Ahh yes, found some. Didn't think of searching for Fibromyalgia. Thanks 👍

Been trying to avoid joining anything else but Reddit does seem really useful. Thanks again 😊🫵✌️

Ahh, didn't realize I could search subreddits without being a member. There is indeed a ton of info there. Thanks!

Oh, forgot to say thank you for the wishes ☺️.

We're lucky to have such dedicated researchers trying to fix this crap for us, but it's still so slow and needs moooooooore 💴💵💶💷

No need for apologies: we know how it is with energy. I've become terrible at messaging. LDN made my brain worse but I'm glad it worked for you! Treatment is a lottery. I've yet to find something that really moves the needle. Hang onto your spoons, looking forward to reading more good updates! ✊💪😊✨

Plus near constant unpleasant brain sensations and facial pain (new symptom after brain crash a year ago: woo 🥳😄).

Really glad you've improved enough to study again. You were really not doing well for some time 😔. Do you think you're still slowly improving?

Stuck on FUNCAP23 of around 4.5 with occasional dips lower for a month or so after crashes. I can potter around the house and go for a 20-min walk. Brain is still pretty bad though: can't read much or complex stuff, can only tolerate video or music for a very short time, sometimes not at all...

Heylo! Yeh, I kinda went off social media. I had a massive brain crash a year ago with very severe sensory sensitivity. I couldn't use screens for a while and then got out of the habit of social media. Plus was finding it a bit depressing. I'd say I'm pretty much the same for a few years now...

That's great news, Sarah 🙌. I remember reading your posts from early in your illness - glad you're well enough to be able to return to study. I wish you the best of luck with it 💪🍀

And there are plenty of people in far worse shape who would like to have my level of (in)activity 😔

I hope those other non-cardio exercises are of benefit to you anyway.

I can do about 4500 steps a day now when not crashed. Had been doing maybe 6000 in the year before crashing.

Oh I wouldn't be able to do any gym classes! I was able to do some very mild strength training at home in December but overdid it and wrecked my thighs. Since then, I can walk less.

Thanks Rose. Going to try PR Lotion and a magnesium muscle spray. Hope you're managing the ME as well as possible 💪🍀

Hi there. Is this only for people in the US?

Hi. Is this only open to people living in the UK?

Sorry to read all this 😔. I hope this latest chapter in the neverending saga of medical shiteness passes quickly and as painlessly as possible. Miaow✌️