steffi
@mecfshawaii.bsky.social
Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Reposted by steffi
It is with deep sadness that we share with you that we lost one of our heroes and champions of ME yesterday. Beth Mazur passed away after battling ME for 15 years. She was a selfless beacon of hope & light in our community. She demonstrated an unwavering commitment to the cause.
December 22, 2023 at 6:29 PM
It is with deep sadness that we share with you that we lost one of our heroes and champions of ME yesterday. Beth Mazur passed away after battling ME for 15 years. She was a selfless beacon of hope & light in our community. She demonstrated an unwavering commitment to the cause.
Reposted by steffi
Good data is hard to get.
"Anecdotally, from the clinics we know that some people come back and say, 'I feel better' or 'I feel I improved.'
If you dig a little bit deeper, they did not get back to their baseline; they adjusted their baseline.''
www.statnews.com/2023/09/20/d...
"Anecdotally, from the clinics we know that some people come back and say, 'I feel better' or 'I feel I improved.'
If you dig a little bit deeper, they did not get back to their baseline; they adjusted their baseline.''
www.statnews.com/2023/09/20/d...
Does the risk of getting long Covid increase each time you get reinfected?
"It's very clear in our data that reinfection contributes additional risk of long Covid," says epidemiologist Ziyad Al-Aly.
www.statnews.com
October 6, 2023 at 9:59 PM
Good data is hard to get.
"Anecdotally, from the clinics we know that some people come back and say, 'I feel better' or 'I feel I improved.'
If you dig a little bit deeper, they did not get back to their baseline; they adjusted their baseline.''
www.statnews.com/2023/09/20/d...
"Anecdotally, from the clinics we know that some people come back and say, 'I feel better' or 'I feel I improved.'
If you dig a little bit deeper, they did not get back to their baseline; they adjusted their baseline.''
www.statnews.com/2023/09/20/d...