The Life Raft Group - GIST Support
@liferaftgroup.bsky.social
Enhancing survival and quality of life for people living with GIST and other rare diseases through patient-powered research, education and empowerment and global advocacy efforts.
https://liferaftgroup.org/
liferaftgroup.org/donate
https://liferaftgroup.org/
liferaftgroup.org/donate
Day 2 highlights #CTOS2025 w/Exec. Dir. Sara Rothschild, Sr. Dir. Data Mgmt & Research Denisse Evans, & Data Analyst Jerry Call, discussing LRG posters with GIST researchers, & oncologists. Register for Updates from CTOS w/ Dr. Sobczuk bit.ly/CTOS-updates #GISTResearch #PatientReportedData
November 14, 2025 at 6:41 PM
Day 2 highlights #CTOS2025 w/Exec. Dir. Sara Rothschild, Sr. Dir. Data Mgmt & Research Denisse Evans, & Data Analyst Jerry Call, discussing LRG posters with GIST researchers, & oncologists. Register for Updates from CTOS w/ Dr. Sobczuk bit.ly/CTOS-updates #GISTResearch #PatientReportedData
Cheer Heather on as she takes on her first #HYROX race to raise awareness & funds for GIST! Encourage her here: bit.ly/HeatherKudo
Donate: bit.ly/LRG-A-HBliss #LRGAthletes #GISTstrong #GISTAwareness
Donate: bit.ly/LRG-A-HBliss #LRGAthletes #GISTstrong #GISTAwareness
November 14, 2025 at 3:23 PM
Cheer Heather on as she takes on her first #HYROX race to raise awareness & funds for GIST! Encourage her here: bit.ly/HeatherKudo
Donate: bit.ly/LRG-A-HBliss #LRGAthletes #GISTstrong #GISTAwareness
Donate: bit.ly/LRG-A-HBliss #LRGAthletes #GISTstrong #GISTAwareness
The recording for the #ctDNA INSIGHT Study is now available! Watch now: bit.ly/ctDNA-rec #INSIGHTStudy #GISTEducation
November 13, 2025 at 3:20 PM
The recording for the #ctDNA INSIGHT Study is now available! Watch now: bit.ly/ctDNA-rec #INSIGHTStudy #GISTEducation
Dr. Matthew Hemming presented his research at #CTOS2025 on exploiting metabolic dysregulation in SDH-deficient GIST, offering valuable insights into new strategies that may advance treatment options for this rare subtype. @sarcomalab.bsky.social
#GIST #SDHGIST #SarcomaResearch
#GIST #SDHGIST #SarcomaResearch
November 13, 2025 at 2:03 PM
Dr. Matthew Hemming presented his research at #CTOS2025 on exploiting metabolic dysregulation in SDH-deficient GIST, offering valuable insights into new strategies that may advance treatment options for this rare subtype. @sarcomalab.bsky.social
#GIST #SDHGIST #SarcomaResearch
#GIST #SDHGIST #SarcomaResearch
Your experience matters! For those who have taken #sunitinib for #GIST - by sharing what treatment has been like for you, you can help other patients and shape better care for the future.
Take this brief survey: bit.ly/sunitinib-su...
#DataMatters #GISTresearch
Take this brief survey: bit.ly/sunitinib-su...
#DataMatters #GISTresearch
November 12, 2025 at 8:37 PM
Your experience matters! For those who have taken #sunitinib for #GIST - by sharing what treatment has been like for you, you can help other patients and shape better care for the future.
Take this brief survey: bit.ly/sunitinib-su...
#DataMatters #GISTresearch
Take this brief survey: bit.ly/sunitinib-su...
#DataMatters #GISTresearch
Get the latest on LRG community news, research, and upcoming events! Read newsletter here: bit.ly/NL-Nov-2025 #GISTEducation #GISTnews #ThrivingTogether
November 12, 2025 at 3:25 PM
Get the latest on LRG community news, research, and upcoming events! Read newsletter here: bit.ly/NL-Nov-2025 #GISTEducation #GISTnews #ThrivingTogether
The Life Raft Group is proud to have a strong scientific presence at #CTOS2025. Executive Director Sara Rothschild and Sr. Director of Data Management Denisse Evans are presenting our latest patient registry research through posters, a presentation, and collaboration. #GISTresearch
November 11, 2025 at 7:04 PM
The Life Raft Group is proud to have a strong scientific presence at #CTOS2025. Executive Director Sara Rothschild and Sr. Director of Data Management Denisse Evans are presenting our latest patient registry research through posters, a presentation, and collaboration. #GISTresearch
At #CTOS2025, Denisse Evans, MS, presents “Survival Outcomes and Molecular Heterogeneity in Early-Onset GIST” Sat. 11/15 - Royal Palm Ballroom, 2:45–3:45 PM. The LRG also has three posters on display discussing survival outcomes #GIST #SarcomaResearch #GISTresearch
November 11, 2025 at 4:39 PM
At #CTOS2025, Denisse Evans, MS, presents “Survival Outcomes and Molecular Heterogeneity in Early-Onset GIST” Sat. 11/15 - Royal Palm Ballroom, 2:45–3:45 PM. The LRG also has three posters on display discussing survival outcomes #GIST #SarcomaResearch #GISTresearch
Join Triage Cancer’s free webinar on Nov 19 to learn key tips for navigating #Medicare beyond open enrollment, including enrollment periods, benefits, and financial help. bit.ly/M-Part2 #healthcare #openenrollment
November 11, 2025 at 3:40 PM
Join Triage Cancer’s free webinar on Nov 19 to learn key tips for navigating #Medicare beyond open enrollment, including enrollment periods, benefits, and financial help. bit.ly/M-Part2 #healthcare #openenrollment
We are deeply saddened to learn of the passing of Dr. Brian A. Van Tine. Dr. Van Tine was a brilliant sarcoma oncologist and a true ally to the GIST community. His research, compassion, and partnership made a meaningful impact on patients and families.
