@lgmdawareness.bsky.social
This Giving Tuesday, your support helps fuel awareness, education, and hope for the LGMD community.
Your gift today ensures that LGMD-Info.org remains a trusted hub for advocacy, knowledge, and community support.
💚 Give Today: www.lgmd-info.org/donate/
Your gift today ensures that LGMD-Info.org remains a trusted hub for advocacy, knowledge, and community support.
💚 Give Today: www.lgmd-info.org/donate/
December 2, 2025 at 3:16 PM
This Giving Tuesday, your support helps fuel awareness, education, and hope for the LGMD community.
Your gift today ensures that LGMD-Info.org remains a trusted hub for advocacy, knowledge, and community support.
💚 Give Today: www.lgmd-info.org/donate/
Your gift today ensures that LGMD-Info.org remains a trusted hub for advocacy, knowledge, and community support.
💚 Give Today: www.lgmd-info.org/donate/
To learn more about the annual LGMD Awareness Day, visit: www.lgmd-info.org/awareness-day/
November 26, 2025 at 5:23 PM
To learn more about the annual LGMD Awareness Day, visit: www.lgmd-info.org/awareness-day/
Your generosity fuels education, resources, and hope through lgmd-info.org. Thank you for helping us uplift & empower the LGMD community. We invite you to continue helping us raise awareness and support those living with LGMD.
💚 Donate Today: lgmd-info.org/donate/
💚 Donate Today: lgmd-info.org/donate/
November 25, 2025 at 6:55 PM
Your generosity fuels education, resources, and hope through lgmd-info.org. Thank you for helping us uplift & empower the LGMD community. We invite you to continue helping us raise awareness and support those living with LGMD.
💚 Donate Today: lgmd-info.org/donate/
💚 Donate Today: lgmd-info.org/donate/
November is Caregiver Awareness Month! 💚 Check out this new Guide For Caregivers from MDA.
This great resource can be downloaded at www.mda.org/.../2024/01/...?
#LGMDawareness
#TogetherWeAreStronger
This great resource can be downloaded at www.mda.org/.../2024/01/...?
#LGMDawareness
#TogetherWeAreStronger
November 6, 2025 at 7:48 PM
November is Caregiver Awareness Month! 💚 Check out this new Guide For Caregivers from MDA.
This great resource can be downloaded at www.mda.org/.../2024/01/...?
#LGMDawareness
#TogetherWeAreStronger
This great resource can be downloaded at www.mda.org/.../2024/01/...?
#LGMDawareness
#TogetherWeAreStronger
For more information, visit: lgmd-info.org
November 5, 2025 at 9:02 PM
For more information, visit: lgmd-info.org
The LGMD Advocacy Bundle project bridges the gap between clinicians and patients through advocacy support while supplying helpful tools and resources for staff and patients.
www.lgmd-info.org/knowledge-ba...
www.lgmd-info.org/knowledge-ba...
October 23, 2025 at 1:49 AM
The LGMD Advocacy Bundle project bridges the gap between clinicians and patients through advocacy support while supplying helpful tools and resources for staff and patients.
www.lgmd-info.org/knowledge-ba...
www.lgmd-info.org/knowledge-ba...
#LGMDawareness can spread much faster with more individuals, from all parts of the world, through re-posts, likes, and shout outs on social media!
There is great strength in awareness, understanding and unity.
There is great strength in awareness, understanding and unity.
October 21, 2025 at 4:46 PM
#LGMDawareness can spread much faster with more individuals, from all parts of the world, through re-posts, likes, and shout outs on social media!
There is great strength in awareness, understanding and unity.
There is great strength in awareness, understanding and unity.
Please share to help raise awareness!
💚 To learn more about LGMD and access resources, visit our website www.lgmd-info.org
#LgmdAwareness
#TogetherWeAreStronger
💚 To learn more about LGMD and access resources, visit our website www.lgmd-info.org
#LgmdAwareness
#TogetherWeAreStronger
October 16, 2025 at 5:08 PM
Please share to help raise awareness!
💚 To learn more about LGMD and access resources, visit our website www.lgmd-info.org
#LgmdAwareness
#TogetherWeAreStronger
💚 To learn more about LGMD and access resources, visit our website www.lgmd-info.org
#LgmdAwareness
#TogetherWeAreStronger
Living with LGMD presents unique challenges, both physically and financially. This link to our LGMD Grant Opportunities page serves as a valuable resource, offering detailed information on various grants and programs tailored to assist those with LGMD.
www.lgmd-info.org/knowledge-ba...
www.lgmd-info.org/knowledge-ba...
October 7, 2025 at 6:20 PM
Living with LGMD presents unique challenges, both physically and financially. This link to our LGMD Grant Opportunities page serves as a valuable resource, offering detailed information on various grants and programs tailored to assist those with LGMD.
www.lgmd-info.org/knowledge-ba...
www.lgmd-info.org/knowledge-ba...
Thank you all for another successful LGMD Awareness Day! #togetherwearestronger
October 1, 2025 at 8:32 PM
Thank you all for another successful LGMD Awareness Day! #togetherwearestronger
Today is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Help raise awareness by sharing our posts!
