The Lewy Body Society
@lewybodysociety.bsky.social
We raise awareness, fund research and provide support.
Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579
Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579
2026 is going to be HUGE. We will be setting the bar high from the very beginning at THE Reform Club!
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
November 18, 2025 at 12:51 PM
2026 is going to be HUGE. We will be setting the bar high from the very beginning at THE Reform Club!
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
🌍 World Lewy Body Day
🗓 Wed 28 Jan 2026 | 🕕 6-8pm
📍 The Reform Club, Pall Mall, London
🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy...
#WorldLewyBodyDay #LewyBodySociety #London
People who have Lewy body dementia in their lives can be under pressures others cannot comprehend - they are also some of the most resilient people in the world too.
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
October 10, 2025 at 11:49 AM
People who have Lewy body dementia in their lives can be under pressures others cannot comprehend - they are also some of the most resilient people in the world too.
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
How do you take care of your mental health? What are you doing/not doing to help you cope?
#WorldMentalHealthDay #Lewybodydementia
🧠 Not all dementias are the same.
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
September 22, 2025 at 5:08 PM
🧠 Not all dementias are the same.
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.
👉 Learn more: www.lewybody.org
#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters
Lewy body dementia isn't like other dementias, and because of that it can get missed as a diagnosis.
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
September 11, 2025 at 8:47 PM
Lewy body dementia isn't like other dementias, and because of that it can get missed as a diagnosis.
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
If you think you or a loved one might have some or all of these symptoms, please go to your GP.
☎️ Admiral dementia nurses: 0800 888 6678.
#lewybodydementia #dementia #dementiasymptoms
💥 For a small charity, we make a BIG impact - and we are making a bigger one every year!
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
August 28, 2025 at 3:58 PM
💥 For a small charity, we make a BIG impact - and we are making a bigger one every year!
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
With Lewy body dementia so misunderstood, no wonder families are turning to us for help.
#Lewybodydementia #Dementiasupport #Dementia
Great to see our Special Advisory Committee member Anto P Rajkumar Rajamani, Clinical Associate Professor in old age psychiatry at the University of Nottingham, at Alzheimer's Association International Conference 2025 in Toronto
#AAIC #AAIC2025 #Dementia #Lewybodydementia
#AAIC #AAIC2025 #Dementia #Lewybodydementia
July 29, 2025 at 7:13 PM
Great to see our Special Advisory Committee member Anto P Rajkumar Rajamani, Clinical Associate Professor in old age psychiatry at the University of Nottingham, at Alzheimer's Association International Conference 2025 in Toronto
#AAIC #AAIC2025 #Dementia #Lewybodydementia
#AAIC #AAIC2025 #Dementia #Lewybodydementia
July 27, 2025 at 1:43 PM
@amrc-uk.bsky.social charities - of which we are one - are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers www.amrc.org.uk/2025-our-sectors-footprint
#CharityImpact #lewybodydementia
#CharityImpact #lewybodydementia
June 26, 2025 at 11:49 AM
@amrc-uk.bsky.social charities - of which we are one - are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers www.amrc.org.uk/2025-our-sectors-footprint
#CharityImpact #lewybodydementia
#CharityImpact #lewybodydementia
Northern Ireland's Deputy First Minister Emma Little Pengelly with our ambassador, Les Magee, who was representing the Lewy Body Society at the Carers Week event at Stormont earlier this week.
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
June 11, 2025 at 11:03 AM
Northern Ireland's Deputy First Minister Emma Little Pengelly with our ambassador, Les Magee, who was representing the Lewy Body Society at the Carers Week event at Stormont earlier this week.
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
We are proud to be a partner organisation of Carers Week.
#CarersWeek #NorthernIreland #dementiacarers
Delighted article co-authored by our chief exec Jacqui Cannon on Challenges of dementia care in the UK, published in the @bmj.com Editorials.
www.bmj.com/content/389/...
#Lewybodydementia #dementia
www.bmj.com/content/389/...
#Lewybodydementia #dementia
June 6, 2025 at 4:07 PM
Delighted article co-authored by our chief exec Jacqui Cannon on Challenges of dementia care in the UK, published in the @bmj.com Editorials.
www.bmj.com/content/389/...
#Lewybodydementia #dementia
www.bmj.com/content/389/...
#Lewybodydementia #dementia
The @liverpooluni.bsky.social is conducting a research project looking at the general public's knowledge and awareness of dementia subtypes.
Start the survey: lancasteruni.eu.qualtrics.com/jfe/form/SV_...
Queries? Contact m.polden@liverpool.ac.uk
#Dementiaresearch #lewybodydementia #dementia
Start the survey: lancasteruni.eu.qualtrics.com/jfe/form/SV_...
Queries? Contact m.polden@liverpool.ac.uk
#Dementiaresearch #lewybodydementia #dementia
May 27, 2025 at 5:02 PM
The @liverpooluni.bsky.social is conducting a research project looking at the general public's knowledge and awareness of dementia subtypes.