November 10, 2025 at 8:55 PM
We are deeply saddened to learn of the passing of Dr. Brian A. Van Tine. Dr. Van Tine was a brilliant sarcoma oncologist and a true ally to the GIST community. His research, compassion, and partnership made a meaningful impact on patients and families.
We are saddened by the passing of Dr. James D. Watson, whose co-discovery of the DNA double helix laid the foundation for precision oncology, including GIST research. The LRG was proud to present him with a Humanitarian Award in 2004, recognizing his impact on patient outcomes.
November 8, 2025 at 5:25 PM
We are saddened by the passing of Dr. James D. Watson, whose co-discovery of the DNA double helix laid the foundation for precision oncology, including GIST research. The LRG was proud to present him with a Humanitarian Award in 2004, recognizing his impact on patient outcomes.
Register for the Virtual healthbook CME Webinar - GIST: Moving Toward Tailored Therapies and ctDNA-Guided Decisions, Wednesday, Nov 26, 2025 - 17:00 – 18:25 CET
bit.ly/GIST-Therapi...
#sarcoma #ctDNA #GISTeducation
bit.ly/GIST-Therapi...
#sarcoma #ctDNA #GISTeducation
November 6, 2025 at 4:15 PM
Register for the Virtual healthbook CME Webinar - GIST: Moving Toward Tailored Therapies and ctDNA-Guided Decisions, Wednesday, Nov 26, 2025 - 17:00 – 18:25 CET
bit.ly/GIST-Therapi...
#sarcoma #ctDNA #GISTeducation
bit.ly/GIST-Therapi...
#sarcoma #ctDNA #GISTeducation
Want your poker skills to make a difference? Every hand at Texas Hold’em Poker Tournament helps bring hope to the GIST community. Join us for an unforgettable evening! bit.ly/LRGPoker2025 #poker #GISTawareness
#novemberevents #OaklandNJEvents #fallevents #fundraiser
#novemberevents #OaklandNJEvents #fallevents #fundraiser
November 5, 2025 at 4:11 PM
Want your poker skills to make a difference? Every hand at Texas Hold’em Poker Tournament helps bring hope to the GIST community. Join us for an unforgettable evening! bit.ly/LRGPoker2025 #poker #GISTawareness
#novemberevents #OaklandNJEvents #fallevents #fundraiser
#novemberevents #OaklandNJEvents #fallevents #fundraiser
♠️ Raise the stakes, raise hope! ♠️ Join the LRG Texas Hold’em Poker Event and make a real impact for the GIST community. Fun and prizes await all night! bit.ly/LRGPoker2025
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
October 29, 2025 at 3:07 PM
♠️ Raise the stakes, raise hope! ♠️ Join the LRG Texas Hold’em Poker Event and make a real impact for the GIST community. Fun and prizes await all night! bit.ly/LRGPoker2025
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
October Patient of the Month Sandra shares how support and care turned her GIST diagnosis into hope and strength. Read more: bit.ly/POMOct2025
#patientofthemonth #patientstory #ThrivingTogether
#patientofthemonth #patientstory #ThrivingTogether
October 27, 2025 at 2:07 PM
October Patient of the Month Sandra shares how support and care turned her GIST diagnosis into hope and strength. Read more: bit.ly/POMOct2025
#patientofthemonth #patientstory #ThrivingTogether
#patientofthemonth #patientstory #ThrivingTogether
What if doctors could track GIST progression through a simple blood test? Find out how #ctDNA is transforming patient care with Dr. Jonathan Trent and Denisse Evans on November 10 at 2:00 PM ET in the #INSIGHTStudy session. bit.ly/ctDNA-INSIGHT #GISTEducation
October 24, 2025 at 2:27 PM
What if doctors could track GIST progression through a simple blood test? Find out how #ctDNA is transforming patient care with Dr. Jonathan Trent and Denisse Evans on November 10 at 2:00 PM ET in the #INSIGHTStudy session. bit.ly/ctDNA-INSIGHT #GISTEducation
Get ready to go all in! Texas Hold’em is coming to #Oakland NJ. Cards, competition, and a cause you can’t miss! Sign up now: bit.ly/LRGPoker2025
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
October 23, 2025 at 2:53 PM
Get ready to go all in! Texas Hold’em is coming to #Oakland NJ. Cards, competition, and a cause you can’t miss! Sign up now: bit.ly/LRGPoker2025
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
#poker #GISTawareness #novemberevents #OaklandNJEvents #fallevents #fundraiser
Join the fight to keep brigimadlin in development for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin
October 22, 2025 at 6:55 PM
Join the fight to keep brigimadlin in development for DDLPS patients. Sign the petition: brigimadlinpetition.org #SaveBrigimadlin #SignThePetition #DDLPS #liposarcoma #PatientVoices #Cancer #brigimadlin
Join Dr. Jonathan Trent & the LRG's Denisse Evans Nov. 10 @ 2PM ET to learn how #ctDNA can monitor mutations, track disease progression, and guide real-time treatment for #GIST patients. bit.ly/ctDNA-INSIGHT #GISTEducation #INSIGHT
October 17, 2025 at 2:08 PM
Join Dr. Jonathan Trent & the LRG's Denisse Evans Nov. 10 @ 2PM ET to learn how #ctDNA can monitor mutations, track disease progression, and guide real-time treatment for #GIST patients. bit.ly/ctDNA-INSIGHT #GISTEducation #INSIGHT
The #NewHorizonsGIST Global Advocate Academy brings global voices together to tackle barriers in #GIST care & policy. Special thanks to Sachin Sarcoma Society, Patvocates, and Catalyst Consulting Group for sharing their expertise with the greater community. bit.ly/GlobalAdvoca...
