Lupus UK
@lupusuk.bsky.social
The national registered charity supporting people with #lupus
This #InternationalVolunteerDay, we would like to say a massive THANK YOU to all our amazing volunteers who dedicate their time to help our work supporting people with #lupus. 💜
December 5, 2025 at 5:10 PM
This #InternationalVolunteerDay, we would like to say a massive THANK YOU to all our amazing volunteers who dedicate their time to help our work supporting people with #lupus. 💜
Features include: Screen Reader, Translation, Styling Options Reading Aids.
Visit lupusuk.org.uk/recite-me-accessibility-support/ for more!
#Accessibility #AssistiveTechnology #AccessibilityTools
Visit lupusuk.org.uk/recite-me-accessibility-support/ for more!
#Accessibility #AssistiveTechnology #AccessibilityTools
December 4, 2025 at 2:30 PM
Features include: Screen Reader, Translation, Styling Options Reading Aids.
Visit lupusuk.org.uk/recite-me-accessibility-support/ for more!
#Accessibility #AssistiveTechnology #AccessibilityTools
Visit lupusuk.org.uk/recite-me-accessibility-support/ for more!
#Accessibility #AssistiveTechnology #AccessibilityTools
Did you know, we provide ReciteMe accessibility and language support online?
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
December 4, 2025 at 2:30 PM
Did you know, we provide ReciteMe accessibility and language support online?
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
Have you seen our birthday video celebrating 35 Years of Lupus UK? 💜
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
December 1, 2025 at 2:30 PM
Have you seen our birthday video celebrating 35 Years of Lupus UK? 💜
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Thank you to the wonderful team at Guy's Hospital for holding an awareness stand during Lupus Awareness Month last month! 💜
November 28, 2025 at 4:45 PM
Thank you to the wonderful team at Guy's Hospital for holding an awareness stand during Lupus Awareness Month last month! 💜
During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely.
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
November 21, 2025 at 2:02 PM
During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely.
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The 2026 Edgar Stene Essay Prize is open now! Participate to share your story of family life with lupus.
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
November 20, 2025 at 5:30 PM
The 2026 Edgar Stene Essay Prize is open now! Participate to share your story of family life with lupus.
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
November 19, 2025 at 4:08 PM
Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
It’s simple -
1. Choose the campaign that best suits you
2. Set up your fundraising page on JustGiving and link it to Lupus UK
3. Share it on social media, or email your special link to your friends and family
4. Share your pictures on social media, tag us and #LupusUK
1. Choose the campaign that best suits you
2. Set up your fundraising page on JustGiving and link it to Lupus UK
3. Share it on social media, or email your special link to your friends and family
4. Share your pictures on social media, tag us and #LupusUK
November 15, 2025 at 12:02 PM
It’s simple -
1. Choose the campaign that best suits you
2. Set up your fundraising page on JustGiving and link it to Lupus UK
3. Share it on social media, or email your special link to your friends and family
4. Share your pictures on social media, tag us and #LupusUK
1. Choose the campaign that best suits you
2. Set up your fundraising page on JustGiving and link it to Lupus UK
3. Share it on social media, or email your special link to your friends and family
4. Share your pictures on social media, tag us and #LupusUK
This year for our 35th Birthday, we are asking you to Pick & Mix our fundraising campaigns and support us by raising vital funds for EVERYONE in our community living with lupus or waiting for a diagnosis. 💜
November 15, 2025 at 12:01 PM
This year for our 35th Birthday, we are asking you to Pick & Mix our fundraising campaigns and support us by raising vital funds for EVERYONE in our community living with lupus or waiting for a diagnosis. 💜
November 14, 2025 at 12:20 PM
For one year only, you can purchase 5 mystery packs of #Christmas cards for £10 over on our shop!
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
November 7, 2025 at 12:30 PM
For one year only, you can purchase 5 mystery packs of #Christmas cards for £10 over on our shop!
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
Get yours now at https://lupusuk.org.uk/store/Mystery-Pack-of-5-Christmas-Cards-p779456958 💜
Order before December 12th to receive your packs on time and avoid disappointment! ✉️
#ChristmasCards
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
November 4, 2025 at 10:01 AM
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
Celebrating 35 Years of Lupus UK. 💜
Full video out 14.11.25
Full video out 14.11.25
November 3, 2025 at 4:14 PM
Celebrating 35 Years of Lupus UK. 💜
Full video out 14.11.25
Full video out 14.11.25
Today marks the final day of #LupusAwarenessMonth
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
October 31, 2025 at 5:30 PM
Today marks the final day of #LupusAwarenessMonth
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
Thank you to everyone who took part, whether by learning about #lupus, fundraising, resharing content or showing support, your involvement has made a real difference. 💜
You may have seen “CAR-T cell therapy” in the news recently as a potential new treatment for lupus. Want to learn more? Watch our 3-part series over on YouTube!
