Long Covid SOS
@longcovidsos.bsky.social
UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rehabilitation
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Recognition - Research - Rehabilitation
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
We were a little concerned by the expert at 21:19 claiming COVID would eventually become very mild as offered no evidence!
November 20, 2025 at 11:55 PM
We were a little concerned by the expert at 21:19 claiming COVID would eventually become very mild as offered no evidence!
NB the medic interviewed at 21:19 saying Covid 19 will eventually go away offered zero evidence and this is not proven in any way.
November 20, 2025 at 10:27 PM
NB the medic interviewed at 21:19 saying Covid 19 will eventually go away offered zero evidence and this is not proven in any way.
The Inquiry report states that by October 2020 the government was sufficiently well aware of the scale and severity of #LongCovid and should have incorporated the risk of LC into decision making, as well as communicated the risk of long term sequelae to the public.
They failed us.
They failed us.
November 20, 2025 at 9:09 PM
The Inquiry report states that by October 2020 the government was sufficiently well aware of the scale and severity of #LongCovid and should have incorporated the risk of LC into decision making, as well as communicated the risk of long term sequelae to the public.
They failed us.
They failed us.
The Government knew the long-term risks posed by viral infections yet failing to inform the public or collect new data undermined &invalidated those with Long Covid, created stigma and delayed access to the right care.
Joint press release from the LC Groups:
www.longcovidsos.org/post/covid-i...
Joint press release from the LC Groups:
www.longcovidsos.org/post/covid-i...
“TOO LITTLE, TOO LATE”, Inquiry exposes government failures behind the Long Covid crisis
Press Release: Inquiry exposes government failures behind the Long Covid crisis. Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action.
...
www.longcovidsos.org
November 20, 2025 at 5:37 PM
The Government knew the long-term risks posed by viral infections yet failing to inform the public or collect new data undermined &invalidated those with Long Covid, created stigma and delayed access to the right care.
Joint press release from the LC Groups:
www.longcovidsos.org/post/covid-i...
Joint press release from the LC Groups:
www.longcovidsos.org/post/covid-i...
Thank you @drjoepajak.bsky.social - our team really appreciates your support for our advocacy and information.
November 14, 2025 at 9:38 PM
Thank you @drjoepajak.bsky.social - our team really appreciates your support for our advocacy and information.
We have also launched our fundraising campaign for a paid member of staff to act as Campaigns Manager for LCSOS. Our small volunteer team desperately need support to keep advocating for #pwLC, raising awareness, and being a trusted voice for #LongCovid
localgiving.org/fundraising/...
localgiving.org/fundraising/...
Long Covid SOS Campaigns Manager | Localgiving
localgiving.org
November 14, 2025 at 4:37 PM
We have also launched our fundraising campaign for a paid member of staff to act as Campaigns Manager for LCSOS. Our small volunteer team desperately need support to keep advocating for #pwLC, raising awareness, and being a trusted voice for #LongCovid
localgiving.org/fundraising/...
localgiving.org/fundraising/...
We have written an open letter to Wes Streeting, Health Secretary, calling for more research funding and public health prevention in #LongCovid, and highlighting the vital rights every #pwLC should have in our Bill of Rights
Longcovidsos.org/post/letter-health-secretary
Longcovidsos.org/post/letter-health-secretary
People with Long Covid are still being ignored: open letter to the Health Secretary
Unfortunately, more than five years on from the pandemic, we face the need to continually apply pressure to healthcare decision makers, and feel abandoned and ignored.
Longcovidsos.org
November 14, 2025 at 4:37 PM
We have written an open letter to Wes Streeting, Health Secretary, calling for more research funding and public health prevention in #LongCovid, and highlighting the vital rights every #pwLC should have in our Bill of Rights
Longcovidsos.org/post/letter-health-secretary
Longcovidsos.org/post/letter-health-secretary