Start the survey: lancasteruni.eu.qualtrics.com/jfe/form/SV_...
Queries? Contact m.polden@liverpool.ac.uk
#Dementiaresearch #lewybodydementia #dementia
Start the survey: lancasteruni.eu.qualtrics.com/jfe/form/SV_...
Queries? Contact m.polden@liverpool.ac.uk
#Dementiaresearch #lewybodydementia #dementia
Thank you to all the amazing bakers of the Dementia Research Group at the Institute of Population Health at @liverpooluni.bsky.social yesterday. 🎂🍰🧁🥮
They raised £477 for Lewy Body Society and our friends at Dementia UK for Dementia Action Week.
#dementiaactionweek #lewybodydementia #liverpool
They raised £477 for Lewy Body Society and our friends at Dementia UK for Dementia Action Week.
#dementiaactionweek #lewybodydementia #liverpool
May 22, 2025 at 9:33 AM
Thank you to all the amazing bakers of the Dementia Research Group at the Institute of Population Health at @liverpooluni.bsky.social yesterday. 🎂🍰🧁🥮
They raised £477 for Lewy Body Society and our friends at Dementia UK for Dementia Action Week.
#dementiaactionweek #lewybodydementia #liverpool
They raised £477 for Lewy Body Society and our friends at Dementia UK for Dementia Action Week.
#dementiaactionweek #lewybodydementia #liverpool
This Mental Health Awareness Week is all about celebrating community, and how it supports our mental health and wellbeing.
We are the Lewy body community, we couldn't think of better people to be with.
#MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia
We are the Lewy body community, we couldn't think of better people to be with.
#MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia
May 15, 2025 at 8:24 AM
This Mental Health Awareness Week is all about celebrating community, and how it supports our mental health and wellbeing.
We are the Lewy body community, we couldn't think of better people to be with.
#MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia
We are the Lewy body community, we couldn't think of better people to be with.
#MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia
This message was left by Lindsay, a daughter who cared for her mum while she had Lewy body dementia, after she signed our Lewy List petition.
Please join Lindsay in adding your name to our Lewy List: www.change.org/p/sign-the-lewy-list
#dementiacarers #Lewybodydementia
Please join Lindsay in adding your name to our Lewy List: www.change.org/p/sign-the-lewy-list
#dementiacarers #Lewybodydementia
May 8, 2025 at 1:24 PM
This message was left by Lindsay, a daughter who cared for her mum while she had Lewy body dementia, after she signed our Lewy List petition.
Please join Lindsay in adding your name to our Lewy List: www.change.org/p/sign-the-lewy-list
#dementiacarers #Lewybodydementia
Please join Lindsay in adding your name to our Lewy List: www.change.org/p/sign-the-lewy-list
#dementiacarers #Lewybodydementia
I know we have people on here who have strong feelings about social care needs assessments.
Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk
#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social
Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk
#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social
May 7, 2025 at 8:47 PM
I know we have people on here who have strong feelings about social care needs assessments.
Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk
#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social
Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk
#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social
What a gorgeous day to be at the EquaDem Network Plus Annual Conference in Liverpool today!
#Equadem #lewybodydementia #dementia #Liverpool
#Equadem #lewybodydementia #dementia #Liverpool
April 30, 2025 at 10:16 AM
What a gorgeous day to be at the EquaDem Network Plus Annual Conference in Liverpool today!
#Equadem #lewybodydementia #dementia #Liverpool
#Equadem #lewybodydementia #dementia #Liverpool
Phew! That was a scorcher!
Well done to Charlotte Hewitt-Dedman and all our other runners for taking part in such challenging conditions and raising more than £10,000 for vital Lewy body dementia research.
#Lewybodydementia #LondonMarathon2025
Well done to Charlotte Hewitt-Dedman and all our other runners for taking part in such challenging conditions and raising more than £10,000 for vital Lewy body dementia research.
#Lewybodydementia #LondonMarathon2025
April 28, 2025 at 10:11 AM
Phew! That was a scorcher!
Well done to Charlotte Hewitt-Dedman and all our other runners for taking part in such challenging conditions and raising more than £10,000 for vital Lewy body dementia research.
#Lewybodydementia #LondonMarathon2025
Well done to Charlotte Hewitt-Dedman and all our other runners for taking part in such challenging conditions and raising more than £10,000 for vital Lewy body dementia research.
#Lewybodydementia #LondonMarathon2025
Well done!
We are so proud of you and thank you to everyone who has sponsored you. Without donations, we could not continue our vital work.
#Lewybodydementia #LondonMarathon2025
We are so proud of you and thank you to everyone who has sponsored you. Without donations, we could not continue our vital work.
#Lewybodydementia #LondonMarathon2025
April 27, 2025 at 6:10 PM
Well done!
We are so proud of you and thank you to everyone who has sponsored you. Without donations, we could not continue our vital work.
