Thanks for sharing, looking forward to reading this!

If you’ve found our work helpful this year, toss us some dough to keep it going into 2026! Every $ helps our small org reach our goals.

We couldn't do this without you 💜💜 actionnetwork.org/fundraising/...

Long COVID Essentials (LCE) was created via a collaboration w/ @thesicktimes.org. It was written by and for people living with LC & associated conditions, and reviewed by leading medical experts.

31,000+ people have already accessed LCE, & it’s being used to train research assistants!

tiny.cc/LCE

Long COVID Justice exists to fight for the support, resources, and justice that our communities deserve. We’re thrilled to see our resources being used widely, like our Long COVID Essentials series.

Did our resources help you get the medical care you needed, shift your perspective, or build community connections? Have you checked out our Long COVID Essentials resource series (tiny.cc/LCE), webinars, or Resource Hub?

Let us know by making a gift at tiny.cc/give2lcj or sharing feedback!

When the public health infrastructure doesn’t support our needs, we organize to share lifesaving information and harm reduction supplies. When they try to silence us, we keep speaking up. When doctors ignore or gaslight us, we share resources & organize to fight for the care that we need.

As we look back on our work from the past year and forward toward what’s coming next, we’re grounding ourselves in the knowledge that mutual aid, collective care, and community defense are the future we need.

Thanks so much for sharing this fundraiser, and of course for all your labor, vision, and wisdom as a co-founder and former director! 💜

Thanks so much for sharing this! ❤️

yes! This is linked on our resource page, thank you!

So grateful for your work on this!

• Pacing, management and treatment guides for ME and LC, from @patientled.bsky.social x @meactnet.bsky.social, and ME/CFS Clinicians Coalition

• Essay on why doctors must learn to communicate better with patients with complex chronic disorders from @ubuffalo.bsky.social

• Factsheet series from @longcovidjustice.org and @thesicktimes.org ~and~ video series from @longcovidphysio.bsky.social with info on symptoms, finding care, tracking & managing symptoms

• Guidance for doctors on approving workplace accommodations from @nejm.org

Resource list includes:
• Summary of recent peer-reviewed research from @drseanmullen.bsky.social

• Evidence-based guidance to help clinicians with diagnosis & care: Guides from @coresinai.bsky.social and @batemanhornecenter.bsky.social and @bmj.com

As @batemanhornecenter.bsky.social explains: "These illnesses often lead to significant functional decline, loss of independence, and diminished quality of life. Yet many remain underdiagnosed or mismanaged due to gaps in training, inconsistent guidelines, and systemic barriers to care."

The fight for Long COVID justice is part of larger movements for health justice & disability justice. We need research, care & treatment for Long COVID and other infection-associated chronic conditions & illnesses (IACCs or IACIs)!

We're grateful for all the clinicians who created these resources, & we hope more will join them in providing effective, relevant, and evidence-based care to people living with Long COVID and associated conditions!

Many healthcare providers are uniformed or dismissive of Long COVID and associated conditions like ME, POTS, and more. Providers may respond better to resources created specifically for doctors + clinicians - so we’re gathering them on a new webpage!

Got another resource to recommend? Let us know!

Thanks for tagging us, will check it out!