmentation
Book before 27 Oct mndassociation.org/education-ev...
Respiratory physiotherapists Kathryn Crawford & Charlotte Massey will explore how HSCPs can support respiratory care at home, the basics of home NIV & cough augmentation
Book before 27 Oct mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
October 23, 2025 at 10:12 AM
Bookings close on Monday -register now!
mndassociation.org/education-ev...
mndassociation.org/education-ev...
Did you know you can order hard copies of our publications?
We always encourage reading our info online for sustainability, but we realise that's not accessible for everyone.
You can contact MND Connect or find our Publications order form at mndassociation.org/publications
We always encourage reading our info online for sustainability, but we realise that's not accessible for everyone.
You can contact MND Connect or find our Publications order form at mndassociation.org/publications
October 17, 2025 at 12:02 PM
Did you know you can order hard copies of our publications?
We always encourage reading our info online for sustainability, but we realise that's not accessible for everyone.
You can contact MND Connect or find our Publications order form at mndassociation.org/publications
We always encourage reading our info online for sustainability, but we realise that's not accessible for everyone.
You can contact MND Connect or find our Publications order form at mndassociation.org/publications
We're thrilled to share our new Saliva Management Pathway, developed with the #MND Community of Practice Expert Core
It covers guidance to manage common saliva issues eg thick secretions & dry mouth, assessment tools, medications and non-drug treatments
mndassociation.org/publications
It covers guidance to manage common saliva issues eg thick secretions & dry mouth, assessment tools, medications and non-drug treatments
mndassociation.org/publications
October 16, 2025 at 8:24 AM
We're thrilled to share our new Saliva Management Pathway, developed with the #MND Community of Practice Expert Core
It covers guidance to manage common saliva issues eg thick secretions & dry mouth, assessment tools, medications and non-drug treatments
mndassociation.org/publications
It covers guidance to manage common saliva issues eg thick secretions & dry mouth, assessment tools, medications and non-drug treatments
mndassociation.org/publications
Have you registered for our workshop Respiratory problems in MND: a multidisciplinary team approach?
Our workshops are a great opportunity to gain practical skills in #MND management
This event has been endorsed by
SiLVaH_UK and is CPD accredited -learn more on mndassociation.org/education-ev...!
Our workshops are a great opportunity to gain practical skills in #MND management
This event has been endorsed by
SiLVaH_UK and is CPD accredited -learn more on mndassociation.org/education-ev...!
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
October 15, 2025 at 2:57 PM
Have you registered for our workshop Respiratory problems in MND: a multidisciplinary team approach?
Our workshops are a great opportunity to gain practical skills in #MND management
This event has been endorsed by
SiLVaH_UK and is CPD accredited -learn more on mndassociation.org/education-ev...!
Our workshops are a great opportunity to gain practical skills in #MND management
This event has been endorsed by
SiLVaH_UK and is CPD accredited -learn more on mndassociation.org/education-ev...!
Join us for our last #MND webinar on respiratory care in the community!
Respiratory physiotherapists Kathryn Crawford & Charlotte Massey will explore how HSCPs can support respiratory care at home, the basics of home NIV & cough augmentation
Book before 27 Oct mndassociation.org/education-ev...
Respiratory physiotherapists Kathryn Crawford & Charlotte Massey will explore how HSCPs can support respiratory care at home, the basics of home NIV & cough augmentation
Book before 27 Oct mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
October 13, 2025 at 1:06 PM
Join us for our last #MND webinar on respiratory care in the community!
Respiratory physiotherapists Kathryn Crawford & Charlotte Massey will explore how HSCPs can support respiratory care at home, the basics of home NIV & cough augmentation
Book before 27 Oct mndassociation.org/education-ev...
Respiratory physiotherapists Kathryn Crawford & Charlotte Massey will explore how HSCPs can support respiratory care at home, the basics of home NIV & cough augmentation
Book before 27 Oct mndassociation.org/education-ev...
Time is running out to register for the Annual Stephen Hawking #MND Lecture⌛️
In-person spots are full, but you can still join the waiting list or attend online!
