Julie Marcoux
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majulli.bsky.social
Julie Marcoux
@majulli.bsky.social
890 followers 1K following 10 posts
ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice

Tiohtià:ke | Montreal 🇨🇦
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Reposted by Julie Marcoux
levin.bsky.social
This artists access statement is tremendous. I want this for all of us. All shows, not just ones made by and about ME/CFS & the ongoing pandemic
My hand holds a paper in front of a lit cabaret stage. It says “Access Statement Dan Fishback is Alive, Unwell, and Living in His Apartment seeks to welcome audiences who are often not included in performance, and reaches toward a universe where accessing such a welcome is no struggle at all. The performance uses an approach called Integrated Access, in which access is tied to the show's values and purpose and is creatively structured into its core. The access in this show is not simply functional, but rather works as a way for audience members to experience access as a fundamental part of the world. All access is open, meaning that the full audience experiences the access-rich environment of the show. Audio description, projected captioning, and ASL performance, as well as required masking to protect the performers and the community, create access infrastructure that oounce off each other, reverberate, clash, and find resonance. In a 2024 hellscape of pandemic, genocide, and fascism, we have to dream galaxies into our corners of the world. For some sick and chronically ill people, much of this imagining happens from bed, and can be deeply isolating. Alive, Unwell (and the galaxy brain that is Dan Fishback) has created a way around this, wherein multiple Dan Fishbacks-alongside his ancestors-commiserate, build power, and build access. And through this access, we break into a space of collective belonging. We encourage you to use the access tools both functionally and to understand this cross-disability, coalitional approach to art-making and world-building.”
December 15, 2024 at 5:53 PM
majulli.bsky.social
📌
November 27, 2024 at 4:37 AM
majulli.bsky.social
Thank you so much for doing this very needed and helpful paper 💙
November 23, 2024 at 3:30 AM
majulli.bsky.social
📌
November 15, 2024 at 7:52 PM
majulli.bsky.social
📌 Awesome introduction. Very helpful
November 13, 2024 at 4:43 AM