To learn more about LGMD, please visit our website: lgmd-info.org
#LGMDawareness #LgmdDay2025
To learn more about LGMD, please visit our website: lgmd-info.org
#LGMDawareness #LgmdDay2025
September 30, 2025 at 6:43 PM
Today is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Help raise awareness by sharing our posts!
To learn more about LGMD, please visit our website: lgmd-info.org
#LGMDawareness #LgmdDay2025
To learn more about LGMD, please visit our website: lgmd-info.org
#LGMDawareness #LgmdDay2025
Reposted
🌍💜Desde la RER-CSIC Hoy nos unimos al #LGMDawarenessDay para dar visibilidad a la Distrofia Muscular de Cinturas.
Recordamos que la investigación es clave para avanzar en el diagnóstico y el futuro de quienes conviven con estas patologías #EnfermedadesRaras @csic.es @lgmdawareness.bsky.social
Recordamos que la investigación es clave para avanzar en el diagnóstico y el futuro de quienes conviven con estas patologías #EnfermedadesRaras @csic.es @lgmdawareness.bsky.social
September 30, 2025 at 8:29 AM
🌍💜Desde la RER-CSIC Hoy nos unimos al #LGMDawarenessDay para dar visibilidad a la Distrofia Muscular de Cinturas.
Recordamos que la investigación es clave para avanzar en el diagnóstico y el futuro de quienes conviven con estas patologías #EnfermedadesRaras @csic.es @lgmdawareness.bsky.social
Recordamos que la investigación es clave para avanzar en el diagnóstico y el futuro de quienes conviven con estas patologías #EnfermedadesRaras @csic.es @lgmdawareness.bsky.social
There is still time to submit your entry for our coloring contest! For contest info, rules and the entry form, visit: www.lgmd-info.org/toolkit/#toc...
Thank you to Dooley & Associates for sponsoring our coloring contest this year!
Thank you to Dooley & Associates for sponsoring our coloring contest this year!
LGMD Awareness Day Toolkit - LGMD Awareness Foundation
Social
Social Media Posts
Help us spread the word by sharing our specially designed awareness posts on social media. Encourage your friends, family, and network to join in. "Did You Know" LGMD...
www.lgmd-info.org
September 29, 2025 at 10:10 PM
There is still time to submit your entry for our coloring contest! For contest info, rules and the entry form, visit: www.lgmd-info.org/toolkit/#toc...
Thank you to Dooley & Associates for sponsoring our coloring contest this year!
Thank you to Dooley & Associates for sponsoring our coloring contest this year!
Tuesday, Sept. 30 is LGMD Awareness Day! Have you completed tasks from our toolkit to help EDUCATE others about LGMD? There is still time! Visit: www.lgmd-info.org/toolkit/
September 26, 2025 at 7:46 PM
Tuesday, Sept. 30 is LGMD Awareness Day! Have you completed tasks from our toolkit to help EDUCATE others about LGMD? There is still time! Visit: www.lgmd-info.org/toolkit/
Thank you, Governor Maura Healey for the proclamation declaring September 30, 2025, as Limb-Girdle Muscular Dystrophy Awareness Day throughout the State of Massachusetts!
We also thank LGMD Ambassador, Keisha L Greaves, for requesting this proclamation.
#LgmdDay2025
We also thank LGMD Ambassador, Keisha L Greaves, for requesting this proclamation.
#LgmdDay2025
September 22, 2025 at 4:53 PM
Thank you, Governor Maura Healey for the proclamation declaring September 30, 2025, as Limb-Girdle Muscular Dystrophy Awareness Day throughout the State of Massachusetts!
We also thank LGMD Ambassador, Keisha L Greaves, for requesting this proclamation.
#LgmdDay2025
We also thank LGMD Ambassador, Keisha L Greaves, for requesting this proclamation.
#LgmdDay2025
We love seeing you share our content! We're so inspired by your creativity. To help us keep our brand looking its best, we ask that you please not edit our logos, photos or graphics. A consistent look helps our community recognize us. thank you for your understanding & support!
September 18, 2025 at 6:17 PM
We love seeing you share our content! We're so inspired by your creativity. To help us keep our brand looking its best, we ask that you please not edit our logos, photos or graphics. A consistent look helps our community recognize us. thank you for your understanding & support!
Join the LGMD Awareness Foundation in our mission to shine a global spotlight on LGMD & champion the cause for improved access to diagnosis, care & treatment for those living with this condition. Our Toolkit is designed to empower and engage our community. lgmd-info.org/toolkit/
September 18, 2025 at 2:53 AM
Join the LGMD Awareness Foundation in our mission to shine a global spotlight on LGMD & champion the cause for improved access to diagnosis, care & treatment for those living with this condition. Our Toolkit is designed to empower and engage our community. lgmd-info.org/toolkit/
Help spread awareness by downloading and using our specially designed LinkedIn banners and Facebook timeline covers—invite your network to join the movement!
