#myalgicencephalomyelitis #mecfs #MyalgicE #postexertionalmalaise #PEM #PostExertionalSymptomExacerbation #pese #PostExertionalNeuroimmuneExhaustion #PENE #ChronicFatigue #PersistantFatigue #Burnout #PostViralIllness #PostViralSyndrome

We need greater awareness and for our primary care teams to screen for PEM so people can recognise these red flags BEFORE they’ve already lost half their capacity.

I had a slow, gradual slide into illness, and looking back, I’d experienced post-exertional malaise (PEM) for years before I sought medical help. But like so many others, life kept moving… there were always more pressing issues, bills to pay, and responsibilities to juggle.

But what if we could intervene earlier? If more people knew to immediately reduce activity at the first signs of unexplained, persistent fatigue… especially when rest doesn’t fix it… we might be able to prevent or at least slow the progression.

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I so relate to this. 🫠