October 16, 2025 at 1:38 PM
The #NewHorizonsGIST Global Advocate Academy brings global voices together to tackle barriers in #GIST care & policy. Special thanks to Sachin Sarcoma Society, Patvocates, and Catalyst Consulting Group for sharing their expertise with the greater community. bit.ly/GlobalAdvoca...
The day has come! Rachel LoCurto goes Over the Edge for GIST patients!
Stay tuned for more video and photos. #GISTAwareness
Donate: bit.ly/LRG-A-RLoCurto
Stay tuned for more video and photos. #GISTAwareness
Donate: bit.ly/LRG-A-RLoCurto
October 15, 2025 at 5:55 PM
The day has come! Rachel LoCurto goes Over the Edge for GIST patients!
Stay tuned for more video and photos. #GISTAwareness
Donate: bit.ly/LRG-A-RLoCurto
Stay tuned for more video and photos. #GISTAwareness
Donate: bit.ly/LRG-A-RLoCurto
Rachel goes over the edge tomorrow at 1:30! Stay tuned for updates & donate today. bit.ly/LRG-A-RLoCurto
#rappelling #GISTAwareness #LRGAthletes #GISTstrong #NJEvents #PledgeTheEdge
#rappelling #GISTAwareness #LRGAthletes #GISTstrong #NJEvents #PledgeTheEdge
October 14, 2025 at 8:40 PM
Rachel goes over the edge tomorrow at 1:30! Stay tuned for updates & donate today. bit.ly/LRG-A-RLoCurto
#rappelling #GISTAwareness #LRGAthletes #GISTstrong #NJEvents #PledgeTheEdge
#rappelling #GISTAwareness #LRGAthletes #GISTstrong #NJEvents #PledgeTheEdge
What about- Did you know? There is an Expanded Access Program that gives advanced GIST patients who’ve progressed on imatinib access to #bezuclastinib + #sunitinib. For more information: bit.ly/CB-EAP
#EAP #GISTEducation #ExpandedAccessProgram #clinicaltrials
#EAP #GISTEducation #ExpandedAccessProgram #clinicaltrials
October 10, 2025 at 7:01 PM
What about- Did you know? There is an Expanded Access Program that gives advanced GIST patients who’ve progressed on imatinib access to #bezuclastinib + #sunitinib. For more information: bit.ly/CB-EAP
#EAP #GISTEducation #ExpandedAccessProgram #clinicaltrials
#EAP #GISTEducation #ExpandedAccessProgram #clinicaltrials
Just 5 days to go! Our VP Rachel is gearing up for #PledgeTheEdge on October 15 in Atlantic City to raise support for the GIST community. Be part of her journey and make an impact: bit.ly/LRG-A-RLoCurto
#GISTstrong #LRGAthletes #ThrivingTogether
#GISTstrong #LRGAthletes #ThrivingTogether
October 10, 2025 at 2:25 PM
Just 5 days to go! Our VP Rachel is gearing up for #PledgeTheEdge on October 15 in Atlantic City to raise support for the GIST community. Be part of her journey and make an impact: bit.ly/LRG-A-RLoCurto
#GISTstrong #LRGAthletes #ThrivingTogether
#GISTstrong #LRGAthletes #ThrivingTogether
Learn about the different parts of Medicare, Medigap, and Medicare Advantage from Triage Cancer, tomorrow at 1pm ET. #healthcare #medicare #openenrollment bit.ly/M-Part1
October 8, 2025 at 7:45 PM
Learn about the different parts of Medicare, Medigap, and Medicare Advantage from Triage Cancer, tomorrow at 1pm ET. #healthcare #medicare #openenrollment bit.ly/M-Part1