Lupus UK
@lupusuk.bsky.social
The national registered charity supporting people with #lupus
Chelsea, our Young People and Family Support Officer, has shared their experience of living with cutaneous lupus. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.
🔗https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
🔗https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
January 28, 2026 at 11:01 AM
Chelsea, our Young People and Family Support Officer, has shared their experience of living with cutaneous lupus. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.
🔗https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
🔗https://youtu.be/KTGtjo8tFq8
#Lupus #SLE #LupusCommunity #CutaneousLupus
Skilled at explaining complex information clearly and engagingly, with strong knowledge of the UK healthcare system?
Join us as a Policy and Communications Officer and play a key role in shaping Lupus UK’s policy work.
Apply by 12th February: https://bit.ly/3ZlCEsZ
Join us as a Policy and Communications Officer and play a key role in shaping Lupus UK’s policy work.
Apply by 12th February: https://bit.ly/3ZlCEsZ
January 27, 2026 at 11:03 AM
Skilled at explaining complex information clearly and engagingly, with strong knowledge of the UK healthcare system?
Join us as a Policy and Communications Officer and play a key role in shaping Lupus UK’s policy work.
Apply by 12th February: https://bit.ly/3ZlCEsZ
Join us as a Policy and Communications Officer and play a key role in shaping Lupus UK’s policy work.
Apply by 12th February: https://bit.ly/3ZlCEsZ
Our Virtual Dog Walk is back for 2026! Have you signed up yet? 🐾
For more info and to create your JustGiving page, visit https://bit.ly/3NyVPg9
By joining in, donating, or cheering us on, you’re helping to provide support, awareness and hope for the #lupus community. 💜
#LupusAwareness #SLE #Dog
For more info and to create your JustGiving page, visit https://bit.ly/3NyVPg9
By joining in, donating, or cheering us on, you’re helping to provide support, awareness and hope for the #lupus community. 💜
#LupusAwareness #SLE #Dog
January 23, 2026 at 4:04 PM
Our Virtual Dog Walk is back for 2026! Have you signed up yet? 🐾
For more info and to create your JustGiving page, visit https://bit.ly/3NyVPg9
By joining in, donating, or cheering us on, you’re helping to provide support, awareness and hope for the #lupus community. 💜
#LupusAwareness #SLE #Dog
For more info and to create your JustGiving page, visit https://bit.ly/3NyVPg9
By joining in, donating, or cheering us on, you’re helping to provide support, awareness and hope for the #lupus community. 💜
#LupusAwareness #SLE #Dog
NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales.
👉 Learn more at https://lupusuk.org.uk/latest-news/
#Lupus #LupusNephritis #Obinutuzumab
👉 Learn more at https://lupusuk.org.uk/latest-news/
#Lupus #LupusNephritis #Obinutuzumab
January 22, 2026 at 5:05 PM
NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales.
👉 Learn more at https://lupusuk.org.uk/latest-news/
#Lupus #LupusNephritis #Obinutuzumab
👉 Learn more at https://lupusuk.org.uk/latest-news/
#Lupus #LupusNephritis #Obinutuzumab
The ADAPT trial is now recruiting! Researchers from the University of Cambridge and UEA are inviting people with autoimmune diseases who experience daily fatigue to take part in an online research study investigating Pilates and Tai Chi classes!
🔗 Visit tinyurl.com/ADAPTweb for further information.
🔗 Visit tinyurl.com/ADAPTweb for further information.
January 21, 2026 at 3:30 PM
The ADAPT trial is now recruiting! Researchers from the University of Cambridge and UEA are inviting people with autoimmune diseases who experience daily fatigue to take part in an online research study investigating Pilates and Tai Chi classes!
🔗 Visit tinyurl.com/ADAPTweb for further information.
🔗 Visit tinyurl.com/ADAPTweb for further information.
Today is #InternationalDayOfAcceptance which promotes social acceptance and inclusion for individuals with #disabilities.
Living with a disability like #lupus can be difficult to accept and it's okay if you don't. Here are some things that can help with self acceptance:
Living with a disability like #lupus can be difficult to accept and it's okay if you don't. Here are some things that can help with self acceptance:
January 20, 2026 at 12:02 PM
Today is #InternationalDayOfAcceptance which promotes social acceptance and inclusion for individuals with #disabilities.
Living with a disability like #lupus can be difficult to accept and it's okay if you don't. Here are some things that can help with self acceptance:
Living with a disability like #lupus can be difficult to accept and it's okay if you don't. Here are some things that can help with self acceptance:
Join our email community! ✨
From January 2026, our E-Newsletter will be sent monthly, bringing you the latest news and events, research updates, blog articles, volunteer updates and more.
