Liz Kennerley #LongCOVID #RareDisease
@lifeaccrdingliz.bsky.social
#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
Reposted by Liz Kennerley #LongCOVID #RareDisease
If you're a Mastie this will resonate.
#MCAS #ClimateChange #SevereWeather #GutHealth #Nutrition #SelfCare
💕 #Wellness
#MCAS #ClimateChange #SevereWeather #GutHealth #Nutrition #SelfCare
💕 #Wellness
Severe weather can worsen mast cell activation syndrome
Why chronically ill people often feel worse when the weather changes.
buff.ly
April 30, 2025 at 12:03 AM
If you're a Mastie this will resonate.
#MCAS #ClimateChange #SevereWeather #GutHealth #Nutrition #SelfCare
💕 #Wellness
#MCAS #ClimateChange #SevereWeather #GutHealth #Nutrition #SelfCare
💕 #Wellness
Reposted by Liz Kennerley #LongCOVID #RareDisease
Help us send out a strong SOS message this May 12th for #MillionsMissing.
Laurie Jones, executive director of #MEAction, invites you to join us in DC or online!
All you need to know to participate can be found at www.meactions.org/millionsmiss....
#DisabilitySOS #pwME #MyalgicEncephalomyelitis
Laurie Jones, executive director of #MEAction, invites you to join us in DC or online!
All you need to know to participate can be found at www.meactions.org/millionsmiss....
#DisabilitySOS #pwME #MyalgicEncephalomyelitis
April 29, 2025 at 11:35 PM
Help us send out a strong SOS message this May 12th for #MillionsMissing.
Laurie Jones, executive director of #MEAction, invites you to join us in DC or online!
All you need to know to participate can be found at www.meactions.org/millionsmiss....
#DisabilitySOS #pwME #MyalgicEncephalomyelitis
Laurie Jones, executive director of #MEAction, invites you to join us in DC or online!
All you need to know to participate can be found at www.meactions.org/millionsmiss....
#DisabilitySOS #pwME #MyalgicEncephalomyelitis
This is FREE!! Seeing as 1:10 Americans has a #RareDisease and all that's going on with #FederalEmployees. Fewer than 10% of 7K+ these diagnoses HAVE an FDA approved therapy. Can't fix without understanding. Including the NIH. @maddow.msnbc.com
www.washingtonpost.com/washington-p....
www.washingtonpost.com/washington-p....
Innovations in research and treatment for rare diseases
More than 30 million people in the United States are affected by rare diseases, many of which are life-threatening conditions without available treatments. On Thursday, Feb. 27, join Post Live on Nati...
www.washingtonpost.com
February 23, 2025 at 11:27 PM
This is FREE!! Seeing as 1:10 Americans has a #RareDisease and all that's going on with #FederalEmployees. Fewer than 10% of 7K+ these diagnoses HAVE an FDA approved therapy. Can't fix without understanding. Including the NIH. @maddow.msnbc.com
www.washingtonpost.com/washington-p....
www.washingtonpost.com/washington-p....
What does 1 In 10 Americans mean to you? It's the number of people with a #RareDisease diagnosis. Many are children and many who won't survive 'til their 5th birthday. We need a strong FDA and NIH to address the broad economic these have @maddow.msnbc.com, 2/28 is #RareDiseaseDay #chronicillness
February 21, 2025 at 2:44 PM
What does 1 In 10 Americans mean to you? It's the number of people with a #RareDisease diagnosis. Many are children and many who won't survive 'til their 5th birthday. We need a strong FDA and NIH to address the broad economic these have @maddow.msnbc.com, 2/28 is #RareDiseaseDay #chronicillness
Reposted by Liz Kennerley #LongCOVID #RareDisease
www.unitedformedicalresearch.org/nih-in-your-.... NIH in Your State interactive map. If you scroll all the way down Biotechnology Innovation’s website has NIH funding’s super broken down economic impact @maddow.msnbc.com
www.unitedformedicalresearch.org
February 20, 2025 at 4:00 AM
www.unitedformedicalresearch.org/nih-in-your-.... NIH in Your State interactive map. If you scroll all the way down Biotechnology Innovation’s website has NIH funding’s super broken down economic impact @maddow.msnbc.com
Excuse me, WHAT?! I don’t know how much of the general population knows this, but #LongCOVID symptoms can get worse with every viral encounter. Including my own fluctuating brain fog. #COVIDIsntOver. @maddow.msnbc.com
www.dailymail.co.uk/health/artic...
www.dailymail.co.uk/health/artic...
Trump team makes radical U-turn on Covid vaccine
Dr Jay Bhattacharya is one of the signatories of an online petition that claims there is a 'casual link' between the mRNA shots and an alarming rise in excess deaths worldwide.
www.dailymail.co.uk
February 20, 2025 at 3:39 AM
Excuse me, WHAT?! I don’t know how much of the general population knows this, but #LongCOVID symptoms can get worse with every viral encounter. Including my own fluctuating brain fog. #COVIDIsntOver. @maddow.msnbc.com
www.dailymail.co.uk/health/artic...
www.dailymail.co.uk/health/artic...