Liz Kennerley #LongCOVID #RareDisease
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lifeaccrdingliz.bsky.social
Liz Kennerley #LongCOVID #RareDisease
@lifeaccrdingliz.bsky.social
#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
I forgot, what does the acronym #NEISvoid stand for?
April 30, 2025 at 12:15 AM
Link❗ cdmrp.health.mil/prmrp/topica...

(I'm new to BlueSky, so I had to take a screenshot of an essential Twitter post. As this issue is too important to fit into this character limit... @maddow.msnbc.com @warren.senate.gov @amyklobuchar.com @cnn.com) 🔬🧬🩺💊💉 @statnews.com @thesicktimes.bsky.social)
cdmrp.health.mil
March 16, 2025 at 2:14 AM
The joint NIH/FDA Rare Disease Day two-day event for next week that was scheduled several months ago is postponed until hopefully early next month. They’ve had this event for 8+ years! Like other common diseases, it doesn’t matter how much money you have, education level, politics, gender, etc
February 23, 2025 at 8:45 PM