Sign up today to stay in the loop! 📩
🔗https://lupusuk.org.uk/newsletter-sign-up/
#Lupus #SLE #LupusCommunity
From January 2026, our E-Newsletter will be sent monthly, bringing you the latest news and events, research updates, blog articles, volunteer updates and more.
Sign up today to stay in the loop! 📩
🔗https://lupusuk.org.uk/newsletter-sign-up/
#Lupus #SLE #LupusCommunity
January 15, 2026 at 5:36 PM
Join our email community! ✨
From January 2026, our E-Newsletter will be sent monthly, bringing you the latest news and events, research updates, blog articles, volunteer updates and more.
Sign up today to stay in the loop! 📩
🔗https://lupusuk.org.uk/newsletter-sign-up/
#Lupus #SLE #LupusCommunity
From January 2026, our E-Newsletter will be sent monthly, bringing you the latest news and events, research updates, blog articles, volunteer updates and more.
Sign up today to stay in the loop! 📩
🔗https://lupusuk.org.uk/newsletter-sign-up/
#Lupus #SLE #LupusCommunity
We're hosting virtual events for Parents/Carers & Young People! 💻
You can find all upcoming events for 2026 at https://lupusuk.org.uk/youth-events/.
You'll also be able to sign up to our mailing lists.
📅 Our next Parents / Carers meeting will take place on January 29th. We hope to see you there! 💜
You can find all upcoming events for 2026 at https://lupusuk.org.uk/youth-events/.
You'll also be able to sign up to our mailing lists.
📅 Our next Parents / Carers meeting will take place on January 29th. We hope to see you there! 💜
January 13, 2026 at 11:02 AM
We're hosting virtual events for Parents/Carers & Young People! 💻
You can find all upcoming events for 2026 at https://lupusuk.org.uk/youth-events/.
You'll also be able to sign up to our mailing lists.
📅 Our next Parents / Carers meeting will take place on January 29th. We hope to see you there! 💜
You can find all upcoming events for 2026 at https://lupusuk.org.uk/youth-events/.
You'll also be able to sign up to our mailing lists.
📅 Our next Parents / Carers meeting will take place on January 29th. We hope to see you there! 💜
Did you know that we created a 3-part series on lupus, and CAR T-Cell Therapy?
If you want to learn more about how CAR T-Cell Therapy is being explored as a potential lupus treatment and clinical trials involving it, scan the QR code for more information or visit
https://bit.ly/4rgNRrv
If you want to learn more about how CAR T-Cell Therapy is being explored as a potential lupus treatment and clinical trials involving it, scan the QR code for more information or visit
https://bit.ly/4rgNRrv
January 6, 2026 at 3:03 PM
Did you know that we created a 3-part series on lupus, and CAR T-Cell Therapy?
If you want to learn more about how CAR T-Cell Therapy is being explored as a potential lupus treatment and clinical trials involving it, scan the QR code for more information or visit
https://bit.ly/4rgNRrv
If you want to learn more about how CAR T-Cell Therapy is being explored as a potential lupus treatment and clinical trials involving it, scan the QR code for more information or visit
https://bit.ly/4rgNRrv
Wishing everyone a very #HappyNewYear from all of us at Lupus UK! ✨💜
January 1, 2026 at 12:02 PM
Wishing everyone a very #HappyNewYear from all of us at Lupus UK! ✨💜
Thank you to our wonderful community and everyone who supported us in 2025! Your kindness has made a real difference for people living with #lupus.💜
We wish you a safe & happy holiday! 💜
We wish you a safe & happy holiday! 💜
December 23, 2025 at 2:03 PM
Thank you to our wonderful community and everyone who supported us in 2025! Your kindness has made a real difference for people living with #lupus.💜
We wish you a safe & happy holiday! 💜
We wish you a safe & happy holiday! 💜
The General Pharmaceutical Council (GPhC) makes sure pharmacy is safe and effective for patients and the public. They are inviting patients, carers, and members of the public to share their views on pharmacy services across Great Britain.
There are two ways to get involved:
There are two ways to get involved:
December 22, 2025 at 6:03 PM
The General Pharmaceutical Council (GPhC) makes sure pharmacy is safe and effective for patients and the public. They are inviting patients, carers, and members of the public to share their views on pharmacy services across Great Britain.
There are two ways to get involved:
There are two ways to get involved:
Are you passionate about creating high-quality, trustworthy, and up-to-date health resources for the #lupus community?
Applications are now open to join the Lupus UK staff team as a Health Information Officer!
🔗Apply now: https://bit.ly/456zTie
🗓️ Closing 4th January 2026.
Applications are now open to join the Lupus UK staff team as a Health Information Officer!
🔗Apply now: https://bit.ly/456zTie
🗓️ Closing 4th January 2026.
