Long COVID Justice
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longcovidjustice.org
Long COVID Justice
@longcovidjustice.org
4.6K followers 1.1K following 360 posts
We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
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longcovidjustice.org
Long COVID Essentials (LCE) was created via a collaboration w/ @thesicktimes.org. It was written by and for people living with LC & associated conditions, and reviewed by leading medical experts.

31,000+ people have already accessed LCE, & it’s being used to train research assistants!

tiny.cc/LCE
November 11, 2025 at 6:11 PM
longcovidjustice.org
We're thinking about these powerful words from disability justice activist @miamingus.bsky.social, and reflecting on all the work we must do to keep fighting for Long COVID justice and #disabilityjustice!
Black text overlaid on a pink and yellow gradient circle says: “It is in the interest of those in power to keep people uncared for, sick and dependent on dwindling crumbs. This is one reason why ableism and poverty are so effective and why they are so often inseparable. - Mia MIngus.” Long COVID Justice logo is in the lower right.
November 11, 2025 at 6:11 PM
longcovidjustice.org
Pandemic precautions should be universal & sacred!

We’re gathering resources to make sure we can keep this work going into 2026.

Have you found our work helpful? Let us know by making a gift tiny.cc/give2lcj or sharing a comment! Every dollar makes a big impact for our small org, from $5 to $500
Black text overlaid on purple circles says: “Pandemic precautions should be universal and sacred. Mutual aid, collective, care, resistance. We keep us safe.” There are illustrations of a KN95 mask and raised fist in purple tones. Long COVID Justice logo is in the lower right.
November 5, 2025 at 6:41 PM
longcovidjustice.org
ICYMI: A call for all People Living with HIV and allies: it's time to reignite our movement to fight for our lives and improve our quality of life.

HIV COMPLEXITIES
THURS OCT 16, 6:30–8:00 PM ET
Zoom • Free!

Learn more & register: longcovidjustice.org/events/#hcpweb
Event flyer with black wavy banner with orange and aqua text that says: “HIV Complexities, October 16, a webinar and community convo for PLHIV & complex chronic conditions.” Below this is a pastel gradient background with a black circle featuring four round photos of the speakers. The photos are labeled with their names: “Tori Cooper,” "Sylvester Askins, Jr.,“John Chaffin,” “Broderick Disroe,” and “Gabriel San Emeterio.” Additional text below says: “Presented by Long COVID Justice and S4HI, www.tiny.cc/hcp1024.
October 15, 2025 at 4:46 PM
longcovidjustice.org
Learn more & fill out the interest form at bit.ly/hiv-group
Background is a light rainbow gradient. Black text across the top says: “The Complexities of Living with HIV: A Support Group.” Below this is a black text box with white and orange text that says: “Are you living with HIV and also experiencing any of these? Chronic fatigue Chronic pain Brain fog or memory/thinking issues Frailty New or worsening health issues after a COVID infection, leading to Long COVID* or conditions like ME/CFS, POTS, or dysautonomia If any of this resonates with you, this group is for you. * Long COVID = symptoms that last 3+ months after infection, especially if they were new or worsened post-COVID.” S3: Background is a light rainbow gradient. Black text across the top says: “The Complexities of Living with HIV: A Support Group.” Below this is a black text box with white and orange text that says: “Format: Open Zoom sessions (pre-registration required). Drop-in style - join any or all sessions! Schedule: Every Thursday for 10 sessions, October 2 - December 11, 2025 Time: TBD - Vote on a timeslot on the interest form Cost: Free! Questions? Write to: gabriel@s4hi.org Learn more & fill out the form: bit.ly/hiv-group”
September 11, 2025 at 2:25 PM
longcovidjustice.org
We're excited to announce our new support group for people living with HIV and other complex conditions, hosted by Gabriel San Emeterio, LMSW @gabrielhse.bsky.social, Senior Fellow at Long COVID Justice and member of the HIV Caucus @plhivcaucus.bsky.social