Join us to learn more about applying genetic research in MND care -book before 28 Oct on mndassociation.org/education-ev...
In-person spots are full, but you can still join the waiting list or attend online!
Join us to learn more about applying genetic research in MND care -book before 28 Oct on mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
October 13, 2025 at 9:40 AM
Time is running out to register for the Annual Stephen Hawking #MND Lecture⌛️
In-person spots are full, but you can still join the waiting list or attend online!
Join us to learn more about applying genetic research in MND care -book before 28 Oct on mndassociation.org/education-ev...
In-person spots are full, but you can still join the waiting list or attend online!
Join us to learn more about applying genetic research in MND care -book before 28 Oct on mndassociation.org/education-ev...
We've updated our Voice banking infosheet to help HSCPs support people with #MND in preserving their voice for future use
It includes:
✅guidance on message banking
✅recording tips
✅the latest services available, Apple Personal Voice
Find it on👇
mndassociation.org/publications
It includes:
✅guidance on message banking
✅recording tips
✅the latest services available, Apple Personal Voice
Find it on👇
mndassociation.org/publications
October 8, 2025 at 11:16 AM
We've updated our Voice banking infosheet to help HSCPs support people with #MND in preserving their voice for future use
It includes:
✅guidance on message banking
✅recording tips
✅the latest services available, Apple Personal Voice
Find it on👇
mndassociation.org/publications
It includes:
✅guidance on message banking
✅recording tips
✅the latest services available, Apple Personal Voice
Find it on👇
mndassociation.org/publications
It's the last week to register for our webinar!
Respiratory physiotherapist Stephanie Mansell will explore @theacprc.bsky.social best practice on how to use LVR bags to help people with #MND with weakened cough
Book before 14 October👉 bit.ly/3KXfOUc
Respiratory physiotherapist Stephanie Mansell will explore @theacprc.bsky.social best practice on how to use LVR bags to help people with #MND with weakened cough
Book before 14 October👉 bit.ly/3KXfOUc
MND Webinar: Lung volume recruitment bags for people with MND - 21/10/25
bit.ly
October 6, 2025 at 9:56 AM
It's the last week to register for our webinar!
Respiratory physiotherapist Stephanie Mansell will explore @theacprc.bsky.social best practice on how to use LVR bags to help people with #MND with weakened cough
Book before 14 October👉 bit.ly/3KXfOUc
Respiratory physiotherapist Stephanie Mansell will explore @theacprc.bsky.social best practice on how to use LVR bags to help people with #MND with weakened cough
Book before 14 October👉 bit.ly/3KXfOUc
🚨Bookings for our CoP Networking Day on 7 Oct in Birmingham close on Friday at 9am🚨
Expect:
☑️Expert-led workshops on eating with risks & much more
☑️Equipment demos, including PEG & LVR
☑️Exhibitors
150 HSCPs have already signed up, hurry up and book now!
mndassociation.org/education-ev...
Expect:
☑️Expert-led workshops on eating with risks & much more
☑️Equipment demos, including PEG & LVR
☑️Exhibitors
150 HSCPs have already signed up, hurry up and book now!
mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
September 24, 2025 at 12:20 PM
🚨Bookings for our CoP Networking Day on 7 Oct in Birmingham close on Friday at 9am🚨
Expect:
☑️Expert-led workshops on eating with risks & much more
☑️Equipment demos, including PEG & LVR
☑️Exhibitors
150 HSCPs have already signed up, hurry up and book now!
mndassociation.org/education-ev...
Expect:
☑️Expert-led workshops on eating with risks & much more
☑️Equipment demos, including PEG & LVR
☑️Exhibitors
150 HSCPs have already signed up, hurry up and book now!
mndassociation.org/education-ev...
It's the last week to register for the 2025 CoP Networking Day!
📅7 October
📍Birmingham
Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK
See what guests said about past events and find out more on mndassociation.org/education-ev...
📅7 October
📍Birmingham
Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK
See what guests said about past events and find out more on mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
September 22, 2025 at 2:49 PM
It's the last week to register for the 2025 CoP Networking Day!
