If you want to be part of the solution, join us for this inaugural meeting:

www.tickettailor.com/events/dpc/1...

There is a long way to go before we can preserve and archive medical records for whole lifetimes and longer. We need to build a community of action, then standards and resourcing.

Electronic Hospital and Medical Records are listed as 'Endangered' in the DPC's Bit List:

bit-list.dpconline.org/entries/elec...

"there is little evidence of the medical profession participating in the digital preservation community"

And there are other reasons why we might want good-quality archives of digital medical records:

* future research
* historical preservation
* medicolegal or criminal investigations

But our profession hasn't really even started to consider how we address this

www.tickettailor.com/events/dpc/1...

Despite the vast sums spent on GP and hospital IT, we're not even able to losslessly maintain a single patient's digital clinical record for their own direct care for their lifetime without degradation.

Join us, to help address this issue.

www.tickettailor.com/events/dpc/1...

If you find the blog resonates with you, please share it widely - to colleagues, to contacts in your Royal College - because that's the only way we'll get this approach adopted by more Royal Colleges and other standard-setting orgs.

Here's the GitHub template repo

github.com/turva-uk/csm...

!! No more hiding clinical safety documentation from scrutiny.

!! No more NDAs on clinical safety cases.

There is no safety without accountability.

Those increases are ludicrous. If you have some self-hosting chops there are a number of options that can solve large file transfer at no cost.

Open Source is one of our defences against enshittification.

github.com/9001/copyparty

For clarity, I DO think we need proper standards for health and care. I think they need to be completely technically specified to be interoperable.

The way to do it is more like FHIR/openEHR collaboration or the Australian Sparked Initiative.

If the PRSB survive the next step must be total reform.

The comments on the HSJ story are very interesting and suggest that NHSE and their FDP programme are way off the mark here.

No amount of bullying will make people adopt an FDP that's rubbish (by all accounts) and powered by a company that assists genocide.