Interest form & details: bit.ly/hiv-group
September 11, 2025 at 2:25 PM
longcovidjustice.org
Join us for the webinar! tiny.cc/hcp1024
Pastel rainbow gradient background with wavy folding organic shapes. Large dark navy text says: “Our work is rooted in the knowledge that our many struggles for health, justice, care, and liberation are connected. COVID-19, like other pandemic viruses including HIV and polio, leads to disability & chronic disease. The impacts of these pandemics hit hardest in already marginalized communities. And we’ve always had to rely on each other when governments & healthcare systems abandoned us. We’ll never stop fighting for the care we need & deserve.” Below this, a dark navy text box with orange text says: “HIV Complexities webinar, THURS OCT 16, 6:30–8:00 PM ET, ZOOM. REGISTER: tiny.cc/hcp1024.” In the lower right corner, there are logos for Long COVID Justice + S4HI.
August 22, 2025 at 3:45 PM
longcovidjustice.org
Join us for an urgent conversation about disability justice for People Living with HIV #PLHIV and, often underdiagnosed, co-occurring complex chronic conditions like #LongCOVID, #MECFS, & frailty.

REGISTER: tiny.cc/hcp1024

Recording & resources will be sent to all who register.
Pastel rainbow gradient background. Large dark navy text box with orange text that says: “HIV Complexities. Join us for an urgent conversation about disability justice for People Living with HIV and co-occurring complex chronic conditions like Long COVID, ME/CFS, & frailty. THURS OCT 16 6:30–8:00 PM ET – ZOOM. REGISTER: tiny.cc/hcp1024” Below this are logos for Long COVID Justice and S4HI.
August 22, 2025 at 3:45 PM
longcovidjustice.org
Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME.

Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me

This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social
A purple and teal ombre image has blue and black text that says: “Dealing with Severe ME after COVID-19? tips for living with severe myalgic encephalomyelitis (ME), including: • understanding common symptoms • tips for managing your energy • finding care & support • resources for patients and doctors The footer reads, "Long COVID Essentials, www.tiny.cc/LCE. A series by The Sick Times x Long COVID Justice."
August 8, 2025 at 6:24 PM
longcovidjustice.org
Jenna was also a lead artist in a community memorial called Long COVID Dreams, that asked people with LC, “What tethers you to hope?”