December 19, 2025 at 1:03 PM
Are you passionate about creating high-quality, trustworthy, and up-to-date health resources for the #lupus community?
Applications are now open to join the Lupus UK staff team as a Health Information Officer!
🔗Apply now: https://bit.ly/456zTie
🗓️ Closing 4th January 2026.
Applications are now open to join the Lupus UK staff team as a Health Information Officer!
🔗Apply now: https://bit.ly/456zTie
🗓️ Closing 4th January 2026.
Chelsea, our Young People and Family Support Officer, has shared their experience on what it's like to live with lupus as a young person. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.
🔗https://youtu.be/StdzyINaI8M
🔗https://youtu.be/StdzyINaI8M
December 16, 2025 at 5:31 PM
Chelsea, our Young People and Family Support Officer, has shared their experience on what it's like to live with lupus as a young person. You can watch their presentation on our YouTube Channel (@LupusUkOfficial) or by clicking the link below.
🔗https://youtu.be/StdzyINaI8M
🔗https://youtu.be/StdzyINaI8M
If you're a Lupus UK member, you'll receive your membership renewal letter soon (if you haven't already)!
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
December 13, 2025 at 11:01 AM
If you're a Lupus UK member, you'll receive your membership renewal letter soon (if you haven't already)!
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
Alternatively, you can renew your membership online at https://lupusuk.org.uk/join-lupus-uk/ 📱💻
One Mission, 5 aims & 10 Year Goals. Read about your new Lupus UK Strategy at https://lupusuk.org.uk/strategy/
December 12, 2025 at 4:30 PM
One Mission, 5 aims & 10 Year Goals. Read about your new Lupus UK Strategy at https://lupusuk.org.uk/strategy/
Looking to purchase from our shop? Please place any orders by Thursday 18th December. Orders placed after 2pm on this date will be sent out on Friday 2nd January 2026.
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
December 12, 2025 at 2:03 PM
Looking to purchase from our shop? Please place any orders by Thursday 18th December. Orders placed after 2pm on this date will be sent out on Friday 2nd January 2026.
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
Our mystery pack of 5 Christmas Cards are still available for purchase!
Visit https://lupusuk.org.uk/store/ for more
Thank you 💜
Lupus UK Head Office will be closed from 24th December - 2nd January 2026.
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
December 11, 2025 at 3:30 PM
Lupus UK Head Office will be closed from 24th December - 2nd January 2026.
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
Helpline and support services will resume from 5th January.
You can still find information at www.lupusuk.org.uk, or please contact 111 or 999 If you require immediate support during this time.
Enjoy the festive period! 💜
This #InternationalVolunteerDay, we would like to say a massive THANK YOU to all our amazing volunteers who dedicate their time to help our work supporting people with #lupus. 💜
December 5, 2025 at 5:10 PM
This #InternationalVolunteerDay, we would like to say a massive THANK YOU to all our amazing volunteers who dedicate their time to help our work supporting people with #lupus. 💜
Did you know, we provide ReciteMe accessibility and language support online?
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
December 4, 2025 at 2:30 PM
Did you know, we provide ReciteMe accessibility and language support online?
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
You can access a customisable toolbar on our website to read and understand content in a way that suits your needs.
Have you seen our birthday video celebrating 35 Years of Lupus UK? 💜
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
December 1, 2025 at 2:30 PM
Have you seen our birthday video celebrating 35 Years of Lupus UK? 💜
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Watch the full video on our YouTube channel here: https://youtu.be/F432b3u4Ju8?si=fKukFsNYrusg6Rz9
Thank you to the wonderful team at Guy's Hospital for holding an awareness stand during Lupus Awareness Month last month! 💜
November 28, 2025 at 4:45 PM
Thank you to the wonderful team at Guy's Hospital for holding an awareness stand during Lupus Awareness Month last month! 💜
During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely.
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
November 21, 2025 at 2:02 PM
During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely.
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The NHS is offering free vaccines this winter to help protect those most at risk.
For more information on winter vaccinations, read our article at: https://bit.ly/4impV1O
The 2026 Edgar Stene Essay Prize is open now! Participate to share your story of family life with lupus.
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
November 20, 2025 at 5:30 PM
The 2026 Edgar Stene Essay Prize is open now! Participate to share your story of family life with lupus.
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
You can find the competition theme, rules, and how to enter on our website here: https://lupusuk.org.uk/2025/11/20/edgar-stene-prize/
Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
November 19, 2025 at 4:08 PM
Aged 11-18 years and in full-time mainstream education? Living with a long-term health condition like Lupus?
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!
Complete the INSCHOOL Needs Assessment survey to help improve the school lives of other young people with health conditions - and be entered to win a £50 GiftPay voucher!