Mina
@minabelle.bsky.social
Mom of 2, crochet fanatic, and ME/cfs warrior. Mostly I sleep, listen to audio books and play video games. 👩🦼➡️🇨🇦
Reposted by Mina
While myalgic encephalomyelitis (ME/CFS) is not a rare disease by the numbers, some of us have a co-morbidity that is a rare disease & we want to support our fellow disease/ disability community. A disease is rare when it affects fewer than 1 in 2000 people.
#RareDiseaseDay
#RareDiseaseDay
February 28, 2025 at 6:39 PM
While myalgic encephalomyelitis (ME/CFS) is not a rare disease by the numbers, some of us have a co-morbidity that is a rare disease & we want to support our fellow disease/ disability community. A disease is rare when it affects fewer than 1 in 2000 people.
#RareDiseaseDay
#RareDiseaseDay
Reposted by Mina
I have started a Starter Pack for ME and Long COVID. 💙
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
November 12, 2024 at 4:23 AM
I have started a Starter Pack for ME and Long COVID. 💙
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
It includes some mutuals with other packs but also some new faces too. :)
Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙
go.bsky.app/6R7bqc7
Reposted by Mina
Reposting some #MyalgicEncephalomyelitis content here on bsky:
#DecodeME: Being female, being older and being over 10 years from #MEcfs onset are significantly associated with greater severity of disease.
In DecodeME, 83.5% #pwME are female.
openresearch.nihr.ac.uk/articles/3-20
#DecodeME: Being female, being older and being over 10 years from #MEcfs onset are significantly associated with greater severity of disease.
In DecodeME, 83.5% #pwME are female.
openresearch.nihr.ac.uk/articles/3-20
NIHR Open Research Article: Typing myalgic encephalomyelitis by infection at onset: A DecodeME study.
Read the latest article version by Andrew D. Bretherick, Simon J. McGrath, Andy Devereux-Cooke, Sian Leary, Emma Northwood, Anna Redshaw, Pippa Stacey, Claire Tripp, Jim Wilson, Sonya Chowdhury, Isabe...
openresearch.nihr.ac.uk
November 11, 2024 at 9:20 AM
Reposting some #MyalgicEncephalomyelitis content here on bsky:
#DecodeME: Being female, being older and being over 10 years from #MEcfs onset are significantly associated with greater severity of disease.
In DecodeME, 83.5% #pwME are female.
openresearch.nihr.ac.uk/articles/3-20
#DecodeME: Being female, being older and being over 10 years from #MEcfs onset are significantly associated with greater severity of disease.
In DecodeME, 83.5% #pwME are female.
openresearch.nihr.ac.uk/articles/3-20