longcovidjustice.org/naming-the-lost
Mint green background with a photo of an art installation hung on a black metal fence. A sign hanging on the fence says “Long COVID Dreams” and below this is an artistic depiction of a bed, featuring two pillows and a quilt. Each square in the quilt is made by a different person living with Long COVID. Crouched in front of the quilt are the two artists who created this project, Jenna Bitar and Luca Stancato along with a community member who helped install the quilt. Below the photo, additional text says: Check out Long COVID Dreams, a community memorial co-created by Jenna, that asked people with LC, “What tethers you to hope?” Get the link: longcovidjustice.org/fellows” Along the bottom edge is a black text box with mint text that says: “Listening for the Long Haul: Long COVID oral history.”
August 6, 2025 at 3:37 PM
longcovidjustice.org
Check out Jenna's work: This essay was written for the Color of Long COVID series, produced by Disability Visibility & The Sick Times. thesicktimes.org/2025/01/17/instead-of-supporting-people-with-long-covid-our-government-funds-a-genocide/
A screenshot of an article title and photo. The article title is “Instead of supporting people with Long COVID, our government funds a genocide.” The photo is of Nakba Day 2021 in Bay Ridge, Brooklyn. Jenna Laila Bitar is in the center, with two other friends with Long COVID on the right. The late activist and nurse, Shatzi Weisberger, is to the left of Bitar.” Below the photo, additional text says: “Jenna Laila Bitar. Read Jenna’s essay written for the Color of Long COVID series, produced by Disability Visibility & The Sick Times. Get the link: longcovidjustice.org/fellows” Along the bottom edge is a black text box with mint text that says: “Listening for the Long Haul: Long COVID oral history.”
August 6, 2025 at 3:37 PM
longcovidjustice.org
In this post, you will meet Jenna Laila Bitar, who is a “Narrative Architect” with Listening for the Long Haul.
Mint background with yellow and green text box across the top, with black text that says: “Jenna Laila Bitar, Narrative Architect. Jenna Laila Bitar (they/them) is a Narrative Architect with Listening for the Long Haul, a Long COVID oral history project, and a BIPOC Communicators Fellow with Long COVID Justice. Jenna loves rest, crip wisdom, art, their bed, nature, and napping with their cat Rage. They've been living with Long COVID, ME/CFS, and POTS since 2020.” In the upper left is a round photo of Jenna with their cat. Additional text along the bottom says: “Follow Jenna on Instagram: @j_nnna.”
August 6, 2025 at 3:37 PM
longcovidjustice.org
Meet Jenna! Over the next few weeks, we’ll be introducing people who are working to shift the narrative around Long COVID, as part of our Listening for the Long Haul (LFLH) project.
Background is a yellow and mint green gradient. Large black text says: “My crip kin hold the deepest and most profound wisdom about how to survive in a world of denialism, gaslighting, and racial capitalism - surviving by taking care of each other through this pandemic and the next. - Jenna Bitar.” In the lower left corner is a large image of Jenna, overlaid with green text that says “Meet Jenna.” Additional text says: “Listening for the Long Haul, Long COVID oral history project.” Below this are logos for History Moves and Long COVID Justice. Background is a yellow and mint green gradient. Large black text says: “Most disabled people have been violently rejected from health care, work, family systems, and even activist spaces. We survive by sharing knowledge, resources, and tools, with care webs we weave together. - Jenna Bitar.” In the lower left corner is a large image of Jenna, overlaid with green text that says “Meet Jenna.” Additional text says: “Listening for the Long Haul, Long COVID oral history project.” Below this are logos for History Moves and Long COVID Justice.
August 6, 2025 at 3:37 PM
longcovidjustice.org
Huge thank you to @wordforwordfactory.bsky.social + @itsbabs.bsky.social for your massive generosity, creativity & labor that helps keep our communities cute, safe, and sassy.
Soft pastel radiant background. In the center is a large heart in the colors of the progress pride flag, with text that says “We keep us safe.”
July 30, 2025 at 5:11 PM
longcovidjustice.org
While you're at it, be sure to check out all of @wordforwordfactory.bsky.social 's amazing designs, from their Chronic Illness & Disability and other collections
Across the top is a black text box with a wavy bottom edge, and pink text that says: “Check out all of Word for Word’s chronic illness & other collections! (these are not part of the benefit :)” Below this is a photo of three pinback buttons. One has a black background and green text that says: “COVID KILLJOY.” Another has a blue background and yellow text that says: “MEDICAL MYSTERY.” The third has a lavender background and orange and green text laid out in winding, disjointed way that says “Running on crip time, a non-linear odyssey.”
July 30, 2025 at 5:11 PM
longcovidjustice.org
More about the project from @wordforwordfactory.bsky.social:
"In May @piinball_wiitch reached out to me about pressing some cute queer community care, pro-masking buttons she designed, to give out at @dykedayla in June."
A photo of a pinback button on a black denim background. The pin has a white background with a hot pink triangle pointing upwards, and black text in the form of an acronym that says: "Yeah I’m QUEER: Questioning Unqualified Eugenicists Extremely Raucously.” Below this is a black wavy shape with a purple heart and text that says: “WordForWordFactory.com.” A photo of a pinback button on a black denim background. The pin has a yellow background and black text that says: “Pansies for Prevention” above an illustration of two purple pansy flowers who are looking at each other while wearing respirator masks. Below this is a black wavy shape with a purple heart and text that says: “WordForWordFactory.com.” A photo of a pinback button on a black denim background. The pin has a white background with black distressed text that says “Punks for clean air” and an image of a black respirator mask with metal spikes and a pink triangle on it. Below this is a black wavy shape with a purple heart and text that says: “WordForWordFactory.com.”
July 30, 2025 at 5:11 PM
longcovidjustice.org
Exciting news from the world of cute queer community care: Word for Word @wordforwordfactory.bsky.social + babs @itsbabs.bsky.social have teamed up on a new series of pinback buttons as a benefit for @longcovidjustice.org & @thesicktimes.org !

Available thru 8/31 only at WordForWordFactory.com.
A photo of three pinback buttons on a black denim background. The first button has a white background with a hot pink triangle pointing upwards, and black text in the form of an acronym that says: "Yeah I’m QUEER: Questioning Unqualified Eugenicists Extremely Raucously.” The second pin has a yellow background and black text that says: “Pansies for Prevention” above an illustration of two purple pansy flowers who are looking at each other while wearing respirator masks. The third pin has a white background with black distressed text that says “Punks for clean air” and an image of a black respirator mask with metal spikes and a pink triangle on it. There are also decorative pink and purple sparkles around the pins.
July 30, 2025 at 5:11 PM
longcovidjustice.org
Our work remains as urgent as ever — we’ll continue to raise awareness about the ongoing pandemic and fight for care & justice for all. We hope these resources will be useful for taking care of yourself and your communities. #WeProtectEachOther
July 23, 2025 at 6:40 PM
longcovidjustice.org
ICYMI: Did you know that Long COVID Justice and The Sick Times worked together to create a series of 30+ resource sheets about Long COVID and associated diseases (LCAC)?
‪
@longcovidjustice.org‬ x @thesicktimes.bsky.social

