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madelinenerd.bsky.social
Madelinenerd
@madelinenerd.bsky.social
190 followers 520 following 180 posts
IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline
#myalgicE #disability

Fb/inst/X @madelinenerdfighter
LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/

WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
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madelinenerd.bsky.social
Madelinenerd @madelinenerd.bsky.social · Mar 31
It's eating my brain that even though I'm fully public now no #Canadian news source has done a story about the petition bit.ly/Marcia_petit... or what's happening to me attempting to gfm survive month to month without even minimal disease supports for my #longviral EBV #myalgicE here in #Canada
PETITION: Prevent Marcia's Avoidable Death.
International and across Canada signatories welcome and encouraged. What happens in one part of the world affects all parts of our world. Marcia Doherty (known publicly online as Madeline) is a 45-yea...
bit.ly
madelinenerd.bsky.social
new podcast episode: Broken glass and other heartaches
open.spotify.com/show/0oNLwzI... #canpoli #disability #MyalgicE #pwME #MECFS #MEAction
Broken Glass and Other Heartaches
open.spotify.com
February 15, 2026 at 2:29 AM
Reposted by Madelinenerd
madelinenerd.bsky.social
YouTube #livestream recording of my #petition presentation to my MLA/BC premier @DavidEby office today, January 21st www.youtube.com/live/PN6-ewF...
#MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #bcpoli
January 22, 2026 at 1:28 AM
madelinenerd.bsky.social
YouTube #livestream recording of my #petition presentation to my MLA/BC premier @DavidEby office today, January 21st www.youtube.com/live/PN6-ewF...
#MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #bcpoli
January 22, 2026 at 1:28 AM
Reposted by Madelinenerd
madelinenerd.bsky.social
Virtual petition presentation i
to my MLA, premier David Eby's office PST 11-11:30am YouTube live youtube.com/@iammadeline...
Petition open til 9am Wed bit.ly/Marcia_petit...
#myalgicE #disability #longcovid #myalgicencephalomyelitis #Canada #mecfs #canpoli
January 20, 2026 at 1:20 AM
madelinenerd.bsky.social
Virtual petition presentation i
to my MLA, premier David Eby's office PST 11-11:30am YouTube live youtube.com/@iammadeline...
Petition open til 9am Wed bit.ly/Marcia_petit...
#myalgicE #disability #longcovid #myalgicencephalomyelitis #Canada #mecfs #canpoli
January 20, 2026 at 1:20 AM
madelinenerd.bsky.social
Really good constituency appt with my MP(feds) this morn. Surprising cuz his predecessor blew me off. This guy gets it. So being hopeful after the meeting got a much better response than I thought i would get was actually super disconcerting #Canada #canpoli #myalgicE #longcovid
January 7, 2026 at 11:52 PM
madelinenerd.bsky.social
Have a meeting with my MP Wed. A lot of brain power preparing for it l, so I hope I'm eloquent enough let him to pay attention & so stop pass the potato nonsense going on between #Canadian feds & provinces
#myalgicE #canpoli #longcovid #bcpoli #Canada #myalgicencephalomyelitis
January 6, 2026 at 1:22 AM
madelinenerd.bsky.social
New podcast episode January 1st, 2AM 2026 open.spotify.com/show/0oNLwzI...
#NewYear2026
#NewYear #NewYearsEve #MyalgicE #pwME #MECFS #MEAction #disability #mcas #mcs #Christmas #Canada #Canadian #Vancouver #disability #ableist #longviral #canpoli #bcpoli
Jan 1, 2 AM, 2026
open.spotify.com
January 1, 2026 at 10:33 AM
Reposted by Madelinenerd
madelinenerd.bsky.social
My op-ed is out! www.thecanary.co/opinion/2025...
If you could share the op-ed everywhere you can that would be amazing!
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #longcovid
⬇️
Marcia: life with severe ME is like screaming into the void
Marcia is a person living with ME, amongst a range of other disabilities - here, she writes for the Canary about her life
www.thecanary.co
December 19, 2025 at 5:01 PM
madelinenerd.bsky.social
My op-ed is out! www.thecanary.co/opinion/2025...
If you could share the op-ed everywhere you can that would be amazing!
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #longcovid
⬇️
Marcia: life with severe ME is like screaming into the void
Marcia is a person living with ME, amongst a range of other disabilities - here, she writes for the Canary about her life
www.thecanary.co
December 19, 2025 at 5:01 PM
Reposted by Madelinenerd
madelinenerd.bsky.social
New podcast episode, " The Fine Art Of Distraction " open.spotify.com/show/0oNLwzI...
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #Vancouver #genderbias #medicalbias
December 17, 2025 at 1:32 AM
Reposted by Madelinenerd
exceedhergrasp1.bsky.social
I'm giving a talk next week and you're invited!

✨Improving Quality of Life in ME/CFS and Infection-Associated Chronic Conditions✨

The talk is donate-as-you're-able, and 20% will support #MEAction.

You can sign up to attend here: us06web.zoom.us/meeting/regi...
A winter scene flyer with my pic at the bottom. It reads: Please join us for a talk on: Improving Quality of Life in ME/CFS talk - questions - suggestions December 17 2025 12pm ET, 9am PT, 11am CT Sliding Scale Donations 20% of proceeds to MEAction Talk followed by Q&A Hosted by Jaime Seltzer Scientific Director, MEAction @exceedhergrasp1
December 12, 2025 at 6:23 PM
Reposted by Madelinenerd
meactnet.bsky.social
A message from #MEAction:

We are facing an unprecedented crisis for disability & chronic illness communities. People are at the precipice of losing their access to healthcare, home and community-based services, & the promise of new research.

