The Life Raft Group - GIST Support
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liferaftgroup.bsky.social
The Life Raft Group - GIST Support
@liferaftgroup.bsky.social
Enhancing survival and quality of life for people living with GIST and other rare diseases through patient-powered research, education and empowerment and global advocacy efforts.

https://liferaftgroup.org/
liferaftgroup.org/donate
Day 2 highlights #CTOS2025 w/Exec. Dir. Sara Rothschild, Sr. Dir. Data Mgmt & Research Denisse Evans, & Data Analyst Jerry Call, discussing LRG posters with GIST researchers, & oncologists. Register for Updates from CTOS w/ Dr. Sobczuk bit.ly/CTOS-updates #GISTResearch #PatientReportedData
November 14, 2025 at 6:41 PM
The Life Raft Group is proud to have a strong scientific presence at #CTOS2025. Executive Director Sara Rothschild and Sr. Director of Data Management Denisse Evans are presenting our latest patient registry research through posters, a presentation, and collaboration. #GISTresearch
November 11, 2025 at 7:04 PM
We are deeply saddened to learn of the passing of Dr. Brian A. Van Tine. Dr. Van Tine was a brilliant sarcoma oncologist and a true ally to the GIST community. His research, compassion, and partnership made a meaningful impact on patients and families.
November 10, 2025 at 8:55 PM
Want your poker skills to make a difference? Every hand at Texas Hold’em Poker Tournament helps bring hope to the GIST community. Join us for an unforgettable evening! bit.ly/LRGPoker2025 #poker #GISTawareness
#novemberevents #OaklandNJEvents #fallevents #fundraiser
November 5, 2025 at 4:11 PM
October Patient of the Month Sandra shares how support and care turned her GIST diagnosis into hope and strength. Read more: bit.ly/POMOct2025
#patientofthemonth #patientstory #ThrivingTogether
October 27, 2025 at 2:07 PM
What if doctors could track GIST progression through a simple blood test? Find out how #ctDNA is transforming patient care with Dr. Jonathan Trent and Denisse Evans on November 10 at 2:00 PM ET in the #INSIGHTStudy session. bit.ly/ctDNA-INSIGHT #GISTEducation
October 24, 2025 at 2:27 PM
Get ready to go all in! Texas Hold’em is coming to #Oakland NJ. Cards, competition, and a cause you can’t miss! Sign up now: bit.ly/LRGPoker2025
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
October 23, 2025 at 2:53 PM
Join the fight to keep brigimadlin in development for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin
October 22, 2025 at 6:55 PM
The day has come! Rachel LoCurto goes Over the Edge for GIST patients!
Stay tuned for more video and photos. #GISTAwareness
Donate: bit.ly/LRG-A-RLoCurto
October 15, 2025 at 5:55 PM
Rachel goes over the edge tomorrow at 1:30! Stay tuned for updates & donate today. bit.ly/LRG-A-RLoCurto
#rappelling #GISTAwareness #LRGAthletes #GISTstrong #NJEvents #PledgeTheEdge
October 14, 2025 at 8:40 PM
What about- Did you know? There is an Expanded Access Program that gives advanced GIST patients who’ve progressed on imatinib access to #bezuclastinib + #sunitinib. For more information: bit.ly/CB-EAP
#EAP #GISTEducation #ExpandedAccessProgram #clinicaltrials
October 10, 2025 at 7:01 PM