Lauren
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laurentalkingshite.bsky.social
Lauren
@laurentalkingshite.bsky.social
Crohn’s Disease, Stoma and disability advocate 🩵 Survivor currently breaking my silence and living with CPTSD and a ✨cracking✨ sense of humor. Professional yapper always🦋
@Lauren_talking_shite on Insta🤍
Well Bluesky, I took a moment because life is crazy

I come to you a week and a half later, home from a hospital admission for a #crohns flare which caused a full bowel obstruction and needing surgery to remove part of my bowel and widen scar tissue in other areas. I’m now 1 week post op 🩵 and home🩵
December 4, 2024 at 10:46 PM
Well it’s been a busy few days guys it’s been hard to keep up!! I had surgery about an hour after my last post (what is the bluesky short hand for post by the way??)

No stoma needed, recovery is tough. I did stairs for the first time today 🥰❤️ #crohn’s #IBD #surgery
November 29, 2024 at 2:04 PM
I have just found out I am going for surgery either in the next two hours or tomorrow morning. They are going to resect more of my bowel, clear adhesions and scar tissue and remove strictures. I won’t find out if I need a stoma until I wake up from surgery ❤️ been down this road before but it- 1/2
November 27, 2024 at 2:12 PM
Since I took this I’ve had the NG taken out because after nearly two days with it in and needing it aspirating regularly too I just couldn’t tolerate it any more but I did my best💜 since then things have only become more complicated with my full bowel obstruction 😢 #IBD
November 27, 2024 at 9:33 AM
So much to update you all on but so little energy and characters😂

My obstruction is still in place. Surgery identified as needed but disciplines disagree about when this should be. At times it’s felt like my voice hasn’t been heard but I’ve continued to advocate for myself regardless 1/3
November 27, 2024 at 9:12 AM
Been able to have three solid hours of sleep last night🩵 which has made a lot of difference this morning 🥹 the steroids are also having a positive effect, in that I have more energy 🥰 however, no sign of things moving blockage wise and pain still exactly the same. Just want answers now🥹 #IBD
November 26, 2024 at 6:40 AM
I am also so off my face on IV morphine being given the top dose and being nil by mouth for 2 who days. Means that it has taken me 10 minutes to write this and I keep dropping my phone on my face 🫠🥹
November 25, 2024 at 9:28 PM
Health Update:

They believe tomorrow is surgery day to remove and resect part of my bowel that is damaged beyond repair

50/50 chance of waking up with a stoma. A kick in the teeth after getting it reversed 2 years ago

Also found out i’m no longer in remission for Crohn’s as i’m in a flare😪#IBD
November 25, 2024 at 9:24 PM
Health update:

I have been admitted to hospital after struggling with extreme pain, nausea and a whole host of other symptoms.

Turns out I have a full bowel obstruction.

NG tube is in situ, unfortunately I have been sick alongside that. And for those who don’t know, vomiting with a- 1/3
November 25, 2024 at 4:43 AM
After a rough few days with #IBD it’s no shock to me that my #crohns has landed me in A&E ❤️ Complications with my stoma reversal leave me prone to bowel obstructions. I’ve had 3 this year. Not feeling mentally ready for an admission so please hold me in your thoughts if you have room to spare❤️
November 24, 2024 at 8:23 AM
Said in my bio that I have a cracking sense of humor, yet I am still to crack one single joke.
Bare with me bluesky lot, it’s been a hell of a rough week🩵
November 24, 2024 at 5:34 AM
Watching gaming YouTubers on nights like this is honestly my safe haven 🤍 It’s always my escapism when I can’t move or do anything. Every hospital admission I sink hours into watching lighthearted gameplay and comedy commentary because I’m too poorly to actually play anything 1/2
November 24, 2024 at 2:09 AM
One of those nights where my stomach is massively distended, lots of pain and feel so sick. Classic partial blockage vibes😪 managing to avoid hospital so far🙏🏻 maxed out on strong pain meds to help me get through, trying to watch youtube videos to pass the time😢 first one since July #IBD
November 24, 2024 at 2:00 AM
Today was 100% a pyjama and rest day. Was in a fair amount of pain and discomfort, lots of fatigue and unfortunately sleep was disrupted last night by 4 men in balaclavas trying our door at 2:30am which has left me shaken and unsettled, not surprisingly
November 23, 2024 at 11:17 PM
I think the bloating element of Crohn’s Disease can sometimes send even the most confident people into a body image spiral. Forever working on my self acceptance but it is difficult when your body visually changes sooo drastically in a day! #crohnsdisease #ibd
November 23, 2024 at 11:14 PM
Coral Island is the most underrated cosy game of our time and this is a hill I will die on
November 22, 2024 at 10:10 PM
Despite having just 5 spoons worth of ability today, I have probably spent about 20 (dog walk, doctors visit, food shop and two hours of intense uni work). Rather than ‘celebrating’ my productivity, I want to show compassion to myself that I achieved it, but also notice that I went beyond my- 1/3
November 22, 2024 at 5:51 PM
How many spoons does everyone have today? I’d say personally I have about 5, which is definitely not enough for anything productive 🥹 how is everyone else doing?🩵
#disability
November 22, 2024 at 12:50 PM
After a rough night in and out of sleep I am grateful that I made the difficult decision to take time out of the job I love, delaying my qualification date of my doctorate, in order to put my physical health first and allow my body the rest it so desperately needed 🩵
#crohnsdisease #disability
November 22, 2024 at 6:14 AM
Looking for people like me🥰
-video games
-dog mam
-animal lover
-Clinical Psychologist
-Disabled
-Trauma survivor
-gaming youtubers
-pop/alt/pop punk music
-swiftie
-IBD
-Research
-Happy stories
-Deep thoughts
-Outer Space
-memes
-humour
-poetry
-survivorship
-mystery
-alt fashion
Lets connect!🩵
November 21, 2024 at 11:49 PM
A small perk of having my sleep disrupted is to pass the time I choose to watch videos from my favourite YouTubers and it takes me back to how it felt being a teenager staying up until 3am “just because I could”🥹 as always it’s a mix of Call Me Kevin and @rtgame.bsky.social (the two Irish kings)
November 21, 2024 at 11:42 PM
The only time I think a person can come close to understanding what fatigue feels like, if they don’t actively suffer from fatigue is you are a person on day two of your period

#fatigue #chronicfatigue
November 21, 2024 at 10:02 PM
November 21, 2024 at 9:57 PM
I’ve had bald patches every since I was on immunesuppressants for my IBD, this week I gave myself a gift and got hair extensions put in! Might be something small but it’s made a huge difference with my confidence and i’m so happy with them 🥰 #ibd #crohnsdisease
November 21, 2024 at 1:16 PM
I’ve also spoke a lot on insta tonight about how I’m feeling quite triggered at the moment and struggling with lots of feelings and memories around my previous experiences of CSA and SA. It’s something I definitely want to bring to this app in time and break my silence with here🦋 1/2 #survivor
November 21, 2024 at 12:37 AM