Learn more & support: www.meaction.net/lantern-in-t...
Simple text based graphic with black lettering on cream background. Text: "This is what we are up against: A message from MEAction"
December 12, 2025 at 6:44 PM
madelinenerd.bsky.social
New podcast episode, " The Fine Art Of Distraction " open.spotify.com/show/0oNLwzI...
#MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #Vancouver #genderbias #medicalbias
December 17, 2025 at 1:32 AM
madelinenerd.bsky.social
New #podcast ep #Sinterklaas where I talk about op-ed I'm writing & how scary all this is open.spotify.com/episode/3Yaq...
note: photo from web 3.bp.blogspot.com/-ms27JJEPgf4...
#MyalgicE #pwME #fibromyalgia #MEAction #disability #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada
Photo of Sinterklaas from the internet. Older man with white hair and white bushy eyebrows and Long white beard, white robes with red cape holding a gold scepter with a tall triangle shaped red and gold hat
December 5, 2025 at 12:00 PM
Reposted by Madelinenerd
thecovidinfoguy.bsky.social
Even 2 years after infection, around 40% of young people are still experiencing significant fatigue — indicating a major long-term health issue affecting a substantial proportion of youth who have had COVID-19.

Published: 20 November 2025

www.nature.com/articles/s41...
Fatigue in children and young people up to 24 months after infection with SARS-CoV-2 - Scientific Reports
Scientific Reports - Fatigue in children and young people up to 24 months after infection with SARS-CoV-2
www.nature.com
November 30, 2025 at 11:18 PM
Reposted by Madelinenerd
shacknews.com
LiveAI demo fails on the first prompt at Meta Connect 2025. #Meta #AI #LiveAI
September 18, 2025 at 12:34 AM
madelinenerd.bsky.social
#DaoftheDead, #Halloween and #Miracles; new #podcast episode open.spotify.com/show/0oNLwzI...
#Halloween2025 #dayofthedead #whimsy #Halloweencostume #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #pumpkin
November 2, 2025 at 10:39 PM
madelinenerd.bsky.social
I talk about #LIFEAFTER @sundancefestive is on @CBC's @IndependentLens Mon Nov 3rd 9:59 pm PST. So check your listings/time zones so you can PVR it.

My Podcast ep re @VIFFest viewing open.spotify.com/episode/0Sd2...
#canpoli #disability #MyalgicE #pwME #fibromyalgia #MEAction #Canada
October 30, 2025 at 5:50 PM
madelinenerd.bsky.social
Podcast episode where I talk about using whimsy as a survival tactic open.spotify.com/episode/7iqA... #halloween #dayofthedead #whimsy #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #humanrights #mcas #mcs #disautonomia
October 30, 2025 at 8:30 AM
madelinenerd.bsky.social
Brain fog has me trying to do an update but I can't put my thoughts together. Running out gfm$ in Nov. Try not to freak out about it. Friendsgiving this weekend I hope will raise my spirits cuz I'm scared #myalgicE #longcovid bit.ly/Marcia_petit... petition; worldwide signatures
PETITION: Prevent Marcia's Avoidable Death.
International and across Canada signatories welcome and encouraged. What happens in one part of the world affects all parts of our world. Marcia Doherty (known publicly online as Madeline) is a 45-yea...
bit.ly
October 10, 2025 at 9:02 PM
madelinenerd.bsky.social
SATURDAY, OCTOBER 4TH
6:45pm in Vancouver -- Catch a screening of LIFE AFTER at the Vancouver International Film Festival, followed by a Q&A. Open captions and descriptive audio are available. Also playing Sunday October 5th 11:30am w/ Q&A #lifeafter
October 1, 2025 at 1:59 AM
madelinenerd.bsky.social
Extra hard 7 days after finding out my friend who's been doing my laundry for past 2 years will be stopping in Nov when they retire. Feels like a cold nail in my coffin. Today; again begged MLA staffer for housekeeping & disease supports #myalgicE #bcpoli #disability #longcovid
October 1, 2025 at 1:57 AM
madelinenerd.bsky.social
madelinenerd.bsky.social Madelinenerd @madelinenerd.bsky.social · Sep 25
New #podcast ep: POWER open.spotify.com/episode/1BgM...
Hard day. Found out That help with laundry from a friend will stop soon. Plus stink from ductwork issue extra bad. And larger ideas of not having supports due to problematic forms of power all in pod ep
#myalgicE #disability #MECFS
POWER
open.spotify.com
October 1, 2025 at 1:57 AM
Reposted by Madelinenerd
tomkindlon.bsky.social
From Germany:

Anti-neuronal and anti-mitochondrial autoantibodies are associated with lower functional status and more severe respiratory symptoms in post COVID syndrome

www.frontiersin.org/journals/imm...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC
Anti-neuronal and anti-mitochondrial autoantibodies are associated with lower functional status and more severe respiratory symptoms in post COVID syndrome — Vogelgesang et al. "The present exploratory study showed an association between the auto-Abs and the disease without implying a causal relationship"
October 1, 2025 at 1:08 AM