lcmebillboards.bsky.social
@lcmebillboards.bsky.social
Raising awareness for Long Covid and ME/CFS.

Website - www.notrecovereduk.org
Twitter - https://x.com/lcmebillboards?s=21
If anyone in London would like to help hand out leaflets or take a photo with the van then the route is also attached.

Please feel free to share across social media!

There is also a Whatsapp group chat set up for volunteers on the day so please get in touch if you would like to join.
March 16, 2025 at 6:58 PM
We have attached a screenshot of the new leaflets and the route of the Digivan

10AM - DWP, Caxton House, 6-12 tothill street, sw1h 9na
11am - DHSC 39 Victoria Street, SW1H 0EU
12 Parliament Building, Parliament Square
1pm - DHSC
2pm Parliament
3pm Downing Street, SW1A 2AA
4pm Parliament
March 16, 2025 at 6:58 PM
Steve Topple has kindly agreed to board the van again this year for us and will have him with new and improved leaflets (designed by Alex Sprackland) specifically calling on members of the public to please join the community in getting the #WhereIsIt hashtag trending with us on 7pm that evening.
March 16, 2025 at 6:58 PM
This year we will be focusing on the failed delivery of the recommendations of the APPG to invest in £100M a year (minimum) in #LongCovid research.

We have thus chosen the hashtag of this campaign to be #WhereIsIt.

We will have a Digivan patrolling London and stopping at various locations.
March 16, 2025 at 6:58 PM
ah sorry we keep forgetting to do alt text! 😔😔 thank you for doing that
March 7, 2025 at 2:14 PM
@BFWoodburn on Twitter has a website here full of amazing mugs with proceeds going to the @openmedf.bsky.social

omfcharitymugs.teemill.com

We’re gonna make sure to order one as a big thank you for their help today!
March 4, 2025 at 8:26 PM
We will have a group chat for the Edinburgh volunteers and then will create another one for the London volunteers too.

Thousands of leaflets ready to go!

How many volunteers can we get???

#LongCovid #MECFS #pwLC #pwME
March 4, 2025 at 8:26 PM
thanks for sharing
March 4, 2025 at 7:36 AM
This is in ADDITION to our Saturday 15th March leaflet gathering at Edinburgh.

We will provide the leaflets for free!
March 3, 2025 at 8:18 PM
We have a Digivan booked for that day and routes/times are still to be confirmed so right now we’re just trying to get a rough idea of how many volunteers we could gather to hand out the leaflets alongside it or take a picture with the van when it stops.
March 3, 2025 at 8:18 PM
Are there any #LongCovid or #MECFS patients who would be able to come along to a leaflet handout session in central London on Tuesday March 18th? Or maybe friends, family members, carers etc?
March 3, 2025 at 8:18 PM