Check out our Long COVID Essential series: www.tiny.cc/LCE
Purple and teal gradient background with a purple starburst shape with white text that says “ICYMI.” There are three white text boxes with black text that says: A project by The Sick Times x Long COVID Justice. 30+resource sheets for patients & doctors. Designed by & for people living with Long COVID and associated conditions.” Below this is a blue illustration of a link and a blue oval with white text that says: “tiny.cc/LCE.”
July 23, 2025 at 6:40 PM
longcovidjustice.org
Aqua background with a quote from @patty_berne. Black text says: “Disability Justice was built because the Disability Rights Movement and Disability Studies do not inherently centralize the needs and experiences of folks experiencing intersectional oppression, such as disabled people of color, immigrants with disabilities, queers with disabilities, trans and gender non-conforming people with disabilities, people with disabilities who are houseless, people with disabilities who are incarcerated, people with disabilities who have had their ancestral lands stolen, amongst others.”
July 16, 2025 at 4:51 PM
longcovidjustice.org
Our hearts are with everyone mourning the recent passing of #PattyBerne, the visionary Co-Founder and Executive and Artistic Director of #SinsInvalid — may she rest in power. #PattyLivesThroughUs

Learn more about Patty's legacy & celebrations of life at sinsinvalid.org
Patty Berne, a Japanese-Haitian person with light brown skin, smiles playfully with love and light shining from their brown eyes. They wear an off the shoulder opalescent blue dress and an amethyst pendant. Their brown hair is pulled back into their signature two buns. Behind Patty is a pink background with radiant red and yellow flowers. At the top of the image, iridescent capital letters spell out “PATTY LIVES THROUGH US.” On the bottom right corner is Sins Invalid’s logo, a black rectangular box with white letters that read “Sins Invalid.”
July 16, 2025 at 4:51 PM
longcovidjustice.org
There is no #PandemicJustice without #DisabilityJustice.

We’re with you in solidarity, grief and rage at growing authoritarianism and eugenics in the U.S. and beyond. And we’re not giving up.
Background is two shades of aqua with black text that says: “There is no pandemic justice without disability justice.” There are illustrations of aqua leafy branches in the upper right and lower left corners, and a yellow heart illustration in the lower right.
July 16, 2025 at 4:51 PM
longcovidjustice.org
Thinking of calling reps from other states?

@5calls.org and congressional staffers are recommending that you only call YOUR reps, since calling reps who don't represent you might lead to them dismissing all the calls as irrelevant ("Eh, it's just libs from out of state, who cares.")
July 2, 2025 at 9:18 PM
longcovidjustice.org
Phonebanking tonight! National phone bank to Medicaid recipients urging them to call their Senators ahead of the upcoming budget vote to stop the cuts and save Medicaid! mobilize.us/mobilize/eve...
Aqua background with a screenshot of a graphic that says: “Phone bank to save Medicaid! Hosted by Human Rights Campaign. Time: Weds July 2, 6-8pm EDT. Location: Virtual event, join from anywhere. mobilize.us/mobilize/event/808348”
July 2, 2025 at 9:18 PM
longcovidjustice.org
Tell your Reps: Vote against the Big Deadly Bill!

Calls needed ASAP, especially if you have Republican reps! You don’t have to be an expert to make a call, & calling scripts and tools make it quick & easy.

Get scripts & tools via the 5 Calls app @5calls, or use AAPD’s tool: www.aapd.com/medicaid
Aqua and purple gradient background. A large illustration of a purple hand holding a phone with black text on the screen that says: “Call your reps now.” Additional text says: “The Senate passed the Big Deadly Bill & sent it back to the House - Demand your reps vote NO. Calls needed ASAP! Get scripts & tools via the 5 Calls app, or use AAPD’s tool: aapd.com/medicaid”
July 2, 2025 at 9:18 PM