Find them here:
www.lgmd-info.org/toolkit/
Find them here:
www.lgmd-info.org/toolkit/
September 12, 2025 at 5:32 PM
Help spread awareness by downloading and using our specially designed LinkedIn banners and Facebook timeline covers—invite your network to join the movement!
Find them here:
www.lgmd-info.org/toolkit/
Find them here:
www.lgmd-info.org/toolkit/
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: www.LGMD-Info.org
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
September 11, 2025 at 10:46 PM
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: www.LGMD-Info.org
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
Limb-Girdle Muscular Dystrophy (LGMD) can affect the heart and muscles necessary for breathing.
To learn more about LGMD, please visit our website: www.LGMD-Info.org
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
To learn more about LGMD, please visit our website: www.LGMD-Info.org
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
September 8, 2025 at 6:18 PM
Limb-Girdle Muscular Dystrophy (LGMD) can affect the heart and muscles necessary for breathing.
To learn more about LGMD, please visit our website: www.LGMD-Info.org
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
To learn more about LGMD, please visit our website: www.LGMD-Info.org
#LGMDday2025
#LgmdAwareness
#LgmdFacts
#TogetherWeAreStronger
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness!
LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives.
To learn more, please visit: www.LGMD-Info.org
LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives.
To learn more, please visit: www.LGMD-Info.org
August 25, 2025 at 4:43 PM
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness!
LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives.
To learn more, please visit: www.LGMD-Info.org
LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives.
To learn more, please visit: www.LGMD-Info.org
Time is running out to submit state proclamations for Limb Girdle Muscular Dystrophy Awareness Day.
The following states have been committed to:
CT, IL, IN, KS, MA, MI,NJ,NY,NC,OH,OK, PA,SC, TN,TX, WI
If your state isn't listed, we need your help!
www.lgmd-info.org/aware.../ini...
The following states have been committed to:
CT, IL, IN, KS, MA, MI,NJ,NY,NC,OH,OK, PA,SC, TN,TX, WI
If your state isn't listed, we need your help!
www.lgmd-info.org/aware.../ini...
August 19, 2025 at 5:07 PM
Time is running out to submit state proclamations for Limb Girdle Muscular Dystrophy Awareness Day.
The following states have been committed to:
CT, IL, IN, KS, MA, MI,NJ,NY,NC,OH,OK, PA,SC, TN,TX, WI
If your state isn't listed, we need your help!
www.lgmd-info.org/aware.../ini...
The following states have been committed to:
CT, IL, IN, KS, MA, MI,NJ,NY,NC,OH,OK, PA,SC, TN,TX, WI
If your state isn't listed, we need your help!
www.lgmd-info.org/aware.../ini...
If you plan on submitting an application for your state, please comment on this post and let us know the state.
Time is running out to request a proclamation from your State Governor or other public representatives.
We have resources that can help.
Learn more at www.lgmd-info.org/aware.../ini...
Time is running out to request a proclamation from your State Governor or other public representatives.
We have resources that can help.
Learn more at www.lgmd-info.org/aware.../ini...
August 13, 2025 at 5:13 PM
If you plan on submitting an application for your state, please comment on this post and let us know the state.
Time is running out to request a proclamation from your State Governor or other public representatives.
We have resources that can help.
Learn more at www.lgmd-info.org/aware.../ini...
Time is running out to request a proclamation from your State Governor or other public representatives.
We have resources that can help.
Learn more at www.lgmd-info.org/aware.../ini...
Help ADVOCATE by sending a press release about LGMD Awareness Day to your local media outlets prior to the event. Your voice can help garner attention and support from the broader community.
Our sample press release is available at www.lgmd-info.org/toolkit/
#LGMDDay2025
Our sample press release is available at www.lgmd-info.org/toolkit/
#LGMDDay2025
August 9, 2025 at 12:47 AM
Help ADVOCATE by sending a press release about LGMD Awareness Day to your local media outlets prior to the event. Your voice can help garner attention and support from the broader community.
Our sample press release is available at www.lgmd-info.org/toolkit/
#LGMDDay2025
Our sample press release is available at www.lgmd-info.org/toolkit/
#LGMDDay2025
Help raise awareness in YOUR state!
It is time to begin requesting a proclamation from your State Governor or other public representatives. Please help us spread awareness in every state!
Plus, we have resources that can help you.
Learn more at www.lgmd-info.org/aware.../ini...
It is time to begin requesting a proclamation from your State Governor or other public representatives. Please help us spread awareness in every state!
Plus, we have resources that can help you.
Learn more at www.lgmd-info.org/aware.../ini...
August 4, 2025 at 4:28 PM
Help raise awareness in YOUR state!
It is time to begin requesting a proclamation from your State Governor or other public representatives. Please help us spread awareness in every state!
Plus, we have resources that can help you.
Learn more at www.lgmd-info.org/aware.../ini...
It is time to begin requesting a proclamation from your State Governor or other public representatives. Please help us spread awareness in every state!
Plus, we have resources that can help you.
Learn more at www.lgmd-info.org/aware.../ini...