📅7 October
📍Birmingham
Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK
See what guests said about past events and find out more on mndassociation.org/education-ev...
📅7 October
📍Birmingham
Don't miss out on this unique opportunity to meet and learn together with over 100 HSCPs from all over the UK
See what guests said about past events and find out more on mndassociation.org/education-ev...
Did you know that your health service has a responsibility to provide trained interpreters?
Read more about interpreters and translations in 1B - Health information in other languages or formats.
Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder
Read more about interpreters and translations in 1B - Health information in other languages or formats.
Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder
September 19, 2025 at 9:44 AM
Did you know that your health service has a responsibility to provide trained interpreters?
Read more about interpreters and translations in 1B - Health information in other languages or formats.
Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder
Read more about interpreters and translations in 1B - Health information in other languages or formats.
Find the sheet and more using our care information finder: www.mndassociation.org/careinfofinder
Registration for the Annual Stephen Hawking MND Lecture is now open!
📆4 Nov
📍virtual live stream or London (followed by drinks & networking)
It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture
📆4 Nov
📍virtual live stream or London (followed by drinks & networking)
It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture
September 18, 2025 at 9:11 AM
Registration for the Annual Stephen Hawking MND Lecture is now open!
📆4 Nov
📍virtual live stream or London (followed by drinks & networking)
It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture
📆4 Nov
📍virtual live stream or London (followed by drinks & networking)
It's a unique event to explore how🧬research can be applied in #MND care -don't miss out and book before 28 Oct! www.mndassociation.org/HawkingLecture
🚨New free online course!
We're thrilled to launch a new course on including adults with capacity and communication challenges in research
You'll explore:
☑️law & ethics in research
☑️capacity & decision-making
☑️adjustments to support participation
Find out more on mndassociation.org/online-courses
We're thrilled to launch a new course on including adults with capacity and communication challenges in research
You'll explore:
☑️law & ethics in research
☑️capacity & decision-making
☑️adjustments to support participation
Find out more on mndassociation.org/online-courses
Online Courses
Our online learning modules are in depth courses which you can complete around your work commitments.
mndassociation.org
September 18, 2025 at 8:59 AM
🚨New free online course!
We're thrilled to launch a new course on including adults with capacity and communication challenges in research
You'll explore:
☑️law & ethics in research
☑️capacity & decision-making
☑️adjustments to support participation
Find out more on mndassociation.org/online-courses
We're thrilled to launch a new course on including adults with capacity and communication challenges in research
You'll explore:
☑️law & ethics in research
☑️capacity & decision-making
☑️adjustments to support participation
Find out more on mndassociation.org/online-courses
🧠1 week left to register for our free online course for psychologists on using ACT to support people with #MND!
Expect:
✅Exercises to use in your practice
✅Live sessions with @ucl.ac.uk expert Prof Gould
✅Resources for further learning
✅Peer discussions
👉 www.mndassociation.org/online-courses
Expect:
✅Exercises to use in your practice
✅Live sessions with @ucl.ac.uk expert Prof Gould
✅Resources for further learning
✅Peer discussions
👉 www.mndassociation.org/online-courses
September 15, 2025 at 10:01 AM
🧠1 week left to register for our free online course for psychologists on using ACT to support people with #MND!
Expect:
✅Exercises to use in your practice
✅Live sessions with @ucl.ac.uk expert Prof Gould
✅Resources for further learning
✅Peer discussions
👉 www.mndassociation.org/online-courses
Expect:
✅Exercises to use in your practice
✅Live sessions with @ucl.ac.uk expert Prof Gould
✅Resources for further learning
✅Peer discussions
👉 www.mndassociation.org/online-courses
We look forward to our last Information & Knowledge Exchange of 2025 on 23/09
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Calendar of events
Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.
mndassociation.org
September 10, 2025 at 3:11 PM
We look forward to our last Information & Knowledge Exchange of 2025 on 23/09
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...
Join Psychologist Dr Emma Bishop & MND Nurse Michaela Waltho to explore practical strategies to manage cognitive changes in #MND with fellow members of the Community of Practice
Book on mndassociation.org/education-ev...