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madelinenerd.bsky.social
Madelinenerd
@madelinenerd.bsky.social
IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline
#myalgicE #disability

Fb/inst/X @madelinenerdfighter
LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/

WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
I talk about #LIFEAFTER @sundancefestive is on @CBC's @IndependentLens Mon Nov 3rd 9:59 pm PST. So check your listings/time zones so you can PVR it.

My Podcast ep re @VIFFest viewing open.spotify.com/episode/0Sd2...
#canpoli #disability #MyalgicE #pwME #fibromyalgia #MEAction #Canada
October 30, 2025 at 5:50 PM
SATURDAY, OCTOBER 4TH
6:45pm in Vancouver -- Catch a screening of LIFE AFTER at the Vancouver International Film Festival, followed by a Q&A. Open captions and descriptive audio are available. Also playing Sunday October 5th 11:30am w/ Q&A #lifeafter
October 1, 2025 at 1:59 AM
Feeling so poorly that I'm not able to make it to treatment. I feel bad canceling at the last minute. Eating breakfast collapsed me so I don't see how I navigate a shower let alone physically make it to treatment. I'm not well enough to get dressed #MyalgicE #mecfs #disability
July 24, 2025 at 7:56 PM
That is the 50 million question. Especially when it's social housing like BC housing. They have a mandate to be more understanding about disabilities. Look at this madness of some neighboring suites bathroom fans
May 10, 2025 at 11:18 PM
headed out early for treatment today so I could soak in #CherryBlossoms. I came from a generation where selfies weren't the thing. Can you tell lol. #blossomhunt did make me extra #myalgicE exhausted, but I'm needing the emotional boost. Running out of gfm$ again is frightening
April 6, 2025 at 4:01 AM
At hospital for my hyperthyroidism infusion. My back already cranky & we're still waiting for pharmacy to deliver intravenous. So beyond tired. #podcast ep: #BLOSSOM HUNT to cheer me(& hopefully you too!) open.spotify.com/episode/1KFm... #myalgicE #mcas #spring #blossoms #longcovid #pwme
April 4, 2025 at 6:51 PM
New #podcast ep: DOUBLE RAINBOW open.spotify.com/show/0oNLwzI...
Started that day full on wondering if I was in some sort of hell dimension, then #DoubleRainbow like a reminder that you just never know when things might turn around #canpoli #disability #MyalgicE #pwME #MECFS #MEAction 🧵⬇️
March 7, 2025 at 8:05 PM
residential tenancy board hearing tomorrow 1-2pm PST. I'm so brutally tired & I really really need this bad air situation to be finally sorted. Trying to keep my spirits up. This is a pic on the way home from treatment today. Crocuses! #canpoli #disability #MyalgicE #MEAction
February 27, 2025 at 12:41 AM
Here's a screenshot of what I see when I go into my homepage. Am I missing something?
February 22, 2025 at 8:25 AM
there's something about the way people act when you ask them to care about ableism that really feels condescending to me. patronising even. there's this sense that you're asking for a favour instead of demanding respectsee all in screen shots or link www.tumblr.com/bebsi-cola/7...
February 17, 2025 at 12:32 AM
A huge deficit as I discovered starting in August with a terrible air quality issues in my home is that there is no longer any residential air quality division civically or within Vancouver coastal Health. The situation still not resolved(picture is air quality in my apt at 90pm2).
February 15, 2025 at 3:22 AM
In spite of all the evidence that I showed #BChousing, dirty filters/bathroom fan, high pm2 meter on my air purifier, all in spite of having my windows/balcony door open kitchen/bathroom fan on & 7 air purifiers they're acting like I'm lying. More in link
www.instagram.com/p/DGEqp28Sb2...
February 15, 2025 at 2:32 AM
#ValentinesDay present from a friend who knows me too well!

I feel very #MyalgicE overdrawn poorly from bad air+ trying to do petition things/med things. If you're able to sign/share (worldwide accepted!)that would be amazing bit.ly/Marcia_petit... #disability #pwME #MECFS
February 14, 2025 at 7:24 PM
1027 signatures now! PETITION needs 10,000(International/across Canada welcome!). It encapsulates my 45yr #longviral fight for survival bit.ly/Marcia_petit... #disability #longviral #myalgicencephalomyelitis #disability #MyalgicE #canpoli #bcpoli #meaction #Canada #Canadian #mecfs #medicalbias
January 14, 2025 at 4:49 PM