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
October 26, 2025 at 12:01 PM
You may have seen “CAR-T cell therapy” in the news recently as a potential new treatment for lupus. Want to learn more? Watch our 3-part series over on YouTube!
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
- What is lupus?
- What Is CAR T-Cell Therapy?
- Clinical Trials with CAR T-Cell Therapy
Watch here: http://bit.ly/3Wh6rRX
#Lupus #CarT
Invisible disabilities are conditions not immediately obvious to others and can often go unnoticed. Even though you might not see them, they can significantly impact a person's life.
October 25, 2025 at 6:02 PM
Invisible disabilities are conditions not immediately obvious to others and can often go unnoticed. Even though you might not see them, they can significantly impact a person's life.
Did you know that 35% of people with #lupus report symptoms of hairloss?
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
October 23, 2025 at 3:30 PM
Did you know that 35% of people with #lupus report symptoms of hairloss?
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience hairloss?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE #Hairloss
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
October 23, 2025 at 9:01 AM
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
ENCA, the Global foundation for Children, and families, with Juvenile rheumatic diseases, is hosting a free online event on important topics for patients and families affected by juvenile rheumatic conditions.
For more information and to sign up, visit www.encanetwork.org/event
For more information and to sign up, visit www.encanetwork.org/event
October 21, 2025 at 11:02 AM
ENCA, the Global foundation for Children, and families, with Juvenile rheumatic diseases, is hosting a free online event on important topics for patients and families affected by juvenile rheumatic conditions.
For more information and to sign up, visit www.encanetwork.org/event
For more information and to sign up, visit www.encanetwork.org/event
#Musculoskeletal (MSK) conditions like #lupus affect people at every age and hit hardest in the most deprived communities. (1/3)
October 20, 2025 at 2:31 PM
#Musculoskeletal (MSK) conditions like #lupus affect people at every age and hit hardest in the most deprived communities. (1/3)
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
October 18, 2025 at 9:01 AM
Come and join the Leeds Lupus Group for our next Coffee and Chat meeting on Saturday 8th November from 12:00pm to 2:00pm.
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
We are meeting at Starbucks (Leeds City Point), 9-11 St Pauls Street, King Street, Leeds, LS1 2HL.
Everyone is welcome to join! 💜
#Lupus is an unpredictable condition that can turn everyday life into a challenge, but together, we can make sure nobody faces it alone.
Every donation to Lupus UK helps fund research, provide support, and brings hope to thousands of families. 💜
Every donation to Lupus UK helps fund research, provide support, and brings hope to thousands of families. 💜
October 15, 2025 at 4:06 PM
#Lupus is an unpredictable condition that can turn everyday life into a challenge, but together, we can make sure nobody faces it alone.
Every donation to Lupus UK helps fund research, provide support, and brings hope to thousands of families. 💜
Every donation to Lupus UK helps fund research, provide support, and brings hope to thousands of families. 💜
Did you know that 50% of people with #lupus report symptoms of headaches or migraines?
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience headaches or migraines?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE
#Headaches #Migraines
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience headaches or migraines?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE
#Headaches #Migraines
October 14, 2025 at 4:20 PM
Did you know that 50% of people with #lupus report symptoms of headaches or migraines?
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience headaches or migraines?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE
#Headaches #Migraines
For more information on symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/
Do you experience headaches or migraines?
#LupusAwarenessMonth #KnowLupus #MakeLupusVisible #SLE
#Headaches #Migraines
You can read the full article here: https://lupusuk.org.uk/2025/10/13/my-lupus-story-by-steph/
Thank you, Steph for sharing your story this #LupusAwarenessMonth!
#Lupus #SLE
Thank you, Steph for sharing your story this #LupusAwarenessMonth!
#Lupus #SLE
October 13, 2025 at 4:30 PM
You can read the full article here: https://lupusuk.org.uk/2025/10/13/my-lupus-story-by-steph/
Thank you, Steph for sharing your story this #LupusAwarenessMonth!
#Lupus #SLE
Thank you, Steph for sharing your story this #LupusAwarenessMonth!
#Lupus #SLE