#Lewybodydementia #LondonMarathon2025
We are so proud of you and thank you to everyone who has sponsored you. Without donations, we could not continue our vital work.
#Lewybodydementia #LondonMarathon2025
Good luck to Charlotte Hewitt-Dedman, Tara Adams, Julian Searle, George Henry and Ben Brookshaw all running the TCS London Marathon for Lewy Body Society on Sunday.
#LondonMarathon2025 #Lewybodydementia
Sponsor here: 2025tcslondonmarathon.enthuse.com/pf/charlotte...
#LondonMarathon2025 #Lewybodydementia
Sponsor here: 2025tcslondonmarathon.enthuse.com/pf/charlotte...
April 25, 2025 at 4:37 PM
Good luck to Charlotte Hewitt-Dedman, Tara Adams, Julian Searle, George Henry and Ben Brookshaw all running the TCS London Marathon for Lewy Body Society on Sunday.
#LondonMarathon2025 #Lewybodydementia
Sponsor here: 2025tcslondonmarathon.enthuse.com/pf/charlotte...
#LondonMarathon2025 #Lewybodydementia
Sponsor here: 2025tcslondonmarathon.enthuse.com/pf/charlotte...
Very proud to have been nominated as Charity of the Year in the Wigan Borough Business Awards!
#Wigan #CharityoftheYear
#Wigan #CharityoftheYear
April 14, 2025 at 7:10 PM
Very proud to have been nominated as Charity of the Year in the Wigan Borough Business Awards!
#Wigan #CharityoftheYear
#Wigan #CharityoftheYear
📣 The earnings limit for Carer’s Allowance increased yesterday 📣
You can earn £45 more a week without losing your entitlement. You may also be able to claim for the first time if your earnings are below the new limit.
More information from @carers-uk.bsky.social: www.carersuk.org/help-and-adv...
You can earn £45 more a week without losing your entitlement. You may also be able to claim for the first time if your earnings are below the new limit.
More information from @carers-uk.bsky.social: www.carersuk.org/help-and-adv...
April 8, 2025 at 5:14 PM
📣 The earnings limit for Carer’s Allowance increased yesterday 📣
You can earn £45 more a week without losing your entitlement. You may also be able to claim for the first time if your earnings are below the new limit.
More information from @carers-uk.bsky.social: www.carersuk.org/help-and-adv...
You can earn £45 more a week without losing your entitlement. You may also be able to claim for the first time if your earnings are below the new limit.
More information from @carers-uk.bsky.social: www.carersuk.org/help-and-adv...
We are delighted to have been awarded Silver Accreditation by Wigan Council.
hashtag#BelieveInBusinessCharter hashtag#Wigan
hashtag#BelieveInBusinessCharter hashtag#Wigan
March 31, 2025 at 11:54 AM
We are delighted to have been awarded Silver Accreditation by Wigan Council.
hashtag#BelieveInBusinessCharter hashtag#Wigan
hashtag#BelieveInBusinessCharter hashtag#Wigan
We are delighted to have been awarded Silver Accreditation by Wigan Council.
#BelieveInBusinessCharter #Wigan @wigancouncil.bsky.social
#BelieveInBusinessCharter #Wigan @wigancouncil.bsky.social
March 31, 2025 at 11:53 AM
We are delighted to have been awarded Silver Accreditation by Wigan Council.
#BelieveInBusinessCharter #Wigan @wigancouncil.bsky.social
#BelieveInBusinessCharter #Wigan @wigancouncil.bsky.social
Mother's Day can be an especially tough day for people in the Lewy body dementia community.
Many of us are missing ours, some of us for the first time. Some of us are finding our roles increasingly reversed.
We wish you all the best day you can have.
#Lewybodydementia #dementia
Many of us are missing ours, some of us for the first time. Some of us are finding our roles increasingly reversed.
We wish you all the best day you can have.
#Lewybodydementia #dementia
March 30, 2025 at 9:29 AM
Mother's Day can be an especially tough day for people in the Lewy body dementia community.
Many of us are missing ours, some of us for the first time. Some of us are finding our roles increasingly reversed.
We wish you all the best day you can have.
#Lewybodydementia #dementia
Many of us are missing ours, some of us for the first time. Some of us are finding our roles increasingly reversed.
We wish you all the best day you can have.
#Lewybodydementia #dementia
Today our CEO Jacqui Cannon is attending the NICE Conference 25.
Looking forward to a packed day here in Manchester.
#NiceConf25 #dementia #lewybodydementia
Looking forward to a packed day here in Manchester.
#NiceConf25 #dementia #lewybodydementia
March 27, 2025 at 9:16 AM
Today our CEO Jacqui Cannon is attending the NICE Conference 25.
Looking forward to a packed day here in Manchester.
#NiceConf25 #dementia #lewybodydementia
Looking forward to a packed day here in Manchester.
#NiceConf25 